Alopecia World
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Xeljanz (Tofacitinib Citrate): My experience on the trial
I have received a lot of interest from others on here in my involvement with the Xeljanz trials at Yale.
I thought it would be nice for everyone if I documented my progress on here.
Xeljanz is a Jak3 inhibitor and is believed to work with alopecia by turning off the distress signal relayed by the hair follicle to the attacking immune system which is the cause of the hairs falling out. Xeljanz comes in a strength of 5mg per pill and a full box contains 60 tablets. The recommended dosage for arthritis is 1 tablet in the morning and another in the evening each day.
The trial is set in a series of stages and there are requirements before participating. These include monthly visits and blood tests every 2 weeks. Dr Brett King is absolutely fantastic and is an inspiration to me. His positivity and enthusiasm gives me the much needed hope I have craved for over a decade. I have been put on a low dose to start with which is 1 tablet every other day. My dosage has now been increased to 1 tablet every day and next month it could be increased to 2 tablets per day depending on the results.
I have completed my first month and have already noticed my alopecia has stabilised . I have not lost any existing hairs. In addition to this I have seen little hairs growing in my chest area as well as eyebrows. Fingers crossed! To date, I have experienced no side effects.
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AW: Other discussions on Xeljanz / Tofacitinib
https://alopeciaworld.com/main/search/search?q=Tofacitinib
Replies to This Discussion
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Permalink Reply by Football fan on
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Tried this way first and with acupuncture didn’t work for me.Too much preaching and selling going on now.This site was started to help people who were using xeljanz.
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Alopecia Angel- I saw your pictures - you were a very mild case of AA. It is widely known that most cases of AA fix themselves in 6 to 12 monthes - even without “holistic” approaches. Most of us on here are or were WAY past that.We are the bad cases- AT or AU. It is pretty ridiculous to say to us “be holistic” - most of us have put a substantial amount of time and thousands of dollars towards holistic treatments- which did not work. I’m glad you’re better- that’s great but there is a world of difference between mild AA and AT and AU - both in its impacts mentally and in its ability to go into remission.
there are heaps of other forums on this website which would embrace your message - this forum was set up by those of us who have made the decision (usually after doing holistic therapies- and thousands of dollars toward such therapies) to do this medication as a last resort. Suggesting we are being friviolous with our health is quite hurtful. Members on here are aware we can go and search other forums where your message is more appropriate. We are adults- we don’t need to be quoted to from scripture or spoken to as children.
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Thank you Juan!
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Permalink Reply by NicoleT on
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HI Juan,
Now I see you've just started.
Keep me posted!
I do smoke weed daily.
I drink just a bit socially. No cigarettes.
Im just making sure I wash my hands a lot and try to avoid germs from kids school etc :)
Try to eat organic, aviod pesticides eat healthy, exercise and do the best I can!
Keep me posted!
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Permalink Reply by Rascalx2 on
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If someone is in a clinical trial for a drug and they get a random sore throat, then the drug company needs to list a sore throat as a possible side effect. Every drug out there has lists if side effects. I have ulcerative colitis and the drugs i have taken have helped tremendously, that being said, my life would be herendous without drug treatment and i would probably require being hospitalized, and be in constant pain from an untreated disease in fetal npostion on the floor like i had been in thenpast, im willing to trial a drug and learn from experience the effectivness of it, if it causes side effcts then stop taking it!
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Thanks Nicole, Yes I'll keep you posted.
Have only been 3 days on it.Thanks for the tips
I'll try to eat better and stop with cigarrettes (Im not a hard smoker anyway).
Maybe will have a blunt now? :)
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:) :)
Nice regrowth nicole btw!
I can think must be 10x tougher for women to not have hair.
I have never have the chance to meet an AU like me anyway so I am not sure.
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Except it makes me see double sometimes....no wait you posted that twice.
Maybe it makes some people post 2 times too...either way no stress LOL
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