When did you develop AU? Is the highest probabilities during childhood?

I have heard that AU usually develops at younger ages (childhood) or during teens and some people develop it at larger stages in life quite fast. I currently have AA and I am 28. How many of you in late twenties, thirties, fourties that have developed AU suddenly with NO onset in childhood or NO onset during teenage years?

I am new to this forum and I totally respect each and everyone of you.

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Permalink Reply by Alo-mom on December 12, 2016 at 11:57pm

My daughter who has AU is now 28 years old. She developed it around 22 years old while away at college. AA can happen at any age, I am not sure of the percentages, I did learn there are over 100 autoimmune conditions, that is what really blew my mind. I was recently told that Autoimmune conditions is greater then the amount of cancer and heart disease. I have verified that but do know so many people that have one condition or another.  

Permalink Reply by CCV on December 13, 2016 at 6:16pm

I developed AU suddenly in May. I lost it all in about 2 months. I am 57 years old. I had a quarter-size bald spot at the back of my head when I was in my thirties. My hair stylist noticed it but it grew back right away. There was never a AA diagnosis and I never thought about it again until was on spot showed up at the same place in March.  Then all hell broke loose. I am experiencing slight regrowth in my eyebrows and on other places of my body. So disturbing at any age. I hope your condition never gets to this. Hang in there!

Permalink Reply by Patchylatchy on December 13, 2016 at 8:41pm
Wow 27 years later and it showed again..i cant seem to understand why it wakes up after long time and with aggressiveness
Permalink Reply by SwissAlopecian on December 14, 2016 at 10:35am

I had no single hair at the age of 14, I'm 16 today.

Oh, and it didn't got better.

Permalink Reply by Hopemom on December 1, 2017 at 10:04pm
Do you mind to tell us how are you doing now? Hope that you feel better.
Permalink Reply by ChelseaLee on December 14, 2016 at 3:50pm

Hi there, Patchylatchy! I was 37 when I developed AA. It progressed to AU within a few months. I had never noticed any bald spots before, but the first one I found was a doozie. I went to pull my hair up in a ponytail and realized there was a huge bald spot at the base of my hairline. It all fell out pretty quickly from there. 

Permalink Reply by Patchylatchy on December 14, 2016 at 6:02pm
Wow what a story! Do u knw what triggered itm
Permalink Reply by ChelseaLee on December 16, 2016 at 10:13am

I actually don't know! I did have a very stressful life at the time -- worked at a very stressful job for 13 years. And I always had allergies, eczema, and asthma. Those have improved immensely as I have grown older. I also was diagnosed with hypothyroidism when I was in my 20s. When pregnant with my 3rd child, it was confirmed as Hashimoto's Thyroiditis. So I definitely have some factors that are shared with other folks who have alopecia. 

Permalink Reply by SabineTawni on December 17, 2016 at 1:00pm

I first developed AA at age 24.  I noticed just one quarter-sized spot.  It filled in without any treatment after about 3 or 4 months.  After that, I would get one spot (always just one) about every 5 or 6 years or so.  Again, after 3 or 4 months, the hair would grow back (normal color without any medical treatment).  At about age 58 or 59, I developed a spot that would get larger and larger, and then developed a number of other bald patches as well.  The hair was not growing back as it did in the past.  I did seek treatment (cortisone shots, oral prednisone).  The hair would come back in some spots, but then it would fall out again, and/or new spots would form.  About 3 and 1/2 years ago, after stopping the shots, I rapidly progressed to AU.  About 6 months ago, all of my facial hair came back (perfectly normal).  I am curious as to know what caused such an extreme version at such a late age.  I went AU at age 65, and I am now 68.  My situation appears to be somewhat similar to CCV's case above.

Permalink Reply by Pamela on December 20, 2016 at 12:14pm

The first time i experienced AU I was 36 and it stayed gone 10 years.  The second time I was 63, I am now 69 with no hopes of my hair returning.  Both times I was under extreme stress.

Permalink Reply by LoJo on January 13, 2017 at 1:10pm

I was recently diagnosed at 49 yrs. No previous history. Started with a half-dollar size spot on my crown. Within 6 wks it's progressed to the size of a small grapefruit. At this point it's pretty difficult to disguise. Starting topical steroids so we'll see what happens. I'm vacillating between not giving a Duck vs. topper shopping. The uncertainty is the worst part. A developing monk's tonsure sucks.If I knew i'd lose all/most of my hair, I'd just shave it off. 

Permalink Reply by Pam D. on January 17, 2017 at 9:36am

AA at 58; two remissions (6-8 months each). AU 3 years later. Nothing in my past points to this...no stress, no illness, nothing, it just happened.

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