Comment

Comment by MacKenzie Smith and Melanie (mom) on February 22, 2009 at 7:36pm

Hi Dana,

My daughter, MacKenzie, was born with no hair at all plus no eyelashes or eyebrows. She has never had patches because she has never had any hair. It is rare to be born with alopecia but there are cases out there. My daughter is one of them. She is now four years old and I cannot tell you what colour her hair is. Hard to deal with sometimes but we are coping.

Comment by dana on February 22, 2009 at 5:04pm

I´d like to ask you, do you know personaly or have you ever seen or heard about somebody who was born with alopecia? I mean , who was born with patches?my child was born with large strange shaped alopecia aerata after RH-inkompatibility. Thanks for help. dana


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Comment by Angelica on February 19, 2009 at 12:07am

Hello everyone,
A few weeks ago my 7 yr old daughter developed a bald spot. I noticed today she was loosing more hair. Her doctor said there's nothing we could do about the hair loss but just wait and see how it plays out. I am so heart broken for her. How do I help her cope and understand what it happening to her. I dont know anyone with AA so if there's anyone in or around Sacramento CA I would love to speak with you.

Comment by Melani Molina on January 24, 2009 at 6:48pm

Hello all. Quick question--the other day I noticed that Genevieve had two large red areas at the base of her neck and several small ones on the rest of her scalp. I know that once the white blood cells are attacking the area becomes inflamed, but do these spots mean she will definitely lose hair there? It has been a few days, and I haven't really noticed any loss in those areas(which are now more pink in color). Am i just being completley paranoid? Genevieve was just diagnosed last week, so I am a little obsessed with finding out all I can about AA.

Thanks,

Melani

Comment by JOSE CHARQUENO on January 14, 2009 at 2:17pm

WE DID THE RESEARCH VISIT ON MONDAY AND I HAD ALL OF HIS PREVIOUS BLOOD WORK BUT THEY STILL DID MORE ITS TO CHECK HIS DNA THEY ARE LOOKING FOR A GENE THAT CAUSES ALOPECIA AND THEY ARE LOOKING FOR VITAMIN DEFENCIES LOOK AT MY SITE AND LOOK FOR THE POWERPOINT ON ALOPECIA I HOPE IT HELPS.

Comment by Sara (Ryan's mom) on January 14, 2009 at 1:17pm

I signed Ryan up for the Research as well. We go in March, We will be going to NYC, Columbia University. They were all very nice and did tell me to bring his prevoius blood work but they would be doing more blood tests along with a fungus test? Has anyone else had to do this and what is it? Of course I have hope and am thinking maybe he has a fungus that is causing this? He does have several warts :)

Comment by Lyndsey on January 14, 2009 at 9:44am

Ooh, the guessing game is fun! My dad was in the Navy for 25 years, I know all about that. I wonder the same thing about Lyndsey's hair. I jsut pray that this is the worst we see for now.

Comment by Nicole on January 13, 2009 at 10:03pm

her one spot has been growing back in. I sometimes wonder if she was diagnosed wrong. But then I see her hair thinning and wonder when I'll see another patch missing. I hate that this is a guessing game. (although being a military wife I should be use to that! LOL )

Comment by Lyndsey on January 13, 2009 at 4:44pm

Nicole, that's exactly how Lyndsey's was. She has experienced some regrowth on top so it finally looks a little thicker but she still has a small spot at the crown of her head.

Comment by JOSE CHARQUENO on January 13, 2009 at 2:41pm

WE WENT TO HOUSTON YESTERDAY FOR THE RESEARCH ON ALOPECIA THEY TOOK BLOOD AND WE TALKED ABOUT FACTORS AROUND THE TIME THAT HE GOT ALOPECIA IT WAS A VERY NICE PLACE AND VERY NICE PEOPLE.THE DOCTOR TOLD ME ABOUT AN EVENT IN HOUSTON THIS YEAR THROUGH THE NNATIONAL ALOPECIA AREATA FOUNDATION SHE SAID LOOK IT UP ON NAAF.ORG FOR DETAILS. OH YEAH THEY ALSO TOLD ME THAT MY SON NOW HAS ALOPECIA UNIVERSALIS. BUT HE IS STILL VERY HANDSOME!!!!!!

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