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Xeljanz (Tofacitinib Citrate): My experience on the trial
I have received a lot of interest from others on here in my involvement with the Xeljanz trials at Yale.
I thought it would be nice for everyone if I documented my progress on here.
Xeljanz is a Jak3 inhibitor and is believed to work with alopecia by turning off the distress signal relayed by the hair follicle to the attacking immune system which is the cause of the hairs falling out. Xeljanz comes in a strength of 5mg per pill and a full box contains 60 tablets. The recommended dosage for arthritis is 1 tablet in the morning and another in the evening each day.
The trial is set in a series of stages and there are requirements before participating. These include monthly visits and blood tests every 2 weeks. Dr Brett King is absolutely fantastic and is an inspiration to me. His positivity and enthusiasm gives me the much needed hope I have craved for over a decade. I have been put on a low dose to start with which is 1 tablet every other day. My dosage has now been increased to 1 tablet every day and next month it could be increased to 2 tablets per day depending on the results.
I have completed my first month and have already noticed my alopecia has stabilised . I have not lost any existing hairs. In addition to this I have seen little hairs growing in my chest area as well as eyebrows. Fingers crossed! To date, I have experienced no side effects.
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Replies to This Discussion
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Permalink Reply by RahulAlopecia on
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Hello,
Very encouraged by reading all the comments and progress being made with Xeljanz. I am 27 years ols have been suffering with alopecia areata and have never been able to grow facial, arm, chest, back and leg hair (few hairs here & there on arms & legs) Over the last few years I have also started to loose hair around the crown & sides which is getting really frustrating now.
I tried prednisone for a month, started with 50 mg/day/per week and tapered off by 10 mg each week. I had no success with new growth. however, the hairloss had stopped while on prednisone, but saw a significant hair fall after stopping prednisone which made things even worse. I got really pissed because I had asked doctor if I would loose hair after stopping the meds and she said no, but the reality is that I did and I lost more hair then I ever did. So please be careful and think twice before getting on prednisone.
BTW - I am able to grow some mustache but the growth is very minimal and patchy.
I have recently started taking Xeljanz 5mg twice a day and I am looking forward to the months to come and hope to make some progress. Will keep this team posted on the progress.
Thanks,
Rahul
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Permalink Reply by Xeljanzmiracle on
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Welcome Rahul!
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You're a perfect candidate for Celljanz Raul look into it. You still have hair so you will most likely Respond Well
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How did your progress go?
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Hi everyone
Hope everything okay with you guys'
Since long long time I have never been get sick (cold) around 4 years
No sick , After taking xeljanz 2 pills then upping dose to 4 pills per a day i finally got sick with cold, do you thing that my immune system going down, It reached the desired goal !!! Please help me
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Permalink Reply by Alo-mom on
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When my daughter first started Xeljanz she got a sore throat and flu symptoms and then they went away. She shared this with her doctor and he said if she got worse to notify him, it did not. All good. I would say just stay loyal to your doctors appointments and blood draws and hopefully you will be one of the many that have no side effects. Do not stress at this point.
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Hello folks! I am planning a trip to Turkey to purchase xeljanz. I must have missed it but does anyone know where in Turkey exactly I can find it? Is there a specific city and pharmacy I should look for? I hope you can help me
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TURKEY INFO: It's on page 136 of this thread. You can go there directly by entering page # on bottom right side of any page and then pressing "Go". The reply is by lu391 on November 24, 2015. She lists the name and address of the pharmacy in INSTANBUL. I think she has even posted a couple of pictures. For those going, please be extra careful in this dangerous, political climate and I hope you return home safe. Everyone, please make a note of this info on Turkey, so you can help other "newbies" in the future. Thanks
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Dwhite, how did your doctor's appointment at my dermatology clinic at UCSF go? Did you get to meet Dr. North? He's a sweetheart.
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Thank you much appreciated!
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Ur welcome. When are u leaving?
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