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Jade's Discussions
CRISPR will cure many diseases including alopecia
Started this discussion. Last reply by JustAnotherBaldGuy May 5, 2021. 4 Replies 1 Like
Hi everyone,I wanted to share about the advancing biotechnology CRISPR, which is a gene editing tool that can precisely edit out the gene that causes diseases. It gets to the root of the problem…Continue
Topical calcipotriol (VitD3)
Started Nov 17, 2020 0 Replies 0 Likes
Has anyone used this and what were your results? I found these journal articles (below links) that showed a quicker response and slower relapse rate AND with much less adverse/side effects than the…Continue
My experience with Ruxolitinib
Started this discussion. Last reply by Nikita Rempel Dec 6, 2022. 6 Replies 0 Likes
I'm 39 and have had patches of AA since 12. I've been able to manage it pretty well with topical clobetasol throughout my life until recently 38 y/o I had a stressful event and it all fell out and…Continue
Tags: jak, inhibitor, universalis, totalis, alopecia
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Will Smith Slaps Chris Rock after he jokes about Jada's alopecia
"@cheryl i feel compassion for all involved esp those with Alopecia that was triggered by these events. I think to look at things from sides is unnecessary as everyone has a story. No one is perfect everyone is human. It would be an evolution of…"
Will Smith punches Chris Rock after he jokes about Jada's alopecia
"@Kathy, someone is labeled a bully when someone else felt bullied by something they said or did. Being a bully is a subjective label. I don’t see why it is wrong to label someone a bully when in fact so many people including the person who it…"
"Thanks Danielle. I also posted this in the thread about Will Smith. I’m hoping hollywood can contribute to the cause with all the media attention on AA….. a million dollars is a drop in the bucket for them."
Will Smith punches Chris Rock after he jokes about Jada's alopecia
"The stem cell treatment for the cancer patient is different from PRP. Stem cell treatment for the cancer patient is basically replacing the entire immune system thru bone marrow where the white blood cells are produced. PRP is injection of your own…"
Will Smith punches Chris Rock after he jokes about Jada's alopecia
"I hope these rich hollywood people will donate to a potential cure. This company has been trying to raise money to start Phase 2 clinical trails for an actual cure not bandaid solution like Jak inhibitor or other immune suppressants, instead…"
Will Smith punches Chris Rock after he jokes about Jada's alopecia
"Invisible violence were the words of Chris Rock that would’ve gone un-noticed by all those people (most people) appalled by Will Smith’s actions. Will Smith is human and saw how humiliated Jada was for something beyond her control…"
Will Smith punches Chris Rock after he jokes about Jada's alopecia
"Will Smith just stood up to every bully there was that picked on someone with alopecia. I hope this brings more attention/education to AA and the seriousness of the disease. Will Smith is my hero."
"Any updates about this? Anyone in participating in the study?"
"I've had patchy alopecia areata since 2015. Still have my eyebrows and body hair, but on my head there's a few large patches. For a while now I've been contemplating getting all the hair on my head removed by laser, for that clean,…"
"Technology is rapidly advancing, so it might not be as far as we think. But we have to do our part and keep this conversation going with doctors and the NAAF to keep this as a goal to find a cure instead of immune suppressing drugs that has…"
"when is this envisioned, it really wont help if its 20 years from now"
"And it's gonna cost more than a million dollars. Most of us won't be able to get it "
"I am just hopeful with new genome biotechnology like crispr, prime editing etc that they'll finally find a cure. Because alopecia is a genetic disease but the main difficulty is that it involves multiple genes, whereas technology as of right…"
"Hi, I just left the CTP-543 study which was the ruxolitinib jak inhibitor drug. I was in the study for 2 years. But i decided to stop because although my labs looked fine except for increasing my cholesterol and platelets, i did have a few severe…"
Profile Information
- Do you have alopecia?
- Alopecia universalis
- Are you age 18 or older?
- Yes - I am 18 or older
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