Alopecia World
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Xeljanz (Tofacitinib Citrate): My experience on the trial
I have received a lot of interest from others on here in my involvement with the Xeljanz trials at Yale.
I thought it would be nice for everyone if I documented my progress on here.
Xeljanz is a Jak3 inhibitor and is believed to work with alopecia by turning off the distress signal relayed by the hair follicle to the attacking immune system which is the cause of the hairs falling out. Xeljanz comes in a strength of 5mg per pill and a full box contains 60 tablets. The recommended dosage for arthritis is 1 tablet in the morning and another in the evening each day.
The trial is set in a series of stages and there are requirements before participating. These include monthly visits and blood tests every 2 weeks. Dr Brett King is absolutely fantastic and is an inspiration to me. His positivity and enthusiasm gives me the much needed hope I have craved for over a decade. I have been put on a low dose to start with which is 1 tablet every other day. My dosage has now been increased to 1 tablet every day and next month it could be increased to 2 tablets per day depending on the results.
I have completed my first month and have already noticed my alopecia has stabilised . I have not lost any existing hairs. In addition to this I have seen little hairs growing in my chest area as well as eyebrows. Fingers crossed! To date, I have experienced no side effects.
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AW: Other discussions on Xeljanz / Tofacitinib
https://alopeciaworld.com/main/search/search?q=Tofacitinib
Replies to This Discussion
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Permalink Reply by Frrankie on
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It's great! thehairartist does free work! I almost thought this was predictor advertising.
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Has anyone had any successful diet shedding xeljanz weight gain? I've gained 10-15lbs and I'm struggling losing any weight. I've lost 110lbs doing keto and my body seems like it doesn't want to co-operate. I'm wondering if it's xeljanz or something I need to change.
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Hi Newjack , how long you are using xeljanz? For me it’s been 4 months and not really gained and I eat almost everything,
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U started 3 weeks before me then, Have you had any regrowing hair?
Mine is fine blonde hair and increased to 15 mg recently and coming some dark thin hair but I feel slow, maybe don’t have patient;)
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Permalink Reply by Suzie on
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Newjack, I first developed weight gain, but have since joined a gym and not I'm having the opposite problem with losing too much. I've also been diagnosed with Hashimotos since that time and going through Menopause, so I'm not sure what is causing what. Good luck!
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Has anyone heard of any new treatments for Alopecia. I read something about a jak inhibitor cream that helped a 17 year old girl regain growth. Dr King did the treatment! Anyone know of new products and when possible opportunity may be.
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Know the feeelibg! I’ve gained too! But I was too skinny before (hashimotos - hyper) but I’m noticing that like the acne the weight gain is going down with time. It’s almost like the body blows out at first, adjusts and then goes back to normal. My acne at first was bad - now, I’m a bit more diligent with face washing etc but it’s mosty just gotten better- a spot here or there. If it makes you feeel better you still look slim in your progress pics:). Also I had a friend on serious Keri (I did lazy girl keto but I like my fruit and veggies too much)- she lost heaps but then it stopped working and she gainned... she changed it up to a more moderate carb approach and lost again - body just needed a change I guess!
Ps check your thyroid too if you haven’t - a lot of us seem to have thyroid issues - hashimotos can make you gain or lose, and make it difficult to lose weight. Read somewhere keto can be a bit tough on the thyroid though other places say the opposite. Tough to know which way to go these days re diet!
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Frida, saw your post that you also suffer from Hashimotos. Are you taking any thyroid medication for that? Do you think your hair loss issues are from Hashimotos as well?
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Yeah I got hashimotos too, though I had a whole bunch of things happen leading up to Alopecia so I think I’m just an autoimmune mess to be honest. My hashimotos hasn’t hit me to bad except I can drop weight very fast when it gets triggered. I wasn’t diagnosed with hashis until I had tests run for the Alopecia so it’s a chicken egg scenario.
i grew up as an expat in a tropical area and got malaria multiple times s a kid- I think that set my body on a course which has led to propensity to autoimmune problems. For a time I went to a very small expat school- there were very few kids in my class and of the ones I am still in contact with 4 others have autoimmune issues- one is Au (from childhood), one has MS, one has lupus and then theirs me- I think there were only 4 other girls in the class and I’ve lost contact with them so don’t know if their health status... it could have been a virus we got or something.... or it could’ve been triggered by the birth of my son (now diagnosed autism), the birth was bad, complications, blood transfusions, eclampsia, and I never recovered my health- my son was a difficult baby- I was always sick with some virus and could never recover. In 2016 I got glandular fever and very serious ear infection, then my sons diagnosis and bam - the straw that broke the camels back... bye bye hair.
Interestingly enough, and I hate saying this cause I don’t want to jinx myself, but I have felt soooooo. Much better on immunosuppressants then before. I rarely get sick and I used to always feel slightly nauseous but now I’m on immunosuppressants that’s gone. I kindof think my immune systemWas just eating me alive so to speak.
i do worry about my future with hashis, as I am 35 now and need to last a good while so I can see my kiddos grow up and maybe even meet my grandkids! How do you cope and how has it affected your life suzie?
ps excuse my bad grammar - auto correct and editting on my iphone on this site is a nightmare so I am just telling my grammar fairy to shush!
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