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Xeljanz (Tofacitinib Citrate): My experience on the trial
I have received a lot of interest from others on here in my involvement with the Xeljanz trials at Yale.
I thought it would be nice for everyone if I documented my progress on here.
Xeljanz is a Jak3 inhibitor and is believed to work with alopecia by turning off the distress signal relayed by the hair follicle to the attacking immune system which is the cause of the hairs falling out. Xeljanz comes in a strength of 5mg per pill and a full box contains 60 tablets. The recommended dosage for arthritis is 1 tablet in the morning and another in the evening each day.
The trial is set in a series of stages and there are requirements before participating. These include monthly visits and blood tests every 2 weeks. Dr Brett King is absolutely fantastic and is an inspiration to me. His positivity and enthusiasm gives me the much needed hope I have craved for over a decade. I have been put on a low dose to start with which is 1 tablet every other day. My dosage has now been increased to 1 tablet every day and next month it could be increased to 2 tablets per day depending on the results.
I have completed my first month and have already noticed my alopecia has stabilised . I have not lost any existing hairs. In addition to this I have seen little hairs growing in my chest area as well as eyebrows. Fingers crossed! To date, I have experienced no side effects.
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AW: Other discussions on Xeljanz / Tofacitinib
https://alopeciaworld.com/main/search/search?q=Tofacitinib
Replies to This Discussion
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Permalink Reply by RahulAlopecia on
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This is very encouraging. I have been on the med for about three months now and have virtually seen no progress except for my hair fall has been stabilized. My doctor told me to give it a six month to see if I would respond before deciding to increase the dose.
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Permalink Reply by Jcortez05 on
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A few days shy of 7th month since I shaved it ( for 2nd time ) it starting to thin again and I knew it would bc I got really anxious and stressed 1 month ago ..
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Amazing jcortez! It just shows one of the underlying problems that can cause hair loss is stress and depression.
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Permalink Reply by dreamscometrue on
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Makes perfect sense
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Congratulations. I have been on the Med for three months my self but haven't seen any growth yet. Will continue to take the med for few months to see if my body would respond.
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2 tabs of 5mg a day. one in the morning and one in evening.
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Is anyone on this group from Chicago and getting their treatment from Northwestern dermatology?
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Permalink Reply by Lindzzej on
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I'm curious about that myself, if someone could link me to that that'd be awesome.
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hey Lindzzej.. Are you in Chicago? If so, I can refer you to my derm at North western hospital. The hospital is a big name but have very bad processes and it takes them forever to respond to your questions or concerns.
Doctors aren't that great either, but they are the best we have here in Chicago I guess. Let me know if you'd like to discuss.
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My son sees a dermatologist at Northwestern and communication is not bad at all. The doctor calls me personally to answer my questions.
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Hi Rahul! I remember you.mentioned you started xeljanz. How has it been for you?
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