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Treatments of Topical Immunotherapy, PUVA or UVB
Started this discussion. Last reply by Cindy Dec 31, 2008. 4 Replies 0 Likes
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- Relationship Status:
- Single
- About Me:
- Hi. I live with alopecia universalis since I was 11. Everything started very fast and when I realized had no hair. I think that was the worst time to happen because I was starting to be a teenager! Here in Portugal there is not much support and nobody knows this problem! There is much bias! For three years I refused to wear a wig because I always thought that would be ridiculous. But inevitably began to use, coinciding with the change to another school and from there almost only kept this secret with me. It may have been a mistake but when you are 15 years old is a very difficult time to deal with all this. I lived my life as someone else but now, when I'm 25, I understand have to start to change and begin to share this with others, even while continuing to wear a wig. People who will reject me is because will not lack in my life! I wish find here, in this great community, support for a new life!
I visited the website to share information and experiences!
- Do you have alopecia?
- Alopecia universalis
- Are you age 18 or older?
- Yes
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AMIGOS! e eis que já esta criado um grupo no facebook - ALOPECIA PORTUGAL! adere e divulga por favor! a ideia é " juntar" o maior numero de alopecianos possivel!!!!!!! a partilha, o dialogo irão certamente marcar a diferença, somos o único país sem uma associação , vamos lá começar com um grupinho por agora?????????
OBRIGADA! Catia Ferreira
Olá Rose! o meu nome é Cátia Ferreira, estou a contactar-te uma vez que estou a criar uma página//grupo no Facebook visando juntar pessoas afectadas com AA, AT e AU em Portugal, esta ideia surge apos me aperceber da falta que faz uma associação, ou para já, pelo menos um grupo para partilha de experiências, dúvidas e vitorias ( em português, por isso acessivel a todos)neste estranho mundo da Alopécia ;), deixo-te o meu email:
aitak_40@hotmail.com e pedia-te então os teus dados para te convidar para membro.
Obrigada! Cátia Ferreira
hi rose, tree years later, i read back what you wrote me , i understand now what you were telling me , thank you soooo much rose for being a friend to me , hope we can chat
Jeffrey
I have never been in Lissbon, but If I ever go there Ill be sure to visit that place =D
Hugs / Henrik
Siii! Estube in Lisbon but was too peqeña and not the truth and I agree! Jaja
We are very near!
Kisses and happy to meet you!
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