November 2017 Blog Posts (8)

Newly diagnosed with FFA

Have any of you with FFA done any kind of blood panels looking for potential sensitivity to chemicals, food additives, food, etc. it looks for antigens in your blood that react to any of the above mentioned allergens. It’s a pretty extensive array of tests and is expensive, not covered by insurance. But considering this is auto-immune disorder that attacks your hair follicles, something has to be triggering this. I’ve read studies that sunscreen, Botox are a couple suspects. If any of you have… Continue

Added by Pat D on November 22, 2017 at 10:12pm — 4 Comments


So I know I shouldn't be shock or numb but for the past 4 yrs I have been so blessed with a lil one who know no different when it come to someone with or without hair. he runs around like nothing is wrong and I'm so grateful for that. 

Added by stephinee L Dawson on November 21, 2017 at 12:26am — 1 Comment

Some research for an art project

Please send me a message or a reply if you would like to help me with an art project.  I only need your answers (no biographical information tied to you or your name).

1)  About how long ago were you diagnosed with Alopecia and about how long has your hair loss been noticeable?

2)  Have you ever been bald in public?  If so, what gave you the courage to leave your home bald?

3)  Have you ever been bald in public?  If not, what would give you the confidence to do so?…


Added by Lynn on November 13, 2017 at 12:30pm — No Comments

Hello everyone I am so honored to be a part of the group once again

I would love to meet other alopecia also the ones that's in the Detroit Michigan area but remember I love all alopecia so remember God loves you and so do I and I can't wait to meet you all stay blessed

Added by Angenetta Whites on November 11, 2017 at 11:31am — No Comments

New topical Tofacitinib treatment done in Thailand 2 months ago that showed great promise for male/female pattern baldness!

( Here is the link on the study that honestly lead me to this website. I am extremely pleased with the way the research was conducted and the detail to which it was conducted. It was published by an MD/PhD which if you dont know gives them even more credibility. Basically in America our brightest minds go into the medical field but in Asia their brightest minds go into biomedical research…


Added by yousey on November 7, 2017 at 4:39pm — 1 Comment

Cushings syndrome and Alopecia Areata changing to Universalis?

It will be a year now since i have shaved my head. Well the few patches of hair that still stood strong. And i can say this year has been a crazy train. I was getting steroid injections every 4 weeks last year up until the point i shaved my head. Soon after, i noticed a hump on my upper back. I also gained some weight. Came to find out i developed Cushings Syndrome from the steroids. Long story short i am still battling weight loss and still have the buffalo hump......

Other than that…


Added by Lauren on November 6, 2017 at 6:08pm — 1 Comment

An anecdote from when I was a kid...the time my hat fell off!!

I was 16 - I had a full head of hair for the first time since I was 3. I started taking birth control pills, which totally set my hair progress back to zero - if you're a girl in her teens with alopecia, just don't. I was completely bald again for the first time since I was a toddler. I decided to completely shave my head rather than look at the thinning gold curls that remained on my head every day.…


Added by LauraC.303 on November 4, 2017 at 5:50pm — No Comments

"Your haircut makes you look like a serial killer..."

Everyday, I seem to find some way to blame myself and my own body for giving me alopecia at such a crucial time of my life. I hold on to too many things in my life and my hair loss is one of them.

One of the more challenging ideas to have with this is condition is dating. While I've recently, in the past year, got out of a long term relationship on mutual terms, I still can't help but think about her daily, wondering if this condition pushed me to a point of depression that affected…


Added by ZakR07 on November 2, 2017 at 11:54pm — 2 Comments

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