alopecia totalis for 25 years
happy and coping with it, running a support group to help others with aa
likes football, classical music, walking, politics left
Hi Jenny, I'd love to meet up when you are walking around and about on Exmoor. Any plans as to where you will be on the Thursday evening 11th June at about 5pm. If so we could meet up. I will drive from Exeter to you. What do you think?
Margaret xx
Hi, I’m trying to arrange a get together this coming Saturday 23rd May. Can you meet up? When I find out who can make it I’ll arrange a mid way meeting place. I’m from Exeter – please let me know which town you coming from. I can’t wait to (at long last) meet others in the flesh who have alopecia. Margaret xx
I am afraid that I cannot get to Birmingham for your coffee morning because I am in Devon, but thank you for setting one up in England as most of the best things seem to be happening in the United States. I also loved your photos!
Hi Jenny, We had the vision and keeping it positive was a focus for us, and the members just ran away with it. I am very proud of what Alopecia World has become. Thanks for the encouragement, feel free to share any input. I think with alopecia being so visual, the photos are SO important, seeing people smiling and dealing with their alopecia in so many different ways.
Thanks for Saturday. It was really good, lots of information and help from pnk, they were really good. Hope to see you on 5th December, keep me updated on the plans. Nice to see lots of people there. I found it really helpful.
Thank you Jen. I have written a few letters recently and am currently working on a pamphlet. Thanks for your words. Looking forward to 2009 to put my plans into action. There may be a national alopecia day announced by then.
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jeffrey
Margaret xx
Margaret
Thanks for Saturday. It was really good, lots of information and help from pnk, they were really good. Hope to see you on 5th December, keep me updated on the plans. Nice to see lots of people there. I found it really helpful.
Thanks again
ps. Your blond hair looked fab.
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