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Comment by Alyssamama on July 31, 2008 at 9:25pm

I need help understanding how Alyssa got Alopecia. She turned 7 in march and soon after that she got a spot. Since March she has lost 30% of her hair. We had blood work done, everything came back normal. There is no history of Alopecia in the family. The doctors cant tell me much because they are stumped as well. My husband and I are just having a hard time accepting the fact that she might lose all of her hair.

Comment by Sharon on July 26, 2008 at 12:54pm

Hi there our daughter has had alopecia since she was 8, it has progressed to the point where she is pretty much AU now, most of her eyelashes have gone and now her eyebrows are making a hasty retreat. It is so awesome to meet other parents who understand what it is like living with Alopecia.........what a journey aye! Anyway looking forward to getting to know new friends.
Regards Sharon

Comment by Terry Wagner on July 17, 2008 at 8:30pm

Hi everyone, I am new too -- really glad i found this site! My son Owen age 11 was diagnosed in April. My husband, daughter and I were quite upset as we had no idea what this was -- we thought it was a bad haircut -- not so much as you all know! He just lost his eyebrows 2 weeks ago and about 1/2 of his eyelashes. His derm is treating him with Olux-E cream and it is helping. I have so many questions sometimes I don't know where to begin -- I think I'll be stopping by often!

Comment by Buffy, Alicia's Mom on July 15, 2008 at 2:25pm

Hi, My name is Buffy and I am mom to two daughters, Alicia and Laura(age 7). Alicia is 9 1/2 and was diag at age 2 1/2, when she lost over 75% of her hair. It all grew back within a year and since then, she has had patches of growth and loss continually. In May (2008), she started a "major" fall out, that has seemed to slow down now. But, she has lost about 35-40% on one side of her head. She is a great girl, with a great attitude! She will start 4th grade in Aug. I am looking for information on wigs or hair club! As Alicia gets older, I just want to be prepared to give her all her options and let her decide how she wants to cope with AA.

Comment by Nicole on June 28, 2008 at 10:17pm

Hi everyone. Thursday we discovered my 2 YO daughter had a bald spot (which wasn't there earlier in the day...). Friday I took her to the pediatrician (after surfing the web for causes) and she was diagnosed with AA. I have my good moments and I have my bad moments but I want to be as educated about this as I can be and get support from those who are going through the same things.

Comment by Annette on June 27, 2008 at 3:02pm

Hej! I have got 4 children; my son Simon has got AA and maybe my baby-daughter, too (she is 3 months old now).
Simon had AA last autumn for the first time and now it seems to start again. I just found a spot on his head; all this is quite new to us and I think it is so frustrating that nobody knows how it is going to develop.

Comment by Eileen on June 14, 2008 at 5:43am

Hello all
just found this page..I am mom to a 7 year old spunky girl named Kelly. Kelly has had AA since age 3. She has lost up to 70% of her hair in the past...currently has almost all of it. WE have encouraged Kelly to be very up front about her alopecia b/c we felt "hiding" anything just would make her feel like there was something wrong about her that she needed to hide. Kelly is going into 3rd grade this upcoming year and so far, life is good. Her friends love her for who she is, which is all anyone can ask for! Look forward to chatting with all of you....Eileen

Comment by Christel Hertz on June 13, 2008 at 1:41am

Hi i'm new my name is Christel I have two kids Jennifer 8 and Matthew 4. Jennifer has had Alopecia since she was two. She is completely bald and has no eyebrows and eye lashes. She wears a wig from Freedom Wigs, which is fantastic. She is a lovely girl and does well at school. Jennifer is really amazing, she has accepted the fact that she has Alopecia and she enjoys life.

Comment by Jodi Wertz on June 6, 2008 at 12:09am

HI everyone. I'm just curious if any of your children have hypothyroidism? My daughter was diagnosed 2 days ago and started meds today. I updated our former Pastor earlier about Sarah Beth. Thought I'd copy that e-mail and paste it here.....
"The end of last week I went to the pediatrician and requested they do some bloodwork. We got the results yesterday afternoon. Sarah Beth's thyroid is not functioning well at all. Her Free T4 - Reflex level should be between 0.58 - 1.64. Sarah's is 0.41. Her TSH Reflex level should be between 0.34 - 5.60. Sarah's is 105.56! The first level shows that Sarah Beth's thyroid is not functioning properly. The second level shows that her body is working hard trying to compensate. They have scheduled an appointment for her next Thursday with a pediatric endocrinologist. They can treat her thyroid. They want to do more bloodwork to learn more about what's going on with
her. It appears that this is caused by atoimmune disease. No surprise, as it runs in our family. What we're not sure yet is whether Sarah Beth's thyroid not working is the only reason her hair is falling out, or if she has thyroid problems and alopecia areata. Both are
autoimmune, so there is the chance she is fighting 2 things, not one. We won't know for sure until we see how she responds to the
thyroid treatment. This has all been really difficult, but Sarah Beth is handling it
with all the same spunk she has always shown. I'm very thankful there is something they can do for her and that she will feel better soon. She has really started to be run down. Sleeps a lot and doesn't want to eat."
That was my update from yesterday. Sarah Beth started on Synthroid today. The Doctor said we'll have to wait and see if Sarah Beth's
hair responds to the medicine, also. If it doesn't, we'll know she has both AA and Hypothyroidism.
I have wanted to try the essential oils and possibly the onion juice. I'd love to find a support group in NC, but so far can't find one. Any of you from NC?
Sarah Beth's first spots showed up 3 months ago and I finally went in and requested her bloodwork last week. That's how we found out about her thyroid. She is very tiny from being a micro-preemie and didn't have the classic symptoms of Hypothyroidism, so they hadn't tested her. Thank God I asked them to do the tests!
Thank you to everyone in this support group!!!! You all are a blessing!!!

Comment by Children's Alopecia Project on June 4, 2008 at 2:37pm

CAP Parents Chat tonight (Wed, June 4th)
at 9:30 pm EST.

To log onto a chat go to to www.childrensalopeciaproject.org. Click on CAP Member Login at the top of the page. Fill in your user name and password. Then go to the CAP Member Menu at the bottom left. Click on Chat Room. Then go to General Chat. Hope to see you there.

If you don't have a password or are having problems call me at 610-468-1011 or email - betsywoytovich@yahoo.com
Thanks,

Betsy Woytovich
www.childrensalopeciaproject.org

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