Frontal Fibrosing Alopecia Discussions (350)

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Time for a wig?

I was diagnosed with FFA 2 years ago. I think this is the year that I will finally get a wig. But what kind? I love to exercise and garden…

Started by Sharon Huge

1 Feb 13, 2016
Reply by Cheryl

FFA diagnosis

Hi - new to this group. I am 64, realised my hair was disappearing around three years ago, when my eyebrows seemed to suddenly go. The GP t…

Started by DeniseC

4 Feb 13, 2016
Reply by Donelle

FFA and corticosteroide

hello, about 2 weeks after I received injections with cortecosteroides (Kenakort) in my shoulderjoints,I founs out that I was losing hair.…

Started by Jeanne

2 Jan 30, 2016
Reply by Jeanne

FFA or Androgenic Alopecia?

Has anyone been diagnosed with ffa without a biopsy? Was seen by two dermatologist already and dismissed that I have ffa. Both said I have…

Started by Mariah

9 Jan 21, 2016
Reply by Mariah

Cortisone injections

The dermatologist that I saw initially after I was diagnosed with FFA prescribed many medications - finasteride, elidel, lyderm gel, clobet…

Started by DW

5 Jan 19, 2016
Reply by DW

FFA - Laser treatment advice

Hello everyone. I'm a 30 year old male who has a history of subacute lupus symptoms (last 7 years have provided reactions to the sun mostl…

Started by jonpolo

2 Jan 13, 2016
Reply by Brenda, IL US

Finastoride

I am interested to know can some get help with Finastroide? I did search and came to know its work very well . But , mostly it works not fo…

Started by Mellisa

14 Jan 11, 2016
Reply by ammie

Spironolactone and burn out

Hi, has anyone used Spironolactone? What do you think about it? Has anyone reached the burn out and how long did it take?

Started by BBQueen

0 Jan 6, 2016

Information on how to participate in the FFA Study

Hi, everyone!  You may already be aware that there is a study underway right now to try to discover what may be causing FFA.  This study is…

Started by Let's Solve This

4 Jan 6, 2016
Reply by ammie

Because of the Lack of studies for Frontal Fibrosing Alopecia I made a Chart here

My Doctor says it's almost guaranteed that there will be no studies for the disease FFA because there's NO money in it.  If there are studi…

Started by DragonandFox

64 Jan 2, 2016
Reply by sallylwess

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