Carrie
  • Female
  • Conn.
  • United States
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  • Dotty
  • Janine-Connor's mom

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Relationship Status:
Single
About Me:
I had Alopecia Areata as a kid. I had very long, thick hair. I was on the swim team. Well my hair would get very knotted having it up in a cap and my mom or dad wold comb out the snarls every night. My mom found my fisrt patch. I started seeing a dermatolist who perscribed a gell that worked great. My hair grew back and no one really new except my family.

20 years later it came back. Over the past few years I got a few small random patches and steroid injections have been working. However recently things seem to have really progressed. My small patch has gotten bigger and bigger. I was scheduled to go in for the shots and decided I should check for any new patches. Well I found 6 small patches. I am terrified that they will progress like the other one and I will no longer be able to hide it.

In the same sense that I am afraid of loosing my hair, I also feel validated because for months I had been finding loose hairs everywhere. But whenever I would mention it to friends or family they would say "oh that's normal you should see how much hair I pull out of the drain" Deep down I knew that this was not normal for me. I am not just paranoid this is really happening.

Because I am still at a stage that people really would never know unless I tell them, I decided that now is the time to reach out to others who have experienced this and prepare myself for what may come.
Are you age 18 or older?
Yes

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Carrie's Blog

Need info on Central Certifugal scaring alopecia

Posted on September 17, 2008 at 10:24pm 1 Comment

Hi Everyone! I just discovered that a friend of mine was recently diagnosed with central certifugal (sp?) scaring alopecia. I recommended this site to her, but she is not ready to join. While I know about AA I don't really know much about this form of alopecia. I would really appreciate any info that I could relate back to her. Especially about treatment options. She is going to a Dr. that I thought didn't treat my AA very aggressively and quite going to. I would also appreciate any suggestions… Continue

Preparing myself

Posted on August 4, 2008 at 11:30am 3 Comments

My hair is falling out. I am trying to wrap my brain around that. I, who have always had thick beautiful hair, may actually go bald. It's terrifying. My hair is my best physical feature. I really don't know if my already low self esteem can handle this.



So next weekend I'm going hat shopping. I always hated myself in hats. I'm looking for a baseball cap. Wind is not my friend. I need a cap to wear on weekends, to picnics and anything outside. I'm also going to try on other kinds of… Continue

Comment Wall (8 comments)

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At 1:19pm on August 30, 2008, Rachel said…
Thank you so much for your encouragement. Your comments on my blog helped me to feel more confident leaving my house in this wig. Thank you so much!!!
At 8:51pm on August 27, 2008, Dotty said…
Hi Carrie,
Looks like September 13th it is. We are throwing out ideas on places. I have had suggestions of The Cheesecake factory, Vinny T's (Italian), and Firefly (BBQ). I was thinking around 11 - 12ish for brunch or lunch. Let me know your thoughts. You can google the places and get the reviews and info. I'm really getting very excited. I can't wait to meet everyone.
Love and Hugs,
Dotty
At 8:30pm on August 19, 2008, Dotty said…
Hi Carrie,
Nice to meet you. I am planning an informal get together in Boston on the weekend of September 13th. I think it will probably be brunch or something like that. There is a tattoo convention that weekend that my hubby and I would like to attend, so I thought we could work it all in together, considering I work every weekend and I am taking that one off. I hope you can come. Believe me when I tell you that once you meet others, it feels like we are all one big extended family. I have been AU for seven years so I have lots more "acceptance" time than you, I'm a big advocate for Alopecia awareness and I talk about it with everyone who will listen. I also read that you were looking for hats, etc. I have an ebay store that I sell hats, scarves, bandanas, doo rags, etc. I would be happy to send you some. Just let me know. I have many different baseball caps. That is usually all I wear unless I am dressing up, then it's a lovely scarf. If you would like to contact me, you can email me at hottie_dotty@hotmail.com. I look forward to meeting you.
Love and Hugs,
Dotty
At 8:20pm on August 15, 2008, Rachel said…
I can't say that I have experience. I've only been dealing with this for this past week. I am also trying to wrap my brain around the fact that i'm losing my hair. I have no idea how much hair I will lose, and that scares me. If you ever need to know you aren't alone with your feelings, I'm here. I won't have any great words of wisdom, but I can listen.
At 10:36pm on August 4, 2008, Cheryl, Co-founder said…
Hi Carrie, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us. Cheryl, co-founder
At 11:03am on August 4, 2008, rj, Co-founder said…
Hi, Carrie. Welcome to Alopecia World! This is a great place for great people, so be sure to make your positive presence known. :-) - rj, Co-founder
At 11:54pm on August 3, 2008, LeslieAnn Butler said…
Hi Carrie,
What is your alopecia story? I've had it for 30 years. Just wanted to stop by and say hello!
LeslieAnn
At 2:38pm on August 3, 2008, Roger said…
Welcome.

Roger.
 
 
 

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