November 2014 Blog Posts (14)

Kindergarteners and diversity

My youngest daughter recently turned 6, and I got to go to spend the afternoon with her in her class. I arrived to her room before the class got back from music and was preparing their strawberry shortcakes when the students began arriving.  Comments soon began to fly: "She looks like a boy."  "Your mommy is bald headed."  "Where did her hair go?"  I could tell my daughter was beginning to get defensive.  "My mommy's cute.  I think she's beautiful."

The teacher wasn't back, so I asked…


Added by Bonnie on November 30, 2014 at 7:00pm — 10 Comments

My autobiography of alopecia in YA novel form

Last year I participated in NaNoWriMo (National November Write Month) and wrote, 50,000 words of a novel in the month of November.  This year, I decided to join again, and finished.  This novel is about a 17 year old who finds out she has Alopecia. Writing 50,000 words in a month, while you are trying to live your normal life is pretty tough, but this month has been an emotional roller coaster for me as I have relived so much of my own personal experiences through this writing process.  I…


Added by Bonnie on November 29, 2014 at 8:51pm — 3 Comments

Tape question

Hi everyone!  I've been wearing human hair wigs for six years now, and I know a woman in town who sells me a type of thin, breathable fabric that I can cut and set into the wigs so I don't have to put the tape directly on the lace (she calls it "skin").  However, she can't get the skin anymore, and I'm not having much success finding "tape tabs" online for purchase.  Where do you guys get tape tabs?

Thank you, and happy holidays!

Added by Lauren W on November 29, 2014 at 3:00pm — 2 Comments

Vitamins essential for hair care

Hair loss has become a serious problem to many people: young and old, male and female, as hair is the best decoration of our appearance. Loss of hair can possibly be caused by various factors such: high mental pressure, poor environment and even poor hair care practice. It’s very important to have a solution if you are facing this issue. Researchers have studied a wide variety of ingredients that can be used to recover your hair. We will discuss some of the natural vitamins that can be…


Added by Daniel Peng on November 27, 2014 at 3:00am — 1 Comment

To light hair I go!

All these years, I have worn dark colors from reds mixed with dark brown to black. I have never worn something so light! Honestly, I really don't like it! It's a very pretty wig, but I just don't feel good about. I am now stuck wearing it till it either falls apart or turns turn frizz.

My husband says it looks great! I feel it was to make me feel better. It wasn't the oh WOW factor with him. I look at it and I'm like"hmmm" makes me look older. Lexi was mom it's looks good and I…


Added by Jody on November 26, 2014 at 11:00am — 2 Comments

School research project

Ok, so I am in an Honors English class this year. We are required to do thirty hours of research or writing over the next school year. I chose to do mine on Alopecia, I am here asking for you help, I need to get a couple of peoples stories and a few other things if you are willing to help please inbox me or comment on this post. Thank you in advance.

~Jessica Hoschouer

Added by Jessica Hoschouer on November 15, 2014 at 8:00pm — 3 Comments

Hair is growing

My Son Lost all his hair at 2 1/2 years old. Now he is 12.

Up until November 2013, he had little to no hair. That all changed a month later. In December 2013, His hair has started to grow back. He has regained about a 1/3rd of the hair back, with lots of new ones coming in.

Would anyone know what triggers a regrowth? I would like to help him grow even more hair back. Its a very confusing condition.

He is not taking any medication, so that is not a factor.

Added by Hauye on November 11, 2014 at 11:00pm — 4 Comments

Treatment of alopecia

Hi guys, wanted to know who here has done the treatment and had 100% of his hair of back?

Added by Tomy Pereira on November 11, 2014 at 9:00pm — 2 Comments

Need help with FDA for Patient Focused Drug Development Initiative - those with alopecia in the US

I am the legislative liaison for the National Alopecia Areata Foundation in Massachusetts.  We have an action alert out that we need as many people as possible to provide input on their condition as possible so that we can be involved in a program that the FDA has called Patient Focused Drug Development Initiative (PFDDI).  PFDDI is a program that the FDA has begun to get the patient perspective about what is like to live with a condition and how it affects their life in order to help with…


Added by Marianne Peterson on November 10, 2014 at 8:00pm — 2 Comments

10 things girls with alopecia will understand

Well, girls with alopecia who choose not to wear a wig! But you get the idea..

I wrote this Buzzfeed article that pretty much sum up life with alopecia.

Let me know what you think.


10 Things Girls With Alopecia Will Understand:

Added by Erika Vincent on November 8, 2014 at 6:00pm — 2 Comments


I have been on Xeljanz for 2 1/2 months 5 mg 2X daily and just last week I got about 7 white, baby fine "vellus" hairs right on top of my head and many, many of the same hairs on my face !! Like forehead, cheeks, etc. I never had hair on my face before just above my upper lip that I would pluck. Thankfully, it is light. There are no other hairs anywhere else right now but I am hoping for more. I just wonder if "vellus" hair always means you will get "terminal" hair with pigmentation? ..

Added by Rose on November 5, 2014 at 8:00pm — 7 Comments

I just was want to feel beautiful again

I've been living with this for over a year now and I'm dealing with it better than I used to..i still hate it when people stare at me and give me weird looks or they say ignorant things to me. I work in retail and it hurts when people go out of their way to avoid me..i still have not gotten married because of my baldness...I try so hard to be more confident but when I'm at home I just break down and cry because I don't feel beautiful or pretty...i have talked to counselors and friends and…


Added by Leah on November 2, 2014 at 9:00am — 4 Comments

Embracing alopecia

In the last few months I have gone from, barely any alopecia patches to barely any hair. Thru this time frame, I've experienced a mix of back & forth emotions between embracing it and hating it. But thru it all it has been so inspiring to see so many of you, confidently sharing your experiences. Thank you to all of you who have been brave enough to be open about your alopecia, you have all helped me to get to the point where I am now. Happy enough to love the situation I am in, hair or…


Added by Melissa on November 1, 2014 at 11:30am — 4 Comments

Share your Halloween photos and videos on

How did you celebrate Halloween this year?

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Added by Alopecia World on November 1, 2014 at 10:00am — No Comments

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