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Xeljanz (Tofacitinib Citrate): My experience on the trial
I have received a lot of interest from others on here in my involvement with the Xeljanz trials at Yale.
I thought it would be nice for everyone if I documented my progress on here.
Xeljanz is a Jak3 inhibitor and is believed to work with alopecia by turning off the distress signal relayed by the hair follicle to the attacking immune system which is the cause of the hairs falling out. Xeljanz comes in a strength of 5mg per pill and a full box contains 60 tablets. The recommended dosage for arthritis is 1 tablet in the morning and another in the evening each day.
The trial is set in a series of stages and there are requirements before participating. These include monthly visits and blood tests every 2 weeks. Dr Brett King is absolutely fantastic and is an inspiration to me. His positivity and enthusiasm gives me the much needed hope I have craved for over a decade. I have been put on a low dose to start with which is 1 tablet every other day. My dosage has now been increased to 1 tablet every day and next month it could be increased to 2 tablets per day depending on the results.
I have completed my first month and have already noticed my alopecia has stabilised . I have not lost any existing hairs. In addition to this I have seen little hairs growing in my chest area as well as eyebrows. Fingers crossed! To date, I have experienced no side effects.
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AW: Other discussions on Xeljanz / Tofacitinib
https://alopeciaworld.com/main/search/search?q=Tofacitinib
Replies to This Discussion
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Permalink Reply by katiegirl on
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My acne is pretty much localized just to the face. Forehead and around the sides of my face.
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Mainly face, but I did have a break out on my
Upper back for a few days. (Now gone)
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Permalink Reply by Megn on
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Ok ladies!
Is there new vellus hair in any of the acne areas?
Does anyone have a Clarisonic Brush that they are using/
How about topicals? Acne OTC products?
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I've been on it for about 6 months and I did get a little acne but not much... basically this medicine limits your body's ability to fight infection (it alters the immune system) and acne is essentially little infections so this makes sense.
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I see my doctor tomorrow morning to have blood work done and am starting Xeljanz tomorrow. I haven't had any hair on my head or body since I was 12 in 7th grade and I'm now 47. I've lived with this for over 35 years. I'm nervous and optimistic. Here we go...
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I understand Mike. Im mid 40s too. I've had no hair since 2012 but alopecia in various forms since 1989. Good luck!
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Permalink Reply by Lisa on
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Hi there. I have also researched this drug and it is extremely expensive....$25,000 a year. Even if it works
, who can afford that? $3,000 a month if you are on one 10mg tablet a day. I'm glad there's hope but realistically, I know I can't afford it.
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I agree with you. Cost of medicine is super expensive. I am from India and high manager post engineer get 25000$ a year after tax deduction or max 30. So no one can give 90-100% of money in just medicine.
I'm keeping my eye on cost of the medicine. I have a hope one day cost of Xeljanz will come down.
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Has everyone who is taking Xeljanz waited until they got the results of their first blood work before they actually started? I had mine done this morning and the results of it won't be back for 4 to 5 days. The results will obviously be the same whether I start it today or not when I get them but I just wanted to see how everyone handled that and also if anyone knows how this was handled by Dr. King in the trial studies. Thank you.
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