Frontal Fibrosing Alopecia Discussions (350)

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Any advice on how to make hair look thicker?

Hello Everyone I have had FFA for a number of years now. Sadly the hair I am left with is very fine I used to have really thick hair and…

Started by Marytee

2 Sep 25, 2018
Reply by Rose

Any advice on how to make hair look thicker?

Hello Everyone I have had FFA for a number of years now. Sadly the hair I am left with is very fine I used to have really thick hair and…

Started by Marytee

0 Sep 24, 2018

Anyone notice unusual hair shedding/loss certain times of year?

I was diagnosed with FFA  about a year ago. Last August I noticed  lot of hair loss.  Then it seemed to slow during the winter & Spring…

Started by Donna

9 Sep 21, 2018
Reply by Rose

Silver based creams? Anyone?

has anyone tried Silver based products as a steroid alternative to apply at night?  I’m wondering if it helps the scalp inflammation.  

Started by DragonandFox

0 Sep 21, 2018

Has anyone lost their eyelashes?

Hi everyone! I've been losing hair for nearly five years now and was officially diagnosed a year and a half ago. I lost my eyebrows and had…

Started by CurlyK

14 Sep 21, 2018
Reply by DragonandFox

Upper facelift trigger FFA?

Hi everyone, Some days ago I went to a surgeon, recommended by my dermatologist. to ask her about the possibility of removing scared skin o…

Started by Agneta

4 Sep 16, 2018
Reply by Agneta

A Blog Post about Attending the CARF Conference

I wrote a recent blog post about attending the CARF Conference that was held in Philadelphia recently.   You can read it here:   https://sa…

Started by sallylwess

1 Aug 3, 2018
Reply by Marytee

New to FFA group (sort of!)

Hello all.  Although I have been a faithful follower of this group for about 6 months now, this is the first time I’ve actually joined in.…

Started by BooBear

4 Jun 28, 2018
Reply by Minter

side effects

HI ladies, First of all, this site is great. It helps me to know I have support, even if its bitter sweet, as I wouldn't wish this sufferin…

Started by Erika B

3 Jun 25, 2018
Reply by Halfbakedwho

FFA burns itself out - has anybody reached this stage?

Hi, My dermatologist said that this disease will "burn" itself out and my hair will eventually stop falling out.  Has anybody reached this…

Started by smiletome

28 Jun 22, 2018
Reply by Lori H

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