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Started this discussion. Last reply by Mary Sep 22, 2013. 68 Replies 1 Like
At least that is what my family told the child abuse hotline. Two years ago my daughter was diagnosed with AA. Since that time at its worst she has experienced 80% hair loss and at its best a few…Continue
Started this discussion. Last reply by Marte Carlson May 7, 2010. 13 Replies 0 Likes
My daughter is two and half and has several large spots on the top of her head and on the left side of her head. I make her wear hats when we are outside to protect her head, but I feel like I am…Continue
Started this discussion. Last reply by Joy Apr 13, 2010. 7 Replies 0 Likes
My two and half year old keeps telling me that her hair hurts. I know that it is not uncommon for the scalp to hurt or tingle before the hair falls out. I also have heard that headaches are not…Continue
Started Feb 21, 2010 0 Replies 0 Likes
What does the hair that falls out look like? Everytime I brush my two-year old's hair, the hair I find has no root. Is this normal for Alopecia? In fact every hair I find has no root.Continue
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LOVE the new profile photo!! Your daughter is so adorable & and looks so happy!
Heather
Roger.
How are you and Sabree doing today?
LeslieAnn
www.childrensalopeciaproject.org and get on their email list. They are a wonderful resource and maybe able to hook you up with a family in your area or even help you meet another familiy with a child of a similar age. They do monthly online chats as well...Cindy
I can understand the shock you felt. I think we all go through that. And the 'Why did it have to happen to our child?' I found that other people had no idea how I felt or how my son Jon felt. It is good if you can move on and just deal with it though - if you can. I know it is hard. I think that the younger they are it is harder too cos they are so so cute. Their hair is still fine and soft at that age too. But you know what - she will always be beautiful - especially to you her mom. If you can make her see that, and that she is unique and special and gorgeous with or without hair and that she can still do things she wants to do, like play sport or dance or whatever. If you get what I mean.
Also I read your discussion. Jon's hair when it fell out was like that. The doctor who diagnosed him with AA said that it had the telltale 'question mark' appearance. Just as if it was 'burnt off'.
Any thing I can help with pls let me know. Hope we can keep in touch.
Susan
Welcome to Alopecia World
Glad you have joined us here. I have a 13 year old son with Alopecia.
How are you coping?
Welcome to AW. I am also a mom to a daughter with Alopecia. How are you doing?
Cindy