• 40, Female
  • Portugal
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Rose's Discussions

Treatments of Topical Immunotherapy, PUVA or UVB

Started this discussion. Last reply by Cindy Dec 31, 2008. 4 Replies

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About Me:
Hi. I live with alopecia universalis since I was 11. Everything started very fast and when I realized had no hair. I think that was the worst time to happen because I was starting to be a teenager! Here in Portugal there is not much support and nobody knows this problem! There is much bias! For three years I refused to wear a wig because I always thought that would be ridiculous. But inevitably began to use, coinciding with the change to another school and from there almost only kept this secret with me. It may have been a mistake but when you are 15 years old is a very difficult time to deal with all this. I lived my life as someone else but now, when I'm 25, I understand have to start to change and begin to share this with others, even while continuing to wear a wig. People who will reject me is because will not lack in my life! I wish find here, in this great community, support for a new life!

I visited the website to share information and experiences!
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?

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Comment Wall (29 comments)

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At 5:58pm on July 15, 2013, Catia said…

AMIGOS! e eis que já esta criado um grupo no facebook - ALOPECIA PORTUGAL! adere e divulga por favor! a ideia é " juntar" o maior numero de alopecianos possivel!!!!!!! a partilha, o dialogo irão certamente marcar a diferença, somos o único país sem uma associação , vamos lá começar com um grupinho por agora?????????
OBRIGADA! Catia Ferreira

At 2:41pm on July 13, 2013, Catia said…

Olá Rose! o meu nome é Cátia Ferreira, estou a contactar-te uma vez que estou a criar uma página//grupo no Facebook visando juntar pessoas afectadas com AA, AT e AU em Portugal, esta ideia surge apos me aperceber da falta que faz uma associação, ou para já, pelo menos um grupo para partilha de experiências, dúvidas e vitorias ( em português, por isso acessivel a todos)neste estranho mundo da Alopécia ;), deixo-te o meu email: e pedia-te então os teus dados para te convidar para membro.
Obrigada! Cátia Ferreira

At 8:34pm on March 27, 2012, Tony said…

hi rose, tree years later, i read back what you wrote me , i understand now what you were telling me , thank you soooo much rose for being a friend to me , hope we can chat

At 11:00pm on September 13, 2010, Bruno Manuel Rocha said…
Olá ! Sou do mesmo cantinho á beira-mar plantado e a minha carissima alopecia acompanha-me pra onde vou! Deixo o meu mail Abraço
At 12:31pm on November 8, 2009, Tony said…
Hi Rose , how are you doing? just wanted to stop by and say hello :) Tony
At 5:20pm on October 26, 2009, Karina said…
Hi Rose..I´m Karina from Argentina..I´m very depressed cause I don´t want to lose my hair..You are very pretty!! Can you tell me your experiences with many hours do you wear...Is it comfortable..etc
At 12:35am on October 13, 2009, Pedro Costa said…
oi, Rose...tudo bem? sou brasileiro e acabo de conhecer o grupo...será um prazer conhecer vc...beijo
At 3:45pm on October 12, 2009, JeffreySF said…
Happy Birthday Rose..

At 12:17pm on February 9, 2009, Henrik said…
Hello. I didnt see your answer until just now.. although thats probably partly due to me being rather inactive though :P

I have never been in Lissbon, but If I ever go there Ill be sure to visit that place =D

Hugs / Henrik
At 6:25am on January 29, 2009, Ele said…
Ros Hello!

Siii! Estube in Lisbon but was too peqeña and not the truth and I agree! Jaja

We are very near!

Kisses and happy to meet you!


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