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Comment by LittleSadEyes on August 26, 2015 at 2:18am

I hate the wind. I can't have my hair blown back without looking like a freak anymore.

Comment by LittleSadEyes on August 25, 2015 at 8:30pm

Mj I saw one who dismissed every issue I have.

Comment by MJ on August 25, 2015 at 4:56pm

Little
A gyn is not sufficient. Please get a referral to an endocrinologist. They specialize in the endocrine system which regulates all hormones.
MJ

Comment by LittleSadEyes on August 25, 2015 at 10:38am

Mj I do see a gyn, yes. My hormonal issues are multi factorial. The first most marked issue lies within tubal scarring acquired from pelvic inflammatory disease. The second is somewhat of a mystery, but is related how my brain does, or rather DOESN'T work insomuch as it does not produce the hormones that I require. As to why this is, well that remains an enigma for now but it is currently supposed that I either have a tumour or am simply a freak of nature. Neither are particularly great outcomes. In terms of the hair, i have all over progressive thinning which include brows and lashes. My hairline is most significantly effected and recedes in a pattern identical to ffa. I have been diagnosed with androgenetic alopecia which I receive treatments for but my hairline continues to refer at an alarming rate. I sometimes lose chunks during hair washing. My confusion lies within the consistencies held in relation to the dobro song pattern of hairless and yet, the presence still of vellus, fine and sparse hairs all over my face.
Do you have ffa? Or has your loss simply been hormonal shifts with reversible shedding? I am yet to start HRT's...

mike'sDeb I have the most beautiful wonderful boyfriend on the planet who supports me daily and swears that he will love me regardless of the hair and will go wig shopping with me if it comes to that. I don't think that he really understands the enormity of it all since I still hide things pretty well and look outwardly normal unless you pull my hair back. My family know of course but seem to give little concern to it as "it's just hair". My father is really the only family member who i can confide in.
I cannot crawl out of this despair.
I am going to see another derm for a second opinion and another biopsy becusse I don't think it would hurt. I need to know for sure what this is because my life literally depends upon it, as melodramatic as it sounds. I am 22. I will not live like this for the rest of my life. I don't know how.

Comment by Mike'sDeb on August 25, 2015 at 8:38am

Hi LSE - You are going through so much at a young age, and seeme to be doing this alone. Do you have any support - family, friends - that can accompany you to to doctor visits? You have mentioned your dad, how about mom or siblings, an aunt, or another older trusted family member or friend? Your biopsy results should definitely be back by now (mine took a week, tops). If your derm office won't communicate with you try calling your regular doctor to intercede for you to get those results. Does your regular doctor know of all your different symptoms? You should make an appt at that office so they can send you to apprpriate specialists. You seem very knowledgeable in your medical terminology and various disease progressions - curious if this is by reading up on various diseases because reading this stuff can both scare the wits out of you and convince you that you have symptoms and that you're suffering from said condition(s). The mind body connection is a very powerful thing! I urge you to see your personal physician for a complete work up to see what is going on - once you do this you can be referred to appropriate specialists. Once you know what is going on, you can put your energy into treating what you do have instead of worrying about about what you might have. I say all this in a very caring way - anxiety can overtake your life and you can get it under control. I know this overwhelming but you can get through this - it is hard to see the light at the end of the tunnel when you are stuck in the middle of the tunnel - but have faith the light is there!

Comment by MJ on August 25, 2015 at 6:05am

Little,
Are you seeing a reproductive endocrinologist? Or any type of endocrinologist to determine the underlying cause of premature menapuse?n I think your hairloss is related to your hormone problems. FFA is not a shedding problem but rather a growth problem. As the hair follicle gets weak, the hair growth slows and eventually doesn't regrow when the follicle dies. When I had a major hormone swing due to rapid menopause related to a estrogen suppressing drug for breast cancer treatment, I shed a lot of hair. Please see a specialist regarding your hormones. Major

Comment by Jen on August 24, 2015 at 11:30pm

My niece showed me a picture of a young girl like yourself who lost all her hair suddenly. She was wearing the most beautiful wig that looked very natural. Amongst her friends, who had real hair, one could not see a difference. I know that is not what you want to think about but it is there if you need it. I am very concerned with what is happening inside your body and how to slow down this premature menopause.

Comment by LittleSadEyes on August 24, 2015 at 11:21pm

Could it be that I'm some sort of hybrid freak case... Losing my hairline with baby hair intact? Because I'm younger perhaps... Like androgenetic/estrogenic alopecia that looks like ffa?! Oh man am I confused. Still have good arm hair. In fact it seems to have gotten longer with the minoxidil (oral).

Comment by Jen on August 24, 2015 at 11:08pm

LSE,

I have FFA. I have lost hair on my legs and arms. I have lost a shiny strip around my hairline. Smooth like a baby's bottom and very shine. I have a few eyebrows. It did not affect eyelashes. The rest of my hair is definitely thinner than before but that is probably due to aging.  I have no peach fuzz.

Comment by LittleSadEyes on August 24, 2015 at 10:53pm

I also have been thinking something lately guys:

I am a perpetual hair checker. Always looking for "the white strip", "the shiny skin" where all hair has been lost. I don't have this. In fact, my entire face has a very fine covering of peach fuzz. My eyelashes, brows and hairline are becoming more and more sparse, my hairline recession mimicks ffa EXACTLY, and I am basically menopausal in my early 20's. However I don't understand why my recession has been so quick (in the space of almost 2 years), and while there is no actual regrowth, I do have fuzzy hairs and some little sparse terminal black hairs. I'm still baffled as to whether I have that "moth eaten" thing going on or if this is really ffa. My derm has not gotten back to me and no other doc knows a thing about this. So my questions are:
Is there a difference between "senile alopecia" (loss of hairline due to hormonal drop off) and ffa? And could it be that my zero esteogen is causing a reversible but severe hairline recession say with the introduction of HRT and the continuation of the rogaine? Has anyone heard of this? I have also wondered... Although it seems my hairline is the only thing that is going really really quickly (like chunks in the shower... I look like a freak without my fringe), there are those little vellus and black hairs... Would hair transplant be an option for me? Issue there is I don't know how I can stabilise the loss or if I can. I don't even know if I have ffa!! Just seems
The hairline, brows and lashes fit with it all. I have normal peach fuzz everywhere else. I am
Sooooo distraught and confused!!!!

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