Frontal Fibrosing Alopecia Discussions (350)

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Minocycline vs. doxycycline

I just went for a second opinion yesterday and now have a ton more questions! For now I will just stick with this one. My dermatologist sta…

Started by Anne Louise

3 Mar 21, 2014
Reply by Anne Louise

Getting together UK

A few of us were wondering whether you would like to have an agenda for, say, an hour so that we can hear all views and then go informal. …

Started by Celia

1 Mar 14, 2014
Reply by Pam

FFA RESEARCH - DNA (saliva) SAMPLES NEEDED

Dr Christos Tziotzios MA, MB BChir (Cantab) MRCP (UK), MRCPE, FHEA NIHR Academic Clinical Fellow & Specialist Registrar Genetic Skin Di…

Started by Debs

10 Feb 9, 2014
Reply by claire

Plaquenil side effects

Hi I live in australia I have FFA. I have been prescribed plaquenil and have been taking 200mg once daily for 6 months. I have stopped beca…

Started by Pam

4 Feb 5, 2014
Reply by Brenda, IL US

Laser therapy

Anyone trying laser therapy for your hair loss? Have any of your doctors recommended it. I keep reading about its benefits but haven't hear…

Started by ammie

8 Dec 5, 2013
Reply by Debs

Getting the right diagnosis

Hi everyone, I was so relieved when I found this site. It makes me feel like less of an outcast. Thank you to all of you for opening up an…

Started by ammie

18 Nov 25, 2013
Reply by ammie

Green-lipped mussel powder

Hello All,      I had a scalp biopsy and was diagnosed with FFA about a week ago.  Was very upset (duh)!  Was called with the results by a…

Started by Danceflyer

4 Nov 15, 2013
Reply by Danceflyer

FFA hairloss ?

Did you ladies lose the hair on your arms and legs also? The reason I ask is because I too have had several different diagnosis and I am tr…

Started by Michjo57

25 Nov 11, 2013
Reply by sallylwess

Newcomer with questions about progression of FFA

Hello All, I just joined this site and am searching for information.   My dermatologist is on maternity leave  and her associate told me he…

Started by Ann

13 Oct 28, 2013
Reply by Ann

Some questions from another newcomer- specfically regarding eyebrow transplants

First off- I sent this as a message- oops- just figuring this out. Here's my post from last night. I am 42 and lost my brows first around 3…

Started by Katy M.

26 Oct 19, 2013
Reply by Sam

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