Hair loss equals child abuse

At least that is what my family told the child abuse hotline.

Two years ago my daughter was diagnosed with AA. Since that time at its worst she has experienced 80% hair loss and at its best a few spots here and there.

Today I received notification that a child abuse claim had been made against me and that the state wants verification from my daughter's doctor that this is an actual disease and is not me or my child pulling out the hair along with proof that the desease is difficult if not impossible to treat.

I am angry beyond words... stressed and scared. Why would someone do this? We don't deserve this.

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Replies to This Discussion

Permalink Reply by Charlotte on July 27, 2012 at 3:47pm
I'm very sad you are having to experience this, the struggle with helping our children (and ourselves) is bad enough. A child abuse claim in unimaginable. Maybe you could request that whoever made the claim be educated? Youl'll get support from the doctors no need to be concerned about that just very sad you have to. Big hug coming your way.- Charlotte
Permalink Reply by LilyBell*Murphy'sLawLuvsMe on July 27, 2012 at 9:44pm

try to get ahold of NAAF and see if someone can help you - this is just sick on whoever filed this claim and ignorant on those at child protective services. Also a child pulling their own hair is also a disease sometimes a complusion on their part.

Permalink Reply by Mike Mahoney on July 28, 2012 at 12:51pm

This is almost beyond belief but unfortunately ignorance is just too prevalent today! I agree as to contacting NAAF I'm sure Vicki Kalabokes the Executive Director would WANT to assist you on this one.

Permalink Reply by LitchKing on July 28, 2012 at 5:19am

How sad it is to know about your situation. :(

Permalink Reply by Lori Colyer-Sorabji on July 28, 2012 at 12:42pm

It is so sad when people have no idea what alopecia is and what causes it so theu make up damaging stories. Please inform them that it is not caused by abuse, it is however an autoimmune disorder.
Stay strong & stand your ground, you are not to blame for this.

Permalink Reply by Molly on July 28, 2012 at 12:44pm

oh my, i am so sorry you have to deal with this! that is awful, but I'm sure you'll have the backup you need. best wishes!

Permalink Reply by Ms. E on July 28, 2012 at 12:45pm

The report was most likely filed based upon ignorance and fear.
As a child advocate I would rather for someone to err on the side of doing something, rather than not doing something in behalf of the children. (I've been on both sides)

Although I'm sure it is shockingly painful, I would say consider it as an opportunity to educate and encourage. You are probably not the only one this has happened to. Once you've recovered from the shock and gotten the medical documentation look at the many others you can be a light of support to.

Hearts & Blessings!

Permalink Reply by Uta on July 28, 2012 at 12:47pm

I feel for you. People are ignorant and do not understand what we have to go trough w/ this disease.I'm 43 and was diagnosed w/ it when I was 2.

Permalink Reply by Rici* on July 28, 2012 at 12:50pm

I'm so sorry to hear this.
I makes me angy, too.

This situation can cause more emotional stress than hailoss does!
Someone really didn't think it through. Otherwise they would not have called the child abuse hotline...

So superficial thinking!!! Please don't let your daughter get the impression that because of hairloss something is really wrong with her. It is not. Also you did nothing bad to her, please do'nt feel guilty for anything!!!
She is loosing hair. How can someone even dare to draw this comparison?

I hope you can stay strong and don't let them bring you down!!!!
Take care!!!
Rici

Permalink Reply by Donna on July 28, 2012 at 12:52pm

Ignorance can only be stopped with education. Try not to be mad at their ignorance they don't know any better. After you "educate" them they will grow and be better for this exchange. Sorry for the extra hurdles you have to climb along the way. I think we are handed alopecia because we can handle the challenges that come with it. Try to smile and rise above...Your daughter is beautiful inside and out. It takes a real maturity to embrace internal beauty when the rest of the world is fixated with the external. It is a blessing that she gets to learn that at a young age:)

Permalink Reply by Sunflower25 on July 28, 2012 at 12:59pm

wow... that's insane. *hugs* stay strong!

Permalink Reply by Dorothy on July 28, 2012 at 12:59pm

I am both saddened and furious at the same time, saddened that after all these years no progress has been made, since I have had this AU for nearly 40 yrs and furious that even tho the average person might not know about AU/AA, but that the authorities do not and that they would demand proof. How sad and awful. It is time they learned and I hope you can take this as a chance to educate them and move forward without bitterness in your heart.

Sending you huggs and prayers.

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