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Frontal Fibrosing Alopecia Discussions (350)
| Discussions | Replies | Latest Activity |
|---|---|---|
New Here - just given diagnosisHi everyone I have just joined because it has been confirmed I have FFA. I have very little eyebrows left, no hair on my arms or the fronts… Started by La |
7 |
Jul 28, 2020 Reply by Desei |
Has anyone had any luck going on the Autoimmune Paleo Diet?Since I was told this is an autoimmune disorder, I was thinking about trying this diet to try and help reset my immune system. Has anyone e… Started by CarolJ |
14 |
Jul 24, 2020 Reply by JakeHodges1985 |
Face rashHi! I wondered if anyone else has a rash on their face that seems to be "under the skin" leaving raised bumps and your skin seeming like it… Started by Ruth |
16 |
Jun 8, 2020 Reply by HeatherG |
Bonded Hair PiecesThe question I get asked the most about living with frontal fibrosing alopecia (FFA) is about my bonded hairpiece. A bonded hairpiece simpl… Started by CurlyK |
7 |
Apr 22, 2020 Reply by Lori H |
CARF Conference 2018 NotesCARF 2018 Conference Notes: First of all, I am so glad I went to the CARF Conference! It was worth every dime I spent – a true investment i… Started by CurlyK |
31 |
Mar 19, 2020 Reply by Lorenzo Morris |
So much hair loss from Rogaine!Hi all, I started using Rogaine a little over a month ago. At first I was using the 2.5% liquid however I was having major dandruff with th… Started by Rachel218 |
22 |
Feb 20, 2020 Reply by emillnoore |
oral isotretinoin (Accutane), FFA and facial papulesI saw my dermatologist this week to discuss trying Accutane. Boy I was not prepared for the hoops I have to jump through to start it! It is… Started by Anne Louise |
7 |
Jan 21, 2020 Reply by GLMV |
Armpit hairOkay, here's another one. My armpits are red and itchy and are driving me crazy. I assume it's an allergic reaction to my deodorant but won… Started by Peggy |
2 |
Jan 20, 2020 Reply by HeathNJ |
Finesteride, Cellcept results?Hi I am new to the group but have been dealing with FFP/LPP for a few years now. I have been to 3 different doctors. I think they get fed u… Started by Irisheyes |
17 |
Jan 20, 2020 Reply by GLMV |
Recommendations from NJ membersIf there are members from NJ I would appreciate any feedback on Doctors that you've seen for FFA. Any that you recommend or those that you… Started by HeathNJ |
5 |
Jan 18, 2020 Reply by ohnonotme |
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