Alopecia World
www.alopeciaworld.com
Non-alopecians in Alopecia World
Information
If you're a member of Alopecia World and you do NOT have alopecia, you should join this group. Share your unique concerns as a non-alopecian who's truly supportive of alopecians. Let us learn from our shared experiences.
Website: http://www.alopeciaworld.net/nonalopecians
Members: 147
Latest Activity: Nov 8, 2017
Welcome
Thank you for your interest in this very special group.You certainly have come to right place, if you are a non-alopecian with the very best of intentions.
You should also join this group to learn more about how to support and reach out to the alopecians that you know and meet here in Alopecia World and elsewhere.
And, of course, you are welcome to share whatever thoughts, questions, and concerns you may have about being a non-alopecian in Alopecia World.
Regardless of whether you join this very helpful group, always be open to learning and growing and be sure to treat everyone with the utmost dignity and respect.
Wishing you an amazing stay,
rj, Co-founder
Alopecia World
Treat all members of Alopecia World with the utmost dignity and respect at all times.- Gather as much good information as you can from Alopecia World and use it to improve your support skills, life, and relationships.
- Show your friendly side. Complete your personal profile and upload your profile photo. You may also upload additional videos and photos that are appropriate for Alopecia World.
- Be honest about your intentions as a member of our beloved community. Make sure the "About Me" section of your profile states why you joined Alopecia World and how you hope to make a positive difference on the site.
- Do not spam members because posting duplicate, indiscriminate or otherwise inappropriate messages on AlopeciaWorld.NET will get you banned from the site.
- Before attempting to make personal contact with another member of Alopecia World, read their entire profile to see whether it might be appropriate to contact the person or make certain comments. (For example, adults interested in dating should not solicit members who are minors, engaged, married, or who have no interest in dating!)
- Blog about your experiences with alopecians and invite others to share their insights into these matters. You are also welcome to contribute to forum discussions.
- Ask alopecians how they feel about different topics rather than assume you already know.
- Contribute regularly to this and other groups that welcome non-alopecians.
- Have fun! Share things that might make you and others laugh and enjoy being on the site.
Discussion Forum
Why did you join Alopecia World?
Started by rj, Co-founder. Last reply by deanjones Jul 12, 2014. 26 Replies 0 Likes
Insight into supporting alopecians
Started by rj, Co-founder. Last reply by sean franklin Apr 10, 2010. 7 Replies 0 Likes
What do you think of these 10 tips?
Started by rj, Co-founder. Last reply by Liz Bradley Mar 4, 2010. 7 Replies 0 Likes
Comment Wall
Comment
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Comment by ahmed on December 26, 2011 at 9:21am
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hi
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hi
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Comment by Monica LUPUS MATTERS Ellis on February 24, 2011 at 8:14pm
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Hello Everyone:)
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Comment by John Ford on October 9, 2010 at 2:07pm
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...I take it the three postings I got notifications for earlier were deemed spam, and then removed??
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Comment by Maria M Licier on July 28, 2010 at 4:21pm
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I am dealing with Cancer treatments, that is why my hair fell out, but I love the look, going to keep it even when my hairs grows back in..
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Comment by Kristin Kottwitz on July 3, 2010 at 11:19am
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Hi! I just found this site. My 11 year old daughter has alopecia totalis. She had a full head of hair until she was 11 months old. Then started losing her hair. She was completely bald by 12 months old and has been bald ever since. She will be 12 on Sept 12 of this year. I never forced her to wear a wig. In 2nd grade she wore a wig for about 3 weeks after that she took it off and never put it back on. Once in a while she wears a baseball cap but that is all. Being bald is all she has ever known so it is her "normal".
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Comment by Dianna stewart on May 7, 2010 at 4:35pm
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hi im new to alopecia world,just found out last week my 12 year old daughter has aa..we shaved her head this week.but she looks just as beautiful and coping real well at the moment..waiting for her new hair wig to b made.
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Comment by Ellie on March 30, 2010 at 10:56pm
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I joined this site because I have a 5 year old daughter that has AA.
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Comment by Otávio Nogueira on March 29, 2010 at 12:14pm
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I joined this group to know people and make friends. I'm bald for choice and don't consider being bald like a problem.I care much more about what people have inside...
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Comment by Ted Michael Morgan on March 26, 2010 at 5:09pm
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The entire world of body image or our reactions to physical trauma, to what we do to modify our bodies, our modes of self-presentation have deep resonances in the life of each one of us. All this fascinates me--there are good reasons that have to do with how I indentify with our people.
I was musing a few minutes ago about my encounters with patients on a burn ward, of women and men (adults and children) whom I have encountered. I have wondered why I am drawn to people who have survived many kinds of trauma. For a quarter century, I worked with people who are in recovery from addictions. I suffer from PTSD and depression.
I just muse on this at this moment because some links that I had not clearly made come slowly into focus. Folks be kind to each other. Love that pilgrim soul in each of you.
This is a terrific resource. Thank you for letting me come here from time to time.
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