Comment

Comment by Jo kelly on October 11, 2009 at 5:19am

Hi all- I'm new...I'm having difficulty finding my way around on here...I'm not even sure if this is where i'm supposed to be to asked questions? It's so frustrating it's making me feel inadequate.....
Ive just recently been diagnosed with scarring alopecia I've been devasted ever since...I've some important questions to ask....Is this where i ask them? Can someone point me in the right direction....

Comment by Craig S on November 30, 2008 at 3:08pm

HI Everyone- I have recently been diagnosed with Lichen PlanoPilaris- a form of scarring alopecia. This is on top of a bad run of AA where about the bottom 1/3 of my scalp is bare as a baby's ass.

The Doc gave me an Rx of prednisone- which may help the inflammation in the potentially scarring pahse slow down ore stop completely.

My questions to anyone here would be how soon did you get your case diagnosed and were any attempts to cease the inflammation working? Did you find any regrowth in the areas after treatments?

My real issue is, do I stay on Prednisone for 6 weeks, grow back a bit of hair in 12 weeks, then watch the whole cycle start again- OR just bean my melon now and be done with it. I feel like a zombie on this drug- but my knees feel great, I am hungry all the time :-)

Any discussion or experiences would be welcome!

NAother question?? Do Black folks get the scarring types more often than other ethnicities? I was reading ablut keloid scarring in african americans- maybe that is a genetic thing with the scarring Alopecias? Just trying to understand some of the origins and outcomes..

Thanks

Craig

Comment by DesertAngel on October 20, 2008 at 1:58am

There aren't a lot of us scarring alopecians, huh? Well, soon I'll order one of those great t-shirts and see how many strangers react to it. That should be fun. I have an appt. on the 27th for a series of shots should I choose to take them. My balding spots are still here and I'm slowly but surely accepting that this is now the new me. I haven't had any sad spells in awhile which is great because I don't like being sad. Such a downer! Heehee I made a funny. ;p

Comment by Tiffany on October 8, 2008 at 6:17am

Hi Guys ?

Comment by DesertAngel on September 28, 2008 at 9:05pm

How's everyone today? I'm doing a little better. Hope you all have a great week!

Comment by DesertAngel on September 21, 2008 at 11:45pm

Hello, Deneene!

Comment by Dee on September 21, 2008 at 11:19pm

Greetings to everyone!

Comment by Follicle on September 15, 2008 at 8:03am

Is anyone going to the CARF conference?

Comment by Leon Johnson on September 13, 2008 at 9:42am

It seems to me that once that scarring alopecia can sneak up on you pretty easy because the symptoms usually start out small hiding under your healthy hair. I believe it needs weekly medical attention.

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