Frontal Fibrosing Alopecia Discussions (350)

← Back to Frontal Fibrosing Alopecia
Discussions Replies Latest Activity

Stem cell therapy???

Hi All, I was diagnosed this summer after noticing the hair over my ears had disappeared (around March).  I am devastated.  I feel guilty…

Started by Danielle

3 Jan 18, 2020
Reply by Clazsis

Hats/helmets make it worse?

Hi all, have you found that wearing a ball cap or a bicycle helmet aggravates your symptoms? When the symptoms first started appearing, I t…

Started by Peggy

0 Jan 13, 2020

Newly diagnosed in New Jersey

I'm so happy that I found this group. I was diagnosed with Frontal Fibrosing Alopecia a few days ago. It does explain a lot of things that…

Started by HeathNJ

1 Jan 10, 2020
Reply by Peggy

Newly Diagnosed with FFA

Hi Everyone, so glad to find you here.  I was officially diagnosed about a month ago with a biopsy, it hurt!  I had gone to derm and asked…

Started by 2Dachshunds

24 Jan 5, 2020
Reply by Leigh

Help any medicines that work?

does anyone think finasteride works? I think a lot of people at the CARF conference were on finasteride , but does it work? I have been on…

Started by Toby

9 Dec 28, 2019
Reply by Louise

Thinking FFA might be my new normal

Hello all! This will be long because I talk too much.      Glad to see activity here. A lot of the forums I found are no longer active. I a…

Started by spoilmygurl

11 Oct 19, 2019
Reply by Mishkatty

Interview request! Do you live in North Carolina and FFA?

Hello! I am writing an essay on FFA to pitch to a few media outlets. I'd like to interview those who have lost their eyebrows -- I can do…

Started by NorthCarolinaMama

0 Sep 27, 2019

All natural makeup brands

I've had FFA for about 10 years now. I'm just curious if folks in this group have gone completely natural with their skincare, sun care, an…

Started by NorthCarolinaMama

11 Sep 27, 2019
Reply by NorthCarolinaMama

Minoxidil regimen

For those using minoxidil 5% foam, do you aplly 1x per day or 2x per day? Thanks!

Started by ohnonotme

3 Sep 24, 2019
Reply by ohnonotme

Changes you've made to your hair care routine since diagnosis?

Has anyone discontinued hair coloring since diagnosis with FFA? I usually get highlights done (which involve bleaching) and when I asked th…

Started by ohnonotme

5 Sep 16, 2019
Reply by Donna

RSS

Disclaimer

Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.

© 2024   Created by Alopecia World.   Powered by

Badges  |  Report an Issue  |  Terms of Service