Kami M.'s Blog (8)

My Alopecia Universalis Poem



I wake up in the morning and to my surprise

I run my fingers thru my hair, could this all be lies?

Was I some kind of experiment, is this some sick joke

I had hair before I went to bed, before I awoke.

Gone in a flash without no warning,

Is this a nightmare, surely it can't be morning!

I run to the mirror the sight is appalling,

My head in my hands I drop to my knees and start bawling.

How'd this happen? Why me? Can you please give it back?

In the blink… Continue

Added by Kami M. on November 9, 2011 at 6:00pm — 6 Comments

Adding graphics to your page.. anyone know the code or how?

Trying to figure out how to add images to my page/layout?

Added by Kami M. on May 28, 2009 at 8:00am — No Comments

My Story Part 4

I contemplated adding this 4 part to my story, but what the heck, I’m not usually one to hold back. I worked as a paraprofessional/secretary for 7 years for an Alternative Education, students 14-20 who had dropped out of school, and been kicked out of the traditional school. The school was like a close family, about 40 students and 4 co-workers. At the end of 2007, the director notified me my position was being eliminated. Having known a Secretary position was going to be put in place, I made… Continue

Added by Kami M. on May 26, 2009 at 8:51pm — 2 Comments

My Story Part 3

Three years later, I’ve accepted the fact I am a bald 39 year old woman and there’s not a damn thing I can do about it. No potion, no medication, and no magic wand is going to make my hair come back. I’m not quite ready to face the world without a hat just yet, I feel as if that day is coming thanks to finding this site. It encourages me and lets me know I’m not alone. Recently a friend of a friend heard about my AU, going through training for permanent make-up she offered to donate her talent… Continue

Added by Kami M. on May 24, 2009 at 9:39pm — 5 Comments

My AU Story Part 2

I cried everyday wondering why me? How come this happened? Does my husband still find me attractive, and are my children embarrassed of their mother. My Sister and mother insisted I needed a wig; they chipped in their money and bought me a wig. I went to the salon, had the wig styled and thought I might just like the wig. After a couple days of wearing my wig, I didn’t really like it, it was hot, itchy, and it made my scalp break out. While driving down the road, I had enough of the wig, ripped… Continue

Added by Kami M. on May 24, 2009 at 9:29pm — No Comments

My AU Story Part 1

In May of 2006 my husband was walking up the steps as I was sitting on the steps. He shockingly said "Um you have 2 bald patches on your head what the heck did you do?" not believing him, I went to look for myself. Sure enough, 2 quarter size bald spots, I immediately called the Doctor, not knowing why this would happen to me. My family Doctor sent me to the Dermatologists, who told me I had Alopecia Areata. The dermatologist put many steroid injections in my scalp, gave me topical solution and… Continue

Added by Kami M. on May 24, 2009 at 9:16pm — No Comments

AU and the Sun

Just wondering if anyone else with AU experiences being allergic to the sun? I never had any signs of Alopecia until I turned 37. I use to tan well when in the sun. Every since I was diagnosed as having AU, I can't go into the sun without turning into hives and itching everywhere. This even includes drving/riding in a car. The strangest thing to me, wherever the sun has made contact with my skin, face, hands, etc. later in the evening turns into hives and requires me to take benadryl to control… Continue

Added by Kami M. on May 23, 2009 at 6:45am — 4 Comments

A wonderful book!

I worked in my local school district for seven years. A 5th grade Teacher having read this book for many years along with her students, discovered I had Alopecia. She asked me if I would be interested in having a discussion with her class, and without hesitation I blurted out , "Yes, sure I will." This was my prior to Alopecia outgoing personality coming out. Later, I thought I can't even come to terms with having Alopecia myself, lil alone discussing… Continue

Added by Kami M. on May 23, 2009 at 6:35am — 1 Comment

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