"Nope. As far as I'm concerned, drinking has nothing to do with alopecia. But, I know a friend of mine noticed that his hair started growing more quickly after quitting his drinking habits. So, maybe there actually is a connection between the…"
Alopecia World
www.alopeciaworld.com
-
Ithastogetbetter
- Female
- Karnataka
- India
- Blog Posts (3)
- Discussions (12)
- Events
- Groups
- Photos
- Photo Albums
- Videos
Ithastogetbetter's Discussions
JAK Inhibitors Xeljanz Tofacitinib - 3 year update
Started this discussion. Last reply by Ithastogetbetter Mar 1, 2021. 10 Replies 2 Likes
Hi Everyone!It has been a while since I have posted anything on this website and I am glad I can post with some positive news! I have had alopecia universalis since June 2014. I started taking the…Continue
Gifts Received
Ithastogetbetter has not received any gifts yet
Ithastogetbetter's Page
Latest Activity
"Thank you!! :) Your hair and you look great too! So happy to hear it is working for you as well.
Hopefully, once the medicine is approved and removed out of the trials, you can get it under insurance but at least you have an option for now."
"Hi! Thanks :)
I take vitamin D supplements but I am not sure if that helps with alopecia, although I do remember reading something about vitamin D when taking immunosuppressants. Maybe you could check your daughter's vitamin D levels?
Also, I…"
"Wow you look amazing!! Congrats! I started tofa exactly 3 years ago and I went from 100 bald and no eyebrows or eyelashes to full regrowth. My new profile pic is my hair now but I’ve had a lot of haircuts along the way. I was never…"
"Hi Ithastogerbetter, congrats on your hair growth. You look great. My 17 year old daughter has been on xeljanz since 2 years. She is on 15mg. Her growth is nowhere like yours. Even though she doesn't have bald patches, its very thin and…"
"I got covid in October'20. I have alopecia universalis but I am on the JAK inhibitor trial so my hair has grown back. Instead of the 7 days of quarantine after getting covid, I was advised to quarantine for 14 days since my immune system might…"
"Dr. Thio at Erasmus MC"
"Hi. So glad to hear ur succes story. Im also based in the netherlands. can I ask which doctor treated u? As i cant go anywhere else for treatment, it world be great if i could get treated here "
"Yep! Completely grown back. Each got a hair cut to shape it and it's grown since."
"Are you on 100 procent regrowth now? Amazing results!"
"Yes! No hair fall and hair is growing back. Blood results are also normal.
The question my doctor is asking me now is whether I would like to try reducing the dose and see if it works."
"Are you continuing to have success"
"Hey,
My dermatologist is at Erasmus MC. His name is Thio. I am under a trial with the hospital as far as i know.
Cheers,
Amal"
Profile Information
- Relationship Status:
- Single
- About Me:
- Outgoing, social and friendly.
Atleast, I was till alopecia came around. I still am an outgoing person, but always worried that someone will ask me if I'm wearing a wig.
- Do you have alopecia?
- Alopecia universalis
- Are you age 18 or older?
- Yes - I am 18 or older
Ithastogetbetter's Blog
JAK Inhibitors
Posted on March 10, 2018 at 2:30pm 1 Comment 0 Likes
Hey Everyone!
So just a brief history.
I've had AU since June 2014. It started of as AA to AT to AU. All my hair fell off, from everywhere, including eyelashes and eyebrows. I've tried all forms of treatment, be it steroid tablets, injections, mynoxidal solutions, UV therapy, you name it. None of them worked. My eyebrows and eyelashes did grow back. In 2016, my hair grew back for around a month and then it fell again.
After that, I sort of gave up and went off all…
ContinueKenacort injections
Posted on March 25, 2016 at 8:30am 0 Comments 0 Likes
I have had alopecia universalis for over a year now. My hair did grow back but it fell again.
My earlier medication consisted of betason ( steroid) tablets, tenovate cream and protopic ointment.I also do occlusive phototherapy.
As the improvement is very less, my doctor now suggested I try kenacort injections 40mg once for 3 months.
Thoughts on the injection?
Does alcohol affect alopecia?
Posted on March 25, 2016 at 8:30am 7 Comments 0 Likes
I have alopecia universalis.
I wanted to know if drinking (i.e., the consumption) of alcohol on a regular basis prevents recovery. I couldn't find any definite answers online as to whether it makes the hair fall out or not.
Please do reply.
Thanks!
How does it work?
Posted on March 18, 2016 at 2:30am 5 Comments 0 Likes
Everyone keeps telling me to be positive. It will be fine. Don't worry.
But what if doesn't get better? I can't wear a wig for the rest of my life.
I'll explain more on my situation in the next post.
It feels good to find other people going through the same thing!
Comment Wall (2 comments)
- At 3:26pm on February 1, 2021,
zarrin said…
Hi Ithastogetbetter,
I am living in the Netherlands.I have AU and till 6 months ago I used Xeljanz . I stopped Xeljanz as I could not travel to Turkey because of lockdown to buy medicine.Could you please let me know who your physician is and how I can make an appointments?
best regards,
Zarrin
- At 8:01pm on March 26, 2016,
LeslieAnn Butler said…
Hello and welcome!
How are you today?
© 2024 Created by Alopecia World.
Powered by
