Forum Discussions (6,516)

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How did your friends take you telling them you had alopecia?

My sister has alopecia and has had it since she was 6, she is now 19. I am trying to be the best older sister I can be by supporting her th…

Started by helpingMYsister in Acceptance and coping

41 Jun 22, 2013
Reply by Dorothy

Ponytails!

I just want to have a pony tail again. I have missed them ever since I lost my hair and have yet to find a good wig or way to have a higher…

Started by Erin in Wigs, eyebrows, hair pieces, fashion

23 Jun 20, 2013
Reply by Elaine

Locks of Love Expose in Forbes Magazine

This was a story that broke in Forbes Magazine in May regarding Locks of Love. Many of us know someone or may have been personally been aff…

Started by kastababy in Wigs, eyebrows, hair pieces, fashion

0 Jun 20, 2013

NAAF conference

So who else is going to the NAAF conference in St. Louis? It's my first one and I'm pretty excited about it. I'm not taking my 3 year old s…

Started by kdeff in Events, publications, promoting awareness

2 Jun 20, 2013
Reply by Sarah Sproul

Being transformed by the renewal of your mind

I have been thinking a lot about perspective lately. Mainly the fact that situations don’t necessarily change, but perhaps just our perspec…

Started by Cheryl, Co-founder in Acceptance and coping

15 Jun 20, 2013
Reply by Ivan

Does alopecia truly make you different?

I lost all of my hair fifty years ago as a boy and it never grew back. I spent the first few years coming to terms with my loss and bemoani…

Started by Ivan in Acceptance and coping

2 Jun 20, 2013
Reply by Cheryl, Co-founder

When I don't want to wear my wig, how do you wear a scarf (like a silk neck scarf) on your head?

I can't quite figure it out. And how do you make it stay on? When I attempt to put it on it slips off my head. I don't have much hair to pu…

Started by Bunny in Wigs, eyebrows, hair pieces, fashion

6 Jun 19, 2013
Reply by Alliegator

Hope

I was diagnosed with AA about five years ago right at the end of my senior year at a private snooty high school in Pakistan. When I told my…

Started by Meekoo in Love, relationships, gender issues

12 Jun 19, 2013
Reply by Ivan

Do all human-hair curly wigs frizz?

I've had alopecia universalis for 4 years now. I've always worn straight wigs, because that's how my hair always was (and will be again one…

Started by Aimee in Wigs, eyebrows, hair pieces, fashion

7 Jun 18, 2013
Reply by Aimee

16 years, AU. Please help

So, I'm 16 year old and I have had Alopecia Universalis since I was 2. I've been going out with this amazing guy for about two months now.…

Started by Kamryn in Love, relationships, gender issues

10 Jun 18, 2013
Reply by Dena

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