Alopecia World
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Xeljanz (Tofacitinib Citrate): My experience on the trial
I have received a lot of interest from others on here in my involvement with the Xeljanz trials at Yale.
I thought it would be nice for everyone if I documented my progress on here.
Xeljanz is a Jak3 inhibitor and is believed to work with alopecia by turning off the distress signal relayed by the hair follicle to the attacking immune system which is the cause of the hairs falling out. Xeljanz comes in a strength of 5mg per pill and a full box contains 60 tablets. The recommended dosage for arthritis is 1 tablet in the morning and another in the evening each day.
The trial is set in a series of stages and there are requirements before participating. These include monthly visits and blood tests every 2 weeks. Dr Brett King is absolutely fantastic and is an inspiration to me. His positivity and enthusiasm gives me the much needed hope I have craved for over a decade. I have been put on a low dose to start with which is 1 tablet every other day. My dosage has now been increased to 1 tablet every day and next month it could be increased to 2 tablets per day depending on the results.
I have completed my first month and have already noticed my alopecia has stabilised . I have not lost any existing hairs. In addition to this I have seen little hairs growing in my chest area as well as eyebrows. Fingers crossed! To date, I have experienced no side effects.
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AW: Other discussions on Xeljanz / Tofacitinib
https://alopeciaworld.com/main/search/search?q=Tofacitinib
Replies to This Discussion
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Permalink Reply by Lori on
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Merry.
I have been on 2 pills a day for a year. My spots just came back wondering if I should increase to 3 pills. How long have you been on it?
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Permalink Reply by kimberj on
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I too have Hashimoto's thyroid disease, Vitaligo, RA, and Gluten Intolerance. I'm a hot damn mess! Lol!
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Hey jcortez that is a very good approach and a good way to go into remission. If your hair has just grown back from relapse I would say maybe go another month or 2 to make it stable then drop to 2-3 a week.
Kind regards
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Permalink Reply by Xeljanzmiracle on
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Wow Jcortez, awesome regrowth!
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I am a 25 yr old male who developed Au in the last yr . I live in Ontario and have been seeing a derm in Hamilton. I have been on 300 mg of cyclosporine over the last yr with no success. Xelijanz is not affordable for most People in Canada. Dr Donavan will prescribe it if you have a Skype appt with him. Are there any males out there who have tried the microblading tattoo eyebrows. Thanks for everyone's help.
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I am a female but tried microblading
Eyebrows about 2 weeks ago--- absolutely love them
I actually have eyebrows again.
You will need to do 2 sessions the
Second One is to touch up about 3 weeks after
Initial session. There is a discussion
Board on this site on microblading.
Check out the comments, maybe some
Are from guys. Good luck.
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Permalink Reply by Rascalx2 on
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Hey Kris,
Been checking out eyebrows and bought pair on line, they look absolutley silly! Like groucho marx lol, so used to being so bare that they look so bizarre.. i looked at the microblading but for me as a guy, i think they look too feminine. I would be scared to get it done , worried that I would regret it and be stuck with it. This disease is terrible, but sometimes I dont have energy to put time into it. Went to a makeup artist other day and she helped me with some mild makeup to give some subtle shadow to give some definition.. gonna try it for a little time see how it goes. She did a great job, it didnt look so stark bare.good luck with whatever you decide. Maybe someone has better input who has microblading.
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Hi, I was just prescribed Xeljanz. My insurance company just denied coverage as I knew they would. I appealed their decision, but I am not counting on them reversing their decision. I have heard of Xelsource and the patient assistant program. I am sure that I qualify, but I think that still comes to about 24,000 a year out of my pocket that I cannot afford. I am not sure what I should do. I am excited just to have gotten to this point, as finding a doctor to prescribe me the medication was difficult enough. But, I am afraid I am out of options to afford it. I was just wondering if any of you knew more, or afford the medication with additional assistance that may be available. Thank you for any of your help or insight.
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Permalink Reply by Alo-mom on
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Hello, with your income it xelsource will provide at no cost. My daughter is receiving it with a similar income. Call me if you need any guidance or advice with paperwork. The phone employees at xelsource are very kind people and helpful.
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Hi Alo-mom,
I just sent you a friend request. Thank you for offering to help!
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Knightsfan, read my posts to Dwhite a few days ago. They tell u how to apply for the Hardship Program and a co-pay card. You can use the Co-pay Card right now and get 4 months of free Xeljanz for 2016 and then another 4 months starting next month for 2017!
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