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Cheryl, Co-founder

Female

Detroit, MI

United States

Profile Information:

Relationship Status:: Married
About Me:: I have been living with alopecia since 1991. Throughout the years, I have had alopecia areata and alopecia totalis. My life is not over, so there is still time for alopecia universalis. ;-) I have had many ups and down and find that I always come out on the other side standing tall.

It has always been a given for me to reach out to others with alopecia. I just did it naturally. I became involved in our local support group in Montreal, participated in the annual conferences of the National Alopecia Areata Foundation (NAAF), and also served as president of the Quebec Alopecia Areata Foundation (QAAF).

Someone once asked me what I planned to do after I moved to the USA. My initial thought was to attend or start a support group in Michigan, but I eventually settled on the wonderful idea of creating Alopecia World with my husband, rj jones, who was my fiancé at the time (2008).

On a personal note, I like to blend femininity and strength. A woman can be strong and physically capable as well as soft and feminine. For a long time, I thought I "had" to be one or the other, and I had a hard time finding my place. Blending both is very gratifying, indeed.

I also like to keep active. It does not have to be extreme. It can be a bike ride, walking, painting a room in the house, or cleaning the garage.

In April 2008, I married rj, a very special man that supports me in my alopecia and is the catalyst and the great mind behind the research and design of this site.

Please feel free to "friend" rj and me: We would love to make your acquaintance.

Welcome to our world… AlopeciaWorld.com!

PS: Don't forget to check out our book:

Whole in the Mirror: From Fractured Identity to Fierce Self-Acceptance:

Available on Amazon:
https://a.co/d/6emBEMY

Cheryl Carvery-Jones
co-founder
AlopeciaWorld.com
cheryl@alopeciaworld.com

"It's Hair Loss Support At Its Best"

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Do you have alopecia?: Alopecia areata
Are you age 18 or older?: Yes - I am 18 or older
Your Website (Leave blank if you don't have one):: http://www.alopeciaworld.com

Comment Wall:

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Annette Duran

Thank you so much!!!!!! I am so excited.

Sep 10, 2008
theantichick (Shannon's Mom)

Thanks for the welcome. I'm learning all I can, my daughter's developed AA (still patchy, but the patches are growing together) and I'm trying to learn how I can support her. :-)

Sep 12, 2008
Anna

Hello and thanks!
So far I really like it here! Even though it's a bit hard writing in english, I tend to use a kind of "swenglish" when I write. :-)

Sep 13, 2008
Leon Johnson

Thanks for having me. This is a great site.

Sep 14, 2008
Emma

Thank you for the welcome x

Sep 15, 2008
Linda

HI Cheryl
Thanks for the welcome. I have spent most of my life making people feel better by styling their hair. For the past 12 years I have been working with people with hair loss. I am in the busines of supplying wig, of all kinds. What has been the turning point for me is how beautiful people look without hair.
OK so thats alright for me to say I don't have alopoecia, But how good do you look!!!!!
Luv
linda

Sep 15, 2008
Roger

Hi Cheryl!

Yes! Because this site is THE best. And I wanna spread the word. Hope youre ok.

Roger.

Sep 16, 2008
LeslieAnn Butler

Hey Girlfriend,
Let me know when you have received the book!
Hugs, LeslieAnn
P.S. Love the music!

Sep 16, 2008
Debbie

I think it's amazing that he's so supportive of you. I think this is a great website.
Have you heard of a product called Calosol? It's supposed to be for alopecia. Check it out on the internet and tell me what you think. I was going to order it, but I want to know if anyone heard of it.
Debbie

Sep 17, 2008
Fatima

Thank You :))))
LOVE
fatima

Sep 18, 2008
Rebecca Anne Richardson

thank you Cheryl! your support and site are very much appreciated and thank you! I look forward to this journey in my life :-)

Sep 19, 2008
DesertAngel

I didn't know about this feature until 5 mins ago when I checked my email and found it full of welcomes! A ll I can say is, Thank You! So very much for welcoming me. I know that I may sound like a broken record but, it feels so good to not be alone.

Sep 19, 2008
Lucy

thanks cheryl for the welcome and for everything.. i really do appreciate this chance to talk to everyone in here..im looking forward to it.

Sep 19, 2008
carly

hey cheryl
my uncle just sent me an email about attitude and hair
and it is on my page under my favorite quotes
i wanted you to see it :)
carly

Sep 20, 2008
Linda

Hi Cherly,
Thanx for adding me as a friend, feel a bit thick here having a "hairdresser" moment. Don't quite know how to go about accepting :-(
Spk soon
Luv Linda

Sep 21, 2008
Linda

WoooHooo
Worked it out

Sep 21, 2008
Sharla

Thank u for ur warm welcome and it's my pleasure being here,,,i do agree it's a wonderful place to be....your song is very inspiring too...

Sep 22, 2008
Sharla

i see,, very lovely song.....

Sep 22, 2008
Dee

Thanx so much, Cheryl for the warm welcome! I am so happy to be on this web site. It is food for my soul, I so needed this!

Sep 24, 2008
Ray

Hi Cheryl,

Can you help me with sorting the order of my photographs please? I have up loaded them but on the slide show they are not in the order that I want. I have put photos of the progression of my alopecia adn in order in makes sense but on the slide show they are out of order. I hope that that makes sense.

Regards

Ray

Sep 26, 2008
John Paul

thanks, Cheryl - love the site and look forward to learning more. And congrats to you for putting it all together.

Sep 29, 2008
Brighteyes

Hi Cheryl and thanx for the welcome. Looking forward to catching up with old friends and making new friends along the way.

Sep 29, 2008
Jude

Thanks for the welcome. This site looks great.

Sep 30, 2008
Esther

Thanks for the welcome...looking forward to being part of this community.

Sep 30, 2008
meaghan evelyn smith earle

thank u for the welcom =]

Sep 30, 2008
Heather

Thank you!

Oct 1, 2008
meaghan evelyn smith earle

welcome*

Oct 1, 2008
Kathy

Hi Cheryl, and thanks for the kind welcome! Today was the day that I shaved my head, and I'm feeling quite liberated! Tomorrow I face the public and go to work with my new look and my new wig!!!

Oct 1, 2008
Christina Parrish

I wish I had found this site 12 years ago!! Thanks for finding me on FB and making me aware of your site. It's great to have a place to talk to others going through the same thing. What a wonderful thing you are doing! I want to help others and didn't know how to do it. You figured it out! I hope I can get some ideas...

Oct 2, 2008
LeslieAnn Butler

GREAT! Can't wait to hear more!
Hugs!!

Oct 2, 2008
Jenn

i just want to say thank you to you and rj, this site is literally a god send. i have just been diagonsed with alopecia and have lost my hair and plunged into a deep depression. i didn't know anyone with this and have really never heard of it before. as stupid as it sounds, i thought i was the only one. i felt a little better yesterday for the 1st time and i am sure that itis because i have found this site and read some of the stories and know that i will be just fine and can fight my way through it because so many others have and seem to be better for it. so thank you again and i will keep reading and finding more and more inspiration.
thanks
jenn

Oct 3, 2008
Bald_Man

Hi Cheryl

Thank you for the welcoming comment.
I had a good look at the site before joining and am very impressed.

John

Oct 3, 2008
Jennifer

Thanks so much, Cheryl, for your warm welcome!

Oct 6, 2008
Ellen Harte

Thank you Cheryl

Its so amazing to be welcomed so warmly by new friends for the same diease! Can't wait to see if a chapter can be started here in Santa Barbara, Ca.!~

Oct 6, 2008
Kayreyn

Thank you for the welcome, and thank you to both you and RJ for the site!

Oct 6, 2008
Diane

Bonjour Cheryl,
I'm doing fine, thanks! I have been busy with the kids and the schoo's stuff but now, the routine is kiking in and things should be smoother (well... I hope!!) tell me, has a support group meeting been scheduled for this fall in Montreal? I've been in touch with Louise but nothing concrete seem to be going on....
Diane

Oct 6, 2008
Matt

Hi,
I'd like to extend my interest in MTV's True Life hair-loss episode.
Some details about me:
I'm 24-years-old, I live and go to school in Chicago, IL.
I was 20-years-old when my hair started falling out and now I'm virtually hairless.

Thank you,
Matt Filippelli
matt.filippelli@gmail.com

Oct 8, 2008
terrence

hello cheryl, i found out about your site through a co worker who has a child with alopecia.when i logged on i was pleasantly pleased to see you were a creator. great site! glad to support and eager to promote the cause

Oct 8, 2008
Jan M.

Hi Cherly,
I am so sorry, I actually thought I was responding to you when I joined your site. Thank you for such an insite to our indiviual beauty in knowing the we as a people in the Alopecia world are not an island. I will keep in touch.

Oct 8, 2008
grizmom

Thanks for the welcome and for providing the atmosphere for people to communicate. I know I felt very lost and out of touch when my daughter was diagnosed a few months ago. Being able to read people's stories and hear their humor has made this much easier. Thanks again!

Oct 9, 2008
Reen

Thanks for the welcome Cheryl!

I was so incredibly excited to find this site! It's what I've been searching for for about 5 months now!

Oct 9, 2008
Reen

Yay! Glad to be a part of this community! When i found you guys, it was like I found my "soulmates"

Oct 9, 2008
PC

Hi Cheryl,

Thank you so much for founding this site. The people are so helpful and nice. Keep doing what you are doing.

pc

Oct 9, 2008
Athina

Hi Cheryl
Thanks so much for the welcome!
Athina

Oct 9, 2008
Rachel

Hey! I got called by the MTV people after I sent them an e-mail, and we had a long phone interview, then she asked for my schedule and stuff! She is presenting my case and facts and stuff to the other producers and they will decide as a group if I am right for the show! Exciting, huh? I am thrilled that they even called. Do you know how many people responded to them?

Oct 9, 2008
Faye(mom of joanna}

thank you

Oct 10, 2008
Dustin Nelson

Thank you and thank you for this site. Don't find many with alopecia where I live. Nice to have support.

Oct 11, 2008
Skin

Hi Cheryl & thanks for the welcome. - Skin.

Oct 11, 2008
JeffreySF

Hi Cheryl,

Just stopping by to say hello.
All is good on my end.

Jeff

Oct 11, 2008
Mister Anderson

Thank you for the welcome! I thanked rj, now I'll say the same to you: Thank you for creating this site. For the last year, I've felt like I was the only person in the world that had their eyebrows fall out. I don't feel so sorry for myself anymore. Thank you.

Oct 12, 2008

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