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Comment by LittleSadEyes on July 5, 2015 at 6:57pm

After hours and hours of research and agony, wondering why my AGA doesn't look like AGA, i came across FFA. It all fits, and i cannot breathe. It explains the very gradual hairline recession, the eyebrows and eyelash loss, why there is literally no regrowth on the recession where the hair has been lost. I believe that i have both AGA and FFA. This is common apparently in women who have FFA. I told my dad who is a doctor and he said with much concern "certainly, this is something we must at least rule out". I can tell me seemed convinced too. I now have an appointment to see another derm in 2 weeks, and in the meantime i am slowly dying inside. I am young, and i may just... lose all the hair on my head. It's bad enough that i have been told that i may never have children. I do not notice and white shiny where the recession is but apparently this isn't always noticable. I mostly notice itching especially at my nape and tender eyelids. There appear to be no pimply/lesion things. I really would like opinons. I am almost totally certain that this is what i have as it fits too well. However any input would be appreciated. I shall attach some photos. Please not that i am wearing makeuop so you can't tell what my lashes and brows look like. I shall also include some "before" photos as a comparison

Thank you

Comment by LittleSadEyes on July 5, 2015 at 6:51pm

Hi Ladies

So I first noticed my hair loss last June and since then i has lost 80% if my hair, lashes and eyebrows also badly effected. I searched for so long to find answers - not my thyroid, not anaemia, not coeliac...I had a derm tell me twice that it was telogen effluvium. She did a scalp biospy and said "9% of your hair is in telogen, no scarring, no miniaturisation". I later found out that she took these biopsies from the frontal and occipital areas. Not ideal. I went to a trichologist who looked at my hair and scalp microscopically and said "80% of you hair is either miniturized or not growing properly". I was put into spironolactone. I have also recently found out that my DHEAS is elevated, whilst my estrogen is at a menopausal level. Makes sense since i had amenorrhea for years and only this Jan started getting regular periods again (lord knows why). However my estrodiol is still terribly low. My gyno says i may have tube issues or going into premature ovarian failure. We are in the midst of doing further tests to find out.

Getting to the point, all of this confusion has been surrounding the pattern of my hairloss. For the longest time no doctor has been able to tell me why my temples, sides, hairline and nape have been so badly effected. No one could tell me why my lashes and brows are thinning terribly. Everyone says "your hairline looks normal. Women usually have wispy vellus hairs around the hairline anyway". But looking at photos and seeing the change happen to quickly now i KNOW it's happening and i now have bald spots on my top hairline, the hair around my temples is so thin you can very very easily see my scalp and my nape is kreeping up so quickly that i feel like soon i will look like a bloody monk. My eyebrows seem to be thinning from either end also. My scalp itches and i notice it gets red too. At times my eyelids become tender and i have noticed my bottom eyelids becoming kind of droopy. I look awful.

I am 22 years old.

Comment by Classical Anne in NC mountains on June 22, 2015 at 5:16pm

Yes, but my derm has been happy to supply me with samples that have lasted 18 months now, though I only use it on my eyebrows.  Ask your MD for samples, it's an outrageously expensive Rx

Comment by MJ on June 22, 2015 at 4:56pm

Rachel,
Elidel is a prescription.

Comment by sadandunsure on June 22, 2015 at 12:23pm

Anyone feel the injections made hair loss worse? I only had one round, but in the past 1.5months, my temple is a lot thinner. Could be this action was already set in course or the injections accelerated it, my hairloss had not been rapid before.

Comment by Rachel218 on June 22, 2015 at 6:34am

Thanks for the responses. MJ, is Elidel a prescription ?

Comment by MJ on June 21, 2015 at 9:49pm

Rachel,
I did notice some baby hair shedding when I first started rogaine. I cannot say I that I have had new growth from the rogaine, but the thought is that it feeds the follicle to help combat the attack on the follicle. So I use it in the frontal area religiously. I think it has helped sustains my eyebrows for sure. Elidel has also helped with my eyebrows.

Comment by Classical Anne in NC mountains on June 21, 2015 at 11:06am

Rachel, I do not use Rogaine on my scalp -- only on my brows, where it definitely has helped some.  But I understand from several sources that the scalp hair shedding with Rogaine is a natural part of the progress.  Others have said that they then saw much improvement.  You might want to start a new question thread about it.

Best wishes,

Anne

Comment by Rachel218 on June 21, 2015 at 10:50am

MJ, did you have the same thing happen to you with Rogaine ?

Comment by MJ on June 21, 2015 at 9:17am

Rachel,
I think there must be a hormonal component especially since one treatment plan includes finastride. I would like to mention however that the shedding may be related to something else going on as well. My doctor explained to me that this is not a shedding disorder but rather a growth disorder.

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