Frontal Fibrosing Alopecia Discussions (350)

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EMULAID for Lichen Planopilaris (autoimmune skin condition can harm hair follicles)

Has anyone tried this product?   I read someone stating "I have a rare form of scarring alopecia called lichen planopilaris. When it flares…

Started by Booville

2 Feb 3, 2022
Reply by Lenotmve

New Treatment Options

Hi All, I got a Google alert for a study I thought many of you would be interested in. Here's the abstract: This study aimed to assess the…

Started by Jess

21 Jan 9, 2022
Reply by FFAKari

Success with any drug

hi Everyone. I'm new in this group and so grateful to have found it. I am female, 41 and also newly diagnosed. So I am on rogaine x2 a day…

Started by Erika B

27 Jul 8, 2021
Reply by sampeckard

Study: Leave-on facial products linked to FFA

Have you all seen this article yet? http://www.doctorslounge.com/index.php/news/pb/62273 My derm mentioned sunscreen as a possible trigger…

Started by ammie

25 Apr 7, 2021
Reply by Bill_Andrews

Counselling?! We are our own!

I got my FFA diagnosis by biopsy  in January 2014, 4 years ago. Here’s my first post in this forum: ” Just diagnosed ( twice) with probable…

Started by Liz Lov

16 Apr 5, 2021
Reply by Yringel

Vitamin D Deficiency?

Hey Everyone. Not long ago, someone posted about the Coimbra Protocol. I hadn't heard of it, and did a little researching, and it appears t…

Started by Jess

35 Mar 1, 2021
Reply by Antonio Ward

Plaquenil ( hydroxychloroquine) and covid 19 symptoms

Hi all,As hydroxychloroquine ( Plaquenil) is a hot topic right now and is being discussed as a possible treatment for Covid 19, I would be…

Started by Liz Lov

7 Feb 8, 2021
Reply by Kojack

Is household mold a trigger?

Hi all, This is my first post, I'm new to the forum, but have so far found the discussions very enlightening.  I was wondering if anyone h…

Started by Sarah

4 Nov 30, 2020
Reply by Bill_Andrews

Outer Ear Cartilage Pain

It's been awhile! Update on my status from being diagnosed 4 years ago - the hairloss continues, now starting in the front hairline and mor…

Started by Madmasoo

21 Nov 30, 2020
Reply by Madmasoo

Hair pieces

I think I may have just sent this topic as a message to everyone, my apologies I am not the best at technology. I have had FFA for a numbe…

Started by Flowers_

6 Nov 5, 2020
Reply by Afraid

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