25

Cheryl, Co-founder

Female

Detroit, MI

United States

Profile Information:

Relationship Status:: Married
About Me:: I have been living with alopecia since 1991. Throughout the years, I have had alopecia areata and alopecia totalis. My life is not over, so there is still time for alopecia universalis. ;-) I have had many ups and down and find that I always come out on the other side standing tall.

It has always been a given for me to reach out to others with alopecia. I just did it naturally. I became involved in our local support group in Montreal, participated in the annual conferences of the National Alopecia Areata Foundation (NAAF), and also served as president of the Quebec Alopecia Areata Foundation (QAAF).

Someone once asked me what I planned to do after I moved to the USA. My initial thought was to attend or start a support group in Michigan, but I eventually settled on the wonderful idea of creating Alopecia World with my husband, rj jones, who was my fiancé at the time (2008).

On a personal note, I like to blend femininity and strength. A woman can be strong and physically capable as well as soft and feminine. For a long time, I thought I "had" to be one or the other, and I had a hard time finding my place. Blending both is very gratifying, indeed.

I also like to keep active. It does not have to be extreme. It can be a bike ride, walking, painting a room in the house, or cleaning the garage.

In April 2008, I married rj, a very special man that supports me in my alopecia and is the catalyst and the great mind behind the research and design of this site.

Please feel free to "friend" rj and me: We would love to make your acquaintance.

Welcome to our world… AlopeciaWorld.com!

PS: Don't forget to check out our book:

Whole in the Mirror: From Fractured Identity to Fierce Self-Acceptance:

Available on Amazon:
https://a.co/d/6emBEMY

Cheryl Carvery-Jones
co-founder
AlopeciaWorld.com
cheryl@alopeciaworld.com

"It's Hair Loss Support At Its Best"

----------
Do you have alopecia?: Alopecia areata
Are you age 18 or older?: Yes - I am 18 or older
Your Website (Leave blank if you don't have one):: http://www.alopeciaworld.com

Comment Wall:

Load Previous Comments

Karen Trappett

Hi Cheryl,

Thank you for welcoming me. You can't know how wonderful it is to know you are not alone. I look forward to belonging to a community who understand what it's like to live with Alopecia. Elizabeth has basically no hair anywhere and its great to know she sees more positive outcomes than negative ones. Her school and friends have embraced her new hair with no problems at all. If only it was a more understood disease I might understand why it has happened. Hopefully further research will solve its mysteries.

Cheers
Karen

Apr 2, 2008
Antoinette Fernandez

Thanks for the welcome!, I really apreciate it!

Apr 2, 2008
Ashley Dumouchel

Hi Cheryl.
that's so crazy about your brother-in-law. I moved from montreal in 1995. Now I live in the U.S. I bet he's related to my dad. I'll have to find out.
I don't want to wear wigs anymore, but it's so cold outside still that I wear them, or hats to keep warm.

Apr 2, 2008
Katherine Green

Hey,hey cheryl,

Thanks for the welcome, so nice of you.

I now have some photos up, so you can see who your typing at !

Cheers.

Apr 4, 2008
Michaela

Hi Cheryl.Thank you for your nice willkome.This world is full of power

Apr 4, 2008
Michaela

you have got nice photos too

Apr 4, 2008
sgomez

Thanks so much for the warm welcome!

Apr 4, 2008
Tammy Carlin (Mom of Leah)

This is a great site for everyone to talk. Thanks for it!

Apr 4, 2008
mandy

thank you ever so much

Apr 5, 2008
Shannon

thanks, Cheryl! I am glad to be here! Thank you for all that you do to raise awareness and build self-esteem. ~ Shannon

Apr 6, 2008
Siphnaki

Hi Cheryl,
Thanks for the warm welcome. Awesome job you guys are doing here!
Siph

Apr 6, 2008
Debbi Fuller

Thanks Cheryl!! I think it's great that it exists!!
Debbi

Apr 6, 2008
KimB

Hi Cheryl,

I am so happy to have found this site this morning!

Kim

Apr 6, 2008
Sarah McDermott

Thanks for the welcome!

Apr 6, 2008
angela

thank u for welcome me ,,,its nice 2 no theres people out there like me and im not alone .

Apr 6, 2008
Sally

thank you so much! I am overwhelmed by this site, and the very idea of it! It is excellent! Thank you :) xxx

Apr 6, 2008
spaganya

Thank you so much :) im blown away that there are so many people out there that are just like me that we can have our own site!

Apr 6, 2008
mary

Thank you for the welcome. Gotta tell you, seeing photos of people who look so much like me helps. I think I've felt alone for the past 43yrs!! Stupid huh? So, just thank you...

Apr 6, 2008
Danilo

Hello! Thank you for creating all this!

Apr 7, 2008
J

Thank You

Apr 7, 2008
Roger

Hi Cheryl.

Do you have your plan for Louisville ready?

Roger.

Apr 7, 2008
Roger

Yes =) I will be there from the 18th =) Im excited!

Apr 7, 2008
Donna Evans

Thanks for welcoming me. I have updated my page throughout the day so I hope you’ll look at it again.

Apr 7, 2008
Steven LeBlanc

Thanks Cheryl and Rodger. Although I live in Texas with my honey I'm actually a fellow Canadian. I grew up in Edmonton.

Apr 7, 2008
Roger

Its going to be fun to meet you and RJ too!

Take care!

Roger.

Apr 8, 2008
Chelsea

Hi Cheryl-
Thanks for creating this site. What a great idea! I've never used a picture of me in a scarf for a social networking site, I'm getting a kick out of that. So nice just to be me, thanks for creating a place to do that.

Apr 8, 2008
Steven LeBlanc

Unfortunatly I do not speek French. Growing up in Edmonton did not really present many options to learn howver my daughter is in French Emersion (sp) in St. Albert, AB.

Apr 8, 2008
WL Hess

Hi Cheryl...I just got off the phone with Ms. Torner...she told me to tell you she referred me here...lmao...she 's still computer challenged so I'm trying to help her load up a picture...difficult over the phone though...I can't work the mouse for her...lol...thanks for the support built into this site...nice knowing I'm not alone in this...ttyl

Apr 8, 2008
Tray (Jazz's Mom)

thanks for the welcome and im doing good im just trying to hang in there

Apr 8, 2008
Katherine Green

Hey,hey Cheryl,

Thanks for the warm welcome to your site, & thanks for the comment about my wigs too.

Cheers

Katherine. x

Apr 9, 2008
Nic

Thank you very much for the welcome!!

Apr 9, 2008
mary

Hi. Thank you for the welcome note!

Apr 9, 2008
kat533

thank you hun, it's wonderful to be here. I look forward to getting to know everyone.

Apr 9, 2008
Belle

Thanks what a great site

Apr 10, 2008
Barbara Steinberg

Thank you Cheryl and RJ for the warm welcome. This is a beautiful site, filled with great contributions and fun photos. And from seeing how quickly the site is attracting thousands of users it is obvious that it is filling a real need. The Internet really is bringing us together as a community -- thanks to caring and talented people like you!

Apr 10, 2008
Manola

Manola hello I am pleased to meet you. I live in Italy, in Prato a small town near Florence. I hope that we will have an opportunity to speak again

Apr 10, 2008
Isabelle

Thank you, Cheryl, for your welcome note.
Big kisses of France
Isabelle

Apr 10, 2008
Joan Gundersen

Hi Cheryl..You look great not wearing any hair. This website is very original and creative. Kudos to you both for it's development. I think it touches alot of people, with hair or without! thanks, J

Apr 11, 2008
Nichole

Thank you for your kind welcome! I am happy and thankful there is a support team for Alopecia. My family is beyond supportive, but it's nice to know others who are actually going through the same thing.

Apr 11, 2008
Alberto

Thank you Cheryl for the warmest Welcome,people like you make this world a better place.

Apr 12, 2008
Andrew

Hi Cheryl, Thanks for the welcome! This site is awesome. I look forward to meeting everyone!

Apr 12, 2008
MONIQUE

thank you!! i am so excited about this website!! it could not have come at a better time!

Apr 14, 2008
Tray (Jazz's Mom)

April 14 is the official "Children with Alopecia Day" This is a day that all children should be proud of looking different on the outside even if they are the same on the inside. It is your day as a kid and as a family member or friend to be proud of who you are. Visit… Continue

Apr 14, 2008
Annina

You and lamrj look a really nice couple!:)
and you did a ditinguished work with this site!

Apr 14, 2008
Katiebug

Thank you!

Apr 14, 2008
Donna Evans

Thanks for reading my blog and responding. I will have to work on some self acceptance but in time it may come. Maybe that is the lesson I'm supposed to get out of this. That old "every thing happens for a reason" saying. I think that you look really pretty without hair. Maybe some time I will try shaving my head but I'm not to that point yet. Geez... could ya tell? :o)

Apr 15, 2008
Tamika

Thank you so much for the warm ..and sincere welcome!..I will come and visit often...because trust me ..I struggle with alopecia..but I also want to be a help to others.

Apr 16, 2008
rj, Co-founder

Hey, Babe. Just thinking about you, loving on you, longing for you, anticipating you, adoring you, and wondering what you might think of the new design of my Alopecia World profile. ;-)

Apr 16, 2008
bee.

Thankyou :)
How are you?

Apr 16, 2008
Audrey OHara

Hey Cherly,

Thanks for the welcome message ...

Apr 16, 2008

25 members like this