Frontal Fibrosing Alopecia Discussions (350)

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Also new

Hallo, I,m Carin and i,m from Holland, my englisch is not That good so i hope it is comprehensible. I was diagnosed with Ffa in june. I did…

Started by Carin

4 Sep 16, 2013
Reply by Debs

How long does regression typically take? And any natural remedies found to work at all?

Hi - I am new to this site and unfortunately newly diagnosed with FFA. My once thick, rarely plucked, eyebrows began thinning about 2 years…

Started by Sam

19 Sep 12, 2013
Reply by Sam

Figuring this all out

Hi All, I think I may have FFA. I've been doctoring for nearly a decade now with no specific diagnosis, except some autoimmune issues, like…

Started by Connie

4 Sep 6, 2013
Reply by Connie

Navigating the site

Sorry, I may have inadvertently sent an email to you all with my question instead of a post to this discussion forum. Forgive me. Connie (o…

Started by Connie

0 Sep 3, 2013

Long term medications

I have FFA. I have taken protonix (acid inhibitor) for years and just wondering if this could be a contributor to this problem. Do any of y…

Started by LTown

5 Sep 2, 2013
Reply by Sandy

Newly diagnosed, scared and overwhelmed, lots of questions

Hello Everyone, This is the first discussion board I've ever joined so I apologize if this is not the appropriate place to post this. I'm 3…

Started by April

12 Jul 26, 2013
Reply by ammie

Devastated over FFA diagnosis

Well, I was just officially diagnosed with FFA on Tuesday. I am completely devastated at the moment and feel so lost. I have been "lurking"…

Started by Maddy, California, U.S.

12 Jul 16, 2013
Reply by PamW San Diego, CA, USA

frontal fibosing alopecia

HI I have fibrosing alopecia, I waa just told december 2012. I am confused, distressed please if anyone can let me know if they have had an…

Started by Veronica (Renata)

79 Jul 12, 2013
Reply by PamW San Diego, CA, USA

Wigs and Hairpieces

I am starting this discussion for the feelings and experiences of other sufferers towards wigs and hair pieces. I don't need a wig at at th…

Started by MairiM

74 Jul 12, 2013
Reply by ammie

Tender head

I have tried to wear wigs but my head gets bruised and sore on the temples and sides. Does anyone have any suggestions? I have tried the ge…

Started by Shar

16 Jun 9, 2013
Reply by Shar

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