Alopecia World
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Xeljanz (Tofacitinib Citrate): My experience on the trial
I have received a lot of interest from others on here in my involvement with the Xeljanz trials at Yale.
I thought it would be nice for everyone if I documented my progress on here.
Xeljanz is a Jak3 inhibitor and is believed to work with alopecia by turning off the distress signal relayed by the hair follicle to the attacking immune system which is the cause of the hairs falling out. Xeljanz comes in a strength of 5mg per pill and a full box contains 60 tablets. The recommended dosage for arthritis is 1 tablet in the morning and another in the evening each day.
The trial is set in a series of stages and there are requirements before participating. These include monthly visits and blood tests every 2 weeks. Dr Brett King is absolutely fantastic and is an inspiration to me. His positivity and enthusiasm gives me the much needed hope I have craved for over a decade. I have been put on a low dose to start with which is 1 tablet every other day. My dosage has now been increased to 1 tablet every day and next month it could be increased to 2 tablets per day depending on the results.
I have completed my first month and have already noticed my alopecia has stabilised . I have not lost any existing hairs. In addition to this I have seen little hairs growing in my chest area as well as eyebrows. Fingers crossed! To date, I have experienced no side effects.
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AW: Other discussions on Xeljanz / Tofacitinib
https://alopeciaworld.com/main/search/search?q=Tofacitinib
Replies to This Discussion
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Permalink Reply by LudmilaM on
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Hello, did some one try TOFACIB ointment(topical tofacitinib)?
I found a banner on another blog about that product. Price is more cheap than buy pills, but 375$ for 50g still a substantial amount for me, I want to be sure of my choice.
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i heard topical form is not as good as oral treatment, am i right?
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If you had to choose between Jakavi or Xeljanz which would you try first?
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new article
http://www.businesswire.com/news/home/20170304005003/en/
I feel there is an acceleration and an emulation about the discoveries on ruxotinilib and tofacitinib.
The world wakes up, it's good for us.
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True. Its real good! Gives us some hope
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Permalink Reply by Mashloum on
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My son is 7 years old with AU, I am reluctant to use Xeljanz due to lack of research for kids, most of the doctors I visited advised to keep it after 12 years old to ensure passing the growth age, this Sunday I will receive Shmuel-Gonen "Hairup" cream and I will start it to check if there is possibility of recovery by using such cream and shampoo
I wish it will work till we have something proven for AU kids !
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shmuel gonen the guy in Israel?
his stuff is expensive and a complete scam!!!
I agree that immunosuppresor for kids is delicate. do some research for kids having crohns disease for example. I remember there is a special treatment with biologics for pediatric crohns. most probably it's the same drug but lower dosage. careful with all the snake oil. shmuel gonon is a rip-off artist very well known and they know we are vulnerable when AU. stay strong!
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Permalink Reply by Talia on
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I started out with AA for 2 years and then AU for 5mis before starting Xeljanz. Just wanted to update everyone on my progress. I started Xeljanz last April at 5mgs 2x/day. Then I increased my dosage to four 5mgs per day. I have full regrowth of eyebrows and eyelashes. My head still only has peach fuzzies. Does anybody have any pointers on why my head isn't responding? I also use Rogaine for women.
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