Comment

Comment by kerry edwards on September 13, 2010 at 3:21pm

Hi Flin thanks for the link I have signed up.Also the infor was very helpfull. Like is alopecia hereditary. the cause of it and so-on. It would be nice to meet up with people in the same situation in the uk . I have friends for 12/14yrs and dont know I have au.My family have never seen my head uncover since I was 13yrs old. But founding about alopicia world has been very helpfull, insirpering,and encouranging, that I not alone, that there are people who have the same condition as me.Iam learning that things could be much worst, ie, having a arm or led missing being blind. So I give thanks,. But you do get those days when you think why me, I could be saving alot of money here or I could wash my hair and go.But heyhouh. Iam luckly that do look normally, thank-god.. Thanks again flin.

Comment by Flin on September 13, 2010 at 7:56am

Hi Kerry,
just wanted to say that there are support groups in the UK. I was living in London and I was involved in a support group. Check this out:
http://www.alopeciaonline.org.uk/about-alopecia.asp
In London, they also arrange meetings every two months or so. Their next meeting is on 25th September. You can contact Carolyn, she arranges everything. Good luck in everything!!
Good luck to everybody!!!

Comment by kerry edwards on September 11, 2010 at 4:22pm

Hi to you all just reading your bolgs. very encouranging , love the quotes I live in uk just wanted to know if there is any support aa groups where I can meet with people like me. Iam in my late thirtys. and found out about this site 6mths ago. I didnt deal with alopecia very well I was very depressed and with- drawn, at the age of 10. Its only in the last 4/3 yrs Iam expecting myself. In the us you seem to have a lot more support groups then uk? But I am very very gald I foung you guys. god bless each and everyone of you. You guys who blog regularly give hope to peolpe like myself..xxxxxx

Comment by Margo on September 11, 2010 at 11:04am

b>u>Attitude

Sometimes we just have to remind ourselves.........I know I do!
Blessings to all of us!!!

There once was a woman who woke up one morning,
Looked in the mirror,
And noticed she had only three hairs on her head.
'Well,' she said, 'I think I'll braid my hair today.'
So she did and she had a wonderful day.
The next day she woke up, Looked in the mirror
And saw that she had only two hairs on her head.
'H-M-M,' she said,
'I think I'll part my hair down the middle today.'
So she did and she had a grand day.
The next day she woke up,
Looked in the mirror and noticed
That she had only one hair on her head.
'Well,' she said, 'today I'm going
To wear my hair in a pony tail.'
So she did, and she had a fun, fun day.
The next day she woke up,
Looked in the mirror and noticed
That there wasn't a single hair on her head.
'YAY!' she exclaimed.
'I don't have to fix my hair today!'
Attitude is everything.

Be kinder than necessary,
For everyone you meet is fighting some kind of battle.

Live simply,
Love generously,
Care deeply,
Speak kindly.......
Life isn't about waiting for the storm to pass...
It's about learning to dance in the rain. We just have to count our blessings everyday.

Comment by Gail on September 8, 2010 at 4:45pm

I'm in Atlanta and don't know anyone in the northeast with alopecia. I would perhaps check with the dermatology departments of teaching hospitals in the NY/NJ/PA area to see if they can steer you in the right direction. DCP originally started as a treatment for psoriasis (another autoimmune disease) and produced results for hair growth. Also check not just dermatology but immunology docs as well. Good luck in your search....I'm sure you'll find someone.

Comment by Flin on September 8, 2010 at 4:33pm

Gail thank you so much for your resonse. You don't have by change any phone number/name or anything else I can contact for this matter? I called some docs in Philly but no one of them offered DCP. Maybe there are some I don't have their names...Thanks anyway :-))))

Comment by Gail on September 8, 2010 at 1:28pm

Yes, DCP treatment is available in the U.S. Don't know about docs in your area but there are plenty of folks on AW in the NJ/Philly area. Good luck!

Comment by Flin on September 8, 2010 at 12:34pm

Hello everybody..How are you? I hope everybody is doing well...
I just wanted to ask you guys a question, maybe you know. I will be moving to the US this month from Europe and will stay some years. The thing is that I am doing a DCP treatment here and my doc says that I should continue it because I am somehow responding to the treatment (still no hair though). So I would like to know if this treatment is offered in the States. I called some dermatologist in PA and NJ (I will be living in Philadelphia) but none knew about that. So, has anybody heard about that treatment or knows a doctor who offers it (even in another State)? Your help would be great!
I also want to wish everybody strenght and to keep going through this difficult time. In the beginning I had difficulties as well, but now I am somehow better, although I never forget about it and I would prefer hair. But, we have to make the best out of it and not give up on life. It still has many things to offer, things we can do or achieve even without hair!
Love, Flin

Comment by Kristin Kottwitz on July 13, 2010 at 2:49pm

Hi! My daughter (11yrs) has alopecia totalis. You can see you in my profile picture! She wears hats once in a while but other than that nothing. She doesn't like wigs. She had a full head of hair when she was born and until 11 months old. she started losing it then...and was completely bald at 12 months and has been since. She will be 12 on Sept 12, 2010 so that will be 11 years she has been completely bald.

Comment by Jean Smith on July 11, 2010 at 7:52pm

saying hi....

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