Ron's mom
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  • Kate
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  • Nor75
  • NicoleT
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  • Mashloum

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Latest Activity

Ron's mom and Kate are now friends
Oct 14, 2019
Ron's mom replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Of course! Please pm me and I will send you all contact info :)"
Oct 11, 2019
Ron's mom replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Kate If you are in Europe, why don't you go to Italy (Bologna) and see Dr. Tosti instead? She is great and has a lot of experience. She's also involved in the clinical trials of Baricitinib at Miami Univesity, so she knows how the Jak…"
Oct 9, 2019
Ron's mom replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Good news for everyone living in Europe! Pfizer is about to start recruiting for their phase 3 clinical trial in 3 different locations. This is the PF-06651600…"
Aug 31, 2019
Frida Rupert and Ron's mom are now friends
Aug 28, 2019
Ron's mom liked Livia18's photo
May 13, 2019
Ron's mom and Markus Dad are now friends
Apr 22, 2019
Ron's mom replied to NicoleT's discussion Xeljanz from India
"Hi SI! Really great to hear about your daughters regrowth, it gives me hope for my son! We have just started him on the same dose as your daughter, 5mg a day. My sons weight is also around 100 pund so I hope he won't need more. Can I ask you…"
Apr 15, 2019
Ron's mom replied to NicoleT's discussion Xeljanz from India
"Hi SI! Really great to hear about your daughters regrowth, it gives me hope for my son! We have just started him on the same dose as your daughter, 5mg a day. My sons weight is also around 100 pund so I hope he won't need more. Can I ask you…"
Apr 15, 2019
Ron's mom replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I believe that's a normal side effect and some people do experience that when they first start the medication. For some it will get better after some weeks as the body adjusts with the medication but I also know that some people are needed to…"
Apr 14, 2019
Ron's mom replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thank you for your reply, Mashloum! My son was diagnosed in august last year. He first got one little patch that stayed unchanged for a couple of months and then he started to loose hair all over the head. In just about 5-6 weeks he had lost almost…"
Apr 14, 2019
Ron's mom updated their profile
Apr 14, 2019
Ron's mom replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"So great Mashloum, he must be so happy! Can I ask you how much your sons weight is? My son is 12 years and his weight is 45kg so his derm has started him on 5mg ( on half tablet in the morning and one half in the evening). I am just wondering if…"
Apr 14, 2019

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