Featured Blog Posts (3,061)

Friends and my hair

I just read the blog post from a sister asking how friends took the news about Alopecia. I've not told any friends which is why I thought I'd do my own blog about my experience with people finding out..

With having alopecia for what feels like all my life my mum, dad and brother obviously knew from start. I remember my mum having alsorts of ointments to try all which smelled horrid.

She also used to cut me and my brothers hair. I don't think this helped me in long run as she would use… Continue

Added by KFlame on June 5, 2013 at 1:00am — No Comments

Alopecia and GMOs

Just throwing this out there. I have watched countless videos on Youtube (as I'm sure many of u have as well) about Alopecia and how many people seem to have positive effects of regrowth from organic diets. I am weak in that regard and am currently working on gettimg better with my diet, but I wondered if even in some small way there might be some connection, and if the incidences of alopecia are higher here in America than in other countries? This is just a curiosity, but I know that none of… Continue

Added by Kat on June 4, 2013 at 10:24am — 2 Comments

Back to reality

Ok this is my first blog ever so here it goes. My name is Nicole and I'm 24. I have a beautiful 4 year old princess and an amazing fiancé. Back in November 2012 I noticed a small spot on the back of my head. I didn't think anything of it. Come January it grew bigger and I finally went to my doctor. I found out it was alopecia areata. I assumed it was from my birth control mirena. I got my bc removed in January and noticed growth. I came back to reality about a week ago when I found another spot… Continue

Added by Miss_nikki_b on June 4, 2013 at 9:56am — No Comments

Hello all. Just a bit of an update

I haven't been on the site for a while, but its good to see so much happening as far as help, support and advice.

I first started losing my hair back in Oct 2011. I was 41 then. I had just been through a marriage break up and having never had hair loss before I have staunchly put it all down to stress. I started with just a small bald patch on my chin. I didn't worry and thought it must be "one of those things" A week or two later my daughter was giving my hair a trim and told me I had…

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Added by Carl on June 3, 2013 at 8:30pm — 6 Comments

Strange

I must must must stop getting pleasure of out freaking ppl out, although my hair is now short I can still wear my long hair pieces, which I did to show a friend how natural they can look (ironically). Anyway a group of teenage girls, who had sow me the day before (with short hair) were asking if it was a wig/hair piece/extensions ect (genuinlely interested in extension), and a smart mouth teenage boy shouted 'What r u going bald or something??' I shouted back 'Yes, wanted to see' wiped off…

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Added by Jo-Anne on June 3, 2013 at 4:27pm — No Comments

T-shirts for seventh grade

Hey, its me again!!! Okay so first of all I am going to be going into seventh grade in August. Second I am seeking help on ideas or cute sayings about alopecia to put on some T-shirts me and my mom are making for school. We already have a few like " I'm to sexy for my hair that's why there is isn't any there" (Summer Hopper) and "God is good, God is fair to some he gave brains the rest he gave hair" (Erik Kern)or a totally random one "If you don't know what Alopecia is then you need to go…

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Added by Jessica Hoschouer on June 2, 2013 at 9:30pm — 2 Comments

Any recommendations for non-allergenic wigs?

I have had allopecia for 40 years now and have worn just about every type of wig there is. For a long time, I wore human hair wigs that were made for me, but then we moved to Hong Kong for a while and they would not withstand the humidity there- and I couldn't learn to do them myself. So I changed to wigs with mono-caps, but synthetic hair. I liked them a lot better because I could maintain them. But a couple of years ago, I found a wig that really gave me a nice new look and I get…

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Added by Sara on June 3, 2013 at 3:20pm — 3 Comments

Alopecia phase II-Scalp changes

Back in January I wrote about being diagnosed with shingles on my head. I had a burning red patch on my scalp. It began at night, on my way home from a gig. I didn't feel it at first, but my husband noticed it saying to me "Lili your head is bright red". It burned. That was a Saturday. I went to my primary care physician. He said I had shingles. Gave me an antibiotic and a cream. It did nothing to help. 3 weeks later I saw my dermatologist. Since the condition persisted he thought I had…

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Added by Lili Añel (aka Eulalia) on June 1, 2013 at 1:30pm — 15 Comments

I am new to Alopecia World, I am here hoping to cope

Too many typos: type on my smartphone...my fingers hurt :(



On May 29, 2013 my doctor confirmed alopecia areata... For the past 3months I began to realized an unusual amount of hair shedding wayyyy to much than your regular day by day hair falling. I will break down in tears while showering, thinking the worse was happening to me I imagine writing a will for my sons, planning my death, and wondering what type of cancer I had. Last month, I decided to take a deeper look at my scalp. I… Continue

Added by Astrids Extras on May 31, 2013 at 2:30am — 8 Comments

I just decided...

It's now... after another dermatologist opinion and tired of this stressing hair loss i decided... Tired of waking up everyday and saw them at my pillow, tired of being afraid of touching my hair, washing it and brushing it, tired of being sad about my bald spots i'll save it! In a few minutes i'll become bald! thanks everyone from all the support, best regards, Cátia

Added by Catia on May 30, 2013 at 10:30am — 22 Comments

Reactions to my alopecia

I'm feeling pretty frustrated right now, so sorry for ranting. I'm just really confused by all of the reactions to my hair loss. My mother is acting like it's the end of the world and keeps telling me how sorry she is, even my dad keeps muttering things like, "it's not fair," and then my friends (the few who know) are acting like I'm a huge, to quote them directly, "drama bomb." I excitedly told my friend that I got a hair piece, and she responded by saying, "Yeah, I know. What's the big…

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Added by Madeline on May 30, 2013 at 12:46am — 39 Comments

First step: getting a short haircut

So that's it: I'll be bald in the future.

I have androgenetic alopecia and after much searching, go to several doctors, do a lot of things to keep the hair on the head I realized that it is not worth having all this psychological (and financial!!) distress just to maintain aesthetics. It may work for others but not for me.

I'm 25, I've always had long hair, but after a time of confrontation with alopecia I decided that the best thing is to adapt to the inevitable! My alopecia is at…

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Added by Carol Martins on May 29, 2013 at 12:37pm — 6 Comments

Hair negotiations

Lately it seems the hardest part of the day is getting out of bed – not because I don’t want to get up, but because bed is safe. Getting out of bed means a couple of things – 1. It means that I will inevitably look at the pillow and space around my head to see if I have shed any hairs, and 2. It means I will need to get in the shower and go through the more-often-than-not painful process of seeing what falls out post-shower.



I used to be more concerned about the hairs in the bed…

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Added by Jennifer on May 28, 2013 at 6:10pm — 5 Comments

Acceptance and being HAPPY

Hello everyone I'm 19 and i got diagnosed with alopecia about 5 months ago. I've lost about 50% of my hair now.

As it was i was already uncomfortable around people with a full head of hair, i went to therapy for social anxiety about a year ago, the hair loss has not made that much easier.

But lately, I've decided i need to stop feeling sorry for myself. If tears could bring back my hair i would have had a full head of hair a long time ago and then enough to make a wig for everyone…

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Added by Vane on May 28, 2013 at 3:04pm — 2 Comments

Just diagnosed and worried

Hi everyone, i'm Catia, i'm 24 years old and i'm from Portugal... first of all it's really nice and confortable to realise that there are many people with this problem and it really help us to understand what we are felling about ourselfs... I'm still not completely acepting that i'm losing my hair and that i can be bald... 2 months ago i found one big spot without hair on my head, i was surprised but not very worried to be honest. I went to see my family doctor, she told me with was a…

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Added by Catia on May 27, 2013 at 3:00pm — 3 Comments

Does anyone have AA that seems to move around?

Does anyone have AA that seems to move around? I lost my hair in the back a year ago, that filled in (mostly), then I lost hair at my temples and behind my ears and on top of head, that is filling in but have lost hair all around it now. Just wondering if anyone else has this same pattern happen and their experiences.

Added by Kara on May 27, 2013 at 11:41am — 3 Comments

Melting eyebrows

I live in Arizona and pencil my eyebrows in. Has anyone found a product that actually lasts and does not melt off. I wear bangs so that I can hide my eyebrows as much as possible. I am noticing that it is making the front of my hair oily. Any suggestions on that also.

Added by sully on May 26, 2013 at 12:30am — 5 Comments

Eyelashes and eyebrows for men. Any reccomendations?

Hello everyone. I've been googling for fake eyelashes and eyebrows for men, but i can't find anything, almost everything is for women.
Please recommend and share your experiences with fake eyelashes and eyebrows.

I have AU and already had tried tattoo my eyebrows some years ago, hated it, they looked unnatural, so i'm thinking about a eyebrow wig. Any advice would be welcomed.

Added by Nik4 on May 22, 2013 at 8:36pm — 5 Comments

Help to raise awareness

Hi I'm Natalie

I am 25yo old and I have Alopecia Universalis for many years I've had to hide my alopecia, for the reason that not many people are aware of the condition, so I would like to raise awareness about the condition and raise some funds for the Australia Alopecia Areata Foundation AAAF.

I will be participating in the Stadium Stomp without my wig, which i wear every day.

I've registered to participate in Stadium Stomp, Australia's longest consecutive stair climb to…

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Added by Natalie Martin on May 22, 2013 at 4:00pm — 3 Comments

Now you see it, now you don't, now ... well sort of!!

Hi I am Judy

About four and a half years ago my hair suddenly went flat and started falling out, my long dark eyelashes dropped off, my eyebrows disappeared and after four months I was totally bald. Every bit of hair over my whole body disappeared. I had been to Doctors and a Specialist and they said this is Alopecia Universalis (total body hair loss).

The plus side of this is that it saved me a fortune in leg waxing and hairdressers.

And just for another kicker, I was…

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Added by Judy Woolley on May 22, 2013 at 3:16pm — 1 Comment

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