January 2018 Blog Posts (6)

Masquerade, costume party at office - ideas?

Hi, i'm usually going "topless", with no wigs or scarfs, for years. And for the first time I want to emphasize my head on our annual costume party. Do you, dear friends, have ideas for "bold" costume? The only one I found it is about dragonmoon superhero, and it won't be familiar to my colleagues :)  

Added by olkabul on January 25, 2018 at 7:39am — 2 Comments

Just diagnosed with frontal fibrosing alopecia

Hi, so glad to have found this forum, just before Christmas I went to have hair cut and my hairdresser was in shock at the loss of hair on my scalp since the last cut.  Needless to say he was pretty blunt and filled me in with horror stories.  I promptly went home and search Ed for a dermatologist in Melbourne who specialises in hair loss and managed to score an appointment on a cancellation.  Fast forward I had my appointment and apart from my diagnosis have been prescribed : aldactone,…


Added by Plf on January 25, 2018 at 12:48am — 2 Comments

Pregnant and stopped taking Xeljanz (for AU) - help!


I have Alopecia Universalis and had been taking Xeljanz consistently for about 3 years. Once totally bald, with Xeljanz, ALL of my hair returned. It was a miracle! 

4 months ago, I got pregnant, and stopped taking Xeljanz. About 3 months in, my hair started to fall out (seemingly overnight!). As someone who has been down this difficult road before, it is quite terrifying. :(

Post-pregnancy, once I return to Xeljanz, I am hoping and praying…


Added by LauraL on January 21, 2018 at 12:23pm — 3 Comments

Free Follea Giveaway!

Follea is giving away a free hairpiece!

(Click the link below for all the details and to sign up.)  You need to sign up by 2/1/18.

Follea Giveaway

Also - please follow the Follea Direct Sales Team on Facebook for styling tips, and other fun Follea fare!

The Follea Direct Sales Team on…


Added by Divoicer on January 20, 2018 at 12:29pm — No Comments


Hello everyone,

A friend gave me a bottle of shampoo called Lambdapil.  I looked it up and it is a whole line of products for hair loss.  Have anybody used Lambdapil?  Let me know... thanks! Mari

Added by Mari1116 on January 14, 2018 at 11:48pm — No Comments

There's more to life than hair

"You can't even see it", the line you get when you first tell people about your alopecia. My mum first noticed my bald spot on my head, she didn't want to tell me at first due to my hair being my favorite thing about me. She worked up the courage over a week to tell me, I remember exactly what had happened in the moments leading up to this. I'd just finished work, mum was cooking tea in the kitchen and I was brushing my hair getting ready for a shower. A few weeks before I had asked my mum…


Added by sunnysideupsoph on January 3, 2018 at 4:30pm — 3 Comments

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