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Xeljanz (Tofacitinib Citrate): My experience on the trial
I have received a lot of interest from others on here in my involvement with the Xeljanz trials at Yale.
I thought it would be nice for everyone if I documented my progress on here.
Xeljanz is a Jak3 inhibitor and is believed to work with alopecia by turning off the distress signal relayed by the hair follicle to the attacking immune system which is the cause of the hairs falling out. Xeljanz comes in a strength of 5mg per pill and a full box contains 60 tablets. The recommended dosage for arthritis is 1 tablet in the morning and another in the evening each day.
The trial is set in a series of stages and there are requirements before participating. These include monthly visits and blood tests every 2 weeks. Dr Brett King is absolutely fantastic and is an inspiration to me. His positivity and enthusiasm gives me the much needed hope I have craved for over a decade. I have been put on a low dose to start with which is 1 tablet every other day. My dosage has now been increased to 1 tablet every day and next month it could be increased to 2 tablets per day depending on the results.
I have completed my first month and have already noticed my alopecia has stabilised . I have not lost any existing hairs. In addition to this I have seen little hairs growing in my chest area as well as eyebrows. Fingers crossed! To date, I have experienced no side effects.
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AW: Other discussions on Xeljanz / Tofacitinib
https://alopeciaworld.com/main/search/search?q=Tofacitinib
Replies to This Discussion
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Permalink Reply by Football fan on
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Amazing next time I go to the doctor(end of September)will have to ask about going on 3 pills a day for a month if I don't see something significant by then. I feel like the only person not seeing growth.I know I never get sick must have a crazy immune system or maybe because I have a hypothyroid which I think triggered my Alopecia.
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Permalink Reply by sadele on
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Hi football fan
I'm on week 7 of 10mg a day and haven't noticed any growth yet. I'm going on 20mg per day starting September 1, per the recommendation of my Dr. He said that I should see growth within 3 months, so I'll keep you posted! Don't give up!
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Football Fan
I'm in the same boat as you! I remember we started around the same time. I'm at my 5th week on 10mg. Just had my bloodwork today. I have nothing yet it's actually worse then when I started. I'm trying to stay positive but I know it's hard. I'm going to see how my bloodwork turns out and then ask my dr. if I can try 15mg for a month!! Don't give up!!
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That is so cool! Congratulations...
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Permalink Reply by Xeljanzmiracle on
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WONDERFUL! Beautiful! Do you Have any "before" pictures?
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Thank you all! Will continue to pray for us all on here. I wish that everyone will see a day rid of this awful disease!
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