Comment

Comment by Kristen P on July 14, 2015 at 6:24pm

LittleSadEyes - that haircut is fierce as heck! You look amazing, like you're on the pages of a high-fashion magazine!

Have you received results from your biopsy?

Comment by LittleSadEyes on July 14, 2015 at 6:14pm

when frustration strikes and you don't care anymore 

Comment by leelee on July 14, 2015 at 12:29pm

i'm new to the group, so I just got an email about a message from Mildred about a Duke study.  That is within driving distance for me, soId like more info.  Anybody know about it?

Comment by LittleSadEyes on July 13, 2015 at 7:00pm

Sas Holland, Thank you for that information.
Unfortunately I do notice a lot of itching and flaking, redness... not so much tenderness. I do wonder whether or not the minoxidil exacerbates this. For now i'm just losing fast amounts of hair. I have one eyebrow that looks lower than the other because it's lost more hair. I washed my hair the other morning, got out of the shower and saw this huge chunk of my hairline missing with a few raggedy hairs around the edge... i looked like sh*t. So i went and shaved half my head and got a fringe
Looks less like I'm balding but doesn't fix this Issue sadly

Comment by Sas Holland on July 13, 2015 at 5:13pm

Hi Littlesadeyes, My heart goes out for you too, you are so young.

I hope my story helps you a little bit with hope;

my FFA looks like it has burned out ( for now or for ever, who knows?) because I don't see or feel anything happening. I am not using or have used any medication or medical treatment.  When I found out that I had FFA (last sept.) it already was very little active as my biopsy showed. I did try the AutoImmune Protocol  (A.I.P.) diet and after that the IgG blood testing diet, but I could not notice anything in my body and since I already had no symptoms like itching, redness, flaking, tenderness or visible hairloss I stopped those diets because I found them hard to follow..

So  FFA can stop or slow down just by itself I think.

The only thing I did  and still do and in which I really believe that it helps,

 I started Zen meditation twice a day 20 minutes to reduce the stress (for the first couple of months I could not think of anything else than my FFA and worry how far it would go) This has helped me very much, because now I don't think about my FFA much.

I strongly believe the  heavy stress I had about 10 years ago caused my FFA. And I really believe that trying to reduce stress and deal with things that happened in the passed that causes stress will help.

I also don't use shampoo and styling products  with sulphates, parabenes and  silicones any more (it is called the Curly Girl method), but I started that  already about a year ago before I found out I had FFA. My hair looks much more healthy.

I really hope yours will burn out too and I wish you al the best,

love

Sas

Comment by Sad in chicago on July 13, 2015 at 5:02pm

Interesting.  My thoughts were it might not work in the first place, but I didn't think it through to where it could happen AGAIN.  Makes sense, but so frustrating.  I have been dealing with this for three years now and I cannot get past my sadness, discomfort and anger.  I have good days where my hairpiece looks and feels OK so I do too, and then days where I cannot even look in the mirror.  

Thanks for passing along your research.

Comment by Nancy79 on July 13, 2015 at 4:44pm

I read a research article on Hair transplant and FFA. A major portion of the hair fell out within one year and all of the transplant was gone within three years. The same process that attacked the old follicles just start in on the transplanted ones. Even if it is dormant, I think it would go if there was a reoccurrence. Given this information I quickly decided hair transplant is not a viable option. I feel the major expense would be wasted. Sorry it was not better news.

Nancy

Comment by Sad in chicago on July 13, 2015 at 4:00pm

Does anyone know if hair restoration (transplant process) actually works for Alopecia or even more to the point, FFA?  The skin and scalp where my hair loss are is smooth as can be....no follicles left, no apparent scarring, etc.  I found someone who thinks it might work and can do a "test" run, but it seems to me there would be someone somewhere who already had a "test" and can offer support and be a resource.  thoughts?

Comment by Lo on July 13, 2015 at 3:18pm

Blondie - I was wondering if the hair loss is still stable.  I see your post from May of this year that said it had stopped... and was hoping that was still the case.  I'm also interested in your short pixie cut... and if that style still allows you to conceal the loss.  Many thanks... hope all is well.  If you can provide an update, I'd love to hear!

Comment by LittleSadEyes on July 10, 2015 at 7:05am

Not having a good day at all. I have so much shedding from the spironolactone and i have just recommenced treatment using minoxidil 5% and i know that a massive massive shed is imminent. I haven't got any hair to lose. I will literally go bald. I feel really really deflated and hopeless. I just want it to end.

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