April 2011 Blog Posts (94)

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Truly not alone

It's incredible how many beautiful women just like me are on here! I'm always resisting participating in Alopecia themed things but this is really helping me. You don't realize how isolating this condition can be. Everyone struggles with confidence and self-esteem but with a visible condition like Alopecia it can be amplified and cause a big time distorted self image. In short I like understanding that I'm not the only "freak" and I mean that in the kindest way possible and am only speaking for… Continue

Added by RealCleopatra'sLegacy on April 30, 2011 at 11:30pm — No Comments

So excited I had to share

Today my husband is finally putting up my face with my brother in-law, this means I can finally go out in my yard without anyone staring at me and wondering whats on my head!!!

this way I can start slowly to get out of the house wearing my wig or turban!

may i also start my therapy which is suppose to help me deal with stress, anxiety, self-esteem etc, I am really hoping all this works out for me, because I am tired of being sad, alone and feeling like there is no hope for me at… Continue

Added by Lisa-Lynn Marini on April 30, 2011 at 8:00am — 1 Comment

How to cope? I just can't find a way :(

I am 15 and a sophomore in high school. I have alopecia areata and the past couple of months more and more of my hair has been coming out. Only my closest friends know about my hair, and i am very scared that in the coming months all of my hair may come out. What will people say? What will they think? Will my friends stay by my side? Will people talk bad about me? All of these things and more are passing through my head and it scared me to death. I used to have such thick and beautiful hair,… Continue

Added by Madison on April 29, 2011 at 11:00pm — 6 Comments

People who give advice and won't let it go annoy me

Why is it when others give advice about so-called treatments ie special diet/acupuncture/holistic/chinese herbs etc and I don't immediately say hey that's a great idea I'll try that today, they get that look or tone that says you poor closed minded woman you aren't open to any help so it's your own fault if your hair doesn't grow back! I've had this conversation so many times it's getting old. These days I just nod politely and move on. However, some people don't know when to back off. Even… Continue

Added by Pat on April 29, 2011 at 9:30pm — 14 Comments

Losing my...everything! Bah!

So over the past year I've had a lot and ups and downs with my AA. To start I guess I should tell you I've had AA since i was 10, and 15 years later here I am! All through out middle school and high school I just had a really weird hairline in the front while the rest of my head was covered in thick brown hair. Towards the end of high school my eyebrows fell out and my hairline had receded 2+ inches from where is normally is. Over the past 9 yrs I have done topical injections, systemic… Continue

Added by Rachel on April 29, 2011 at 9:00pm — 2 Comments

I found the trick

from the last post about shaving my head I decided to try something out, I took shampoo and rubbed it directly on the head where I needed it to be shaved and it worked wonders!! why din't i think of this before? lol
However thank-you to all your replies and suggestions I apreciated them

Lisa

Added by Lisa-Lynn Marini on April 29, 2011 at 6:00pm — 9 Comments

My new favorite wig! And my new nephew!

Me%20Cam%20and%20Zach.JPG



Well I went and picked up my new wigs a week ago and I love my longer one!! I have attached a picture of me in my new look holding my new nephew Zachary(he was born on 4/20) and my niece with us. She is 3 years old.



I love my new wig, I love how it fits my head so much better and just seems like much better quality and much more realistic… Continue

Added by Julie G on April 29, 2011 at 11:51am — 9 Comments

Does anyone have an idea?

I of course am completely bald on the back of my head and all though the sides so I find I i have to shave the top of my head, I hate using a razor with soap or shaing cream it burns,, so i even try using my hubby;s shaver, but find after that my head feels like its on fire. Does anyone have any better ideas on this matter?

Lisa

Added by Lisa-Lynn Marini on April 29, 2011 at 10:11am — 3 Comments

Obsessed with something else

Now that I know I will never get my hair back, I constantly finding myself obsessing with my skin, always adding lotion around the eyes so i dont get crow's feet, never used to wear much make-up before, now I find that I need the make-up EVERY DAY!!! so tis way I dont fel as ugly when i'm in my little facy turbans. beleve it or not it makes me feel pretty again, am I the only one woried about all that stuff, especially when i put lotion aound my eyes at least 3 times daily?

amd I going… Continue

Added by Lisa-Lynn Marini on April 28, 2011 at 9:00am — 12 Comments

Vertigo and missing this website!

So most of you know I went to get my thyroid tested (came back negative) but on March 31st while at work I spun in my chair to get up and ended up spinning, standing up, and going down to the floor. In the ER that night I was diagnosed with a lovely case of Vertigo. For those of you that don't know what it is, it is explains by wiki:



"is a type of dizziness, where there is a feeling of motion when one is stationary. The symptoms are due to a dysfunction of the vestibular system in… Continue

Added by Tamara on April 27, 2011 at 5:40pm — 9 Comments

SO happy to be back!

Hi Everyone!!



I wanted put up a quick post to let you know I am finally able to get back on the website!! For some reason over a year ago I tried to login using the email I had always used and the website told me that email address did not exist. I figured it was something I did but then just didn't have the time and energy to invest in trying to figure it out (I have a 8 month old at home) But I was really bummed because I missed coming on here and talking with you all...now that my… Continue

Added by Nicole on April 27, 2011 at 5:00pm — 1 Comment

Is it OK not to fully accept having alopecia?

I have had alopecia for a while as many of you know lol, but I still cant bring myself to say ' this is how i am now' I mean i see a lot of ppl fulling embracing their baldness, and loving it and all that sort of thing , but I cant help but feel like I'm missing something, and to be honest its quite annoying when ppl are all like ' this is me, now i love being bald because i can switch up my hair wig( but i do acknowledge that everyone is free… Continue

Added by Alexis on April 27, 2011 at 3:30pm — 10 Comments

Bald women rock! Please VOTE in online poll!

In addition to vocalists Dee Dee Bridgewater, Shelby Johnson, and our own Alopecia World member, Lili (aka Eulalia), on the new TV show "The Voice", Christina Aguilera has TWO women on her team who have smoothly shaved heads.



Here are links showing photos of two of the first three singers chosen by Aguilera on last night's premiere:



http://www.nbc.com/the-voice/artists/frenchie-davis/…



Continue

Added by Mary on April 27, 2011 at 11:30am — 32 Comments

The Voice

Watching tonight the new singing show The Voice. A beautiful bald woman walks out on to the stage and rocks a song. The woman Frenchie Davis. Dont know if she has alopecia or just loves the look, but does it really matter???? Hell NO!! Bald and Fabulous rocking it out on tv !!!!!
Oh and the basis of this show as oppose to American Idol, they do blind auditions. Meaning the judges are not allowed to see the contestants until they decide they love their voices.

Added by Bald and Fabulous AKA Terri on April 26, 2011 at 10:02pm — 3 Comments

Realistic wigs?

Hello:)

I was wondering if anyone has found an extremely realistic wig. I would really like to be able to pull my (wig) hair behind my ears and not have to worry about it looking unnatural. I play a lot of sports and need to be able to pull my hair back. Cost isn't an issue. I currently have a locks of love piece, but i have had it for a few years now and it is starting to fall apart. The only problem with the locks of love wig is that the hairline didn't look very convincing, and i always… Continue

Added by SutraHuh on April 26, 2011 at 10:00pm — 9 Comments

The heat, and my eyebrows are fading

When I lost most of my hair it was March 2011 and I took the necessary precautions wearing scarves, hats, buffs, etc. I noticed I felt the cold a lot faster than when I had some hair on my head.



I'm finding that now that it is getting hotter outside, my head sweats! Man! And the sweat goes right to my ears. never realized hair kept that from happening.



On another note, I'm losing my eyebrows. I have pretty much very thick Groucho-Marx-like eyebrows. I notice that I don't… Continue

Added by Lili Añel (aka Eulalia) on April 26, 2011 at 10:00pm — 4 Comments

Challenges

Life is full of challenges, but these challeges are only give to you, because God knows your faith is strong enough to get through tem!!
Yry to remember that when you feel down.

I hope everyone is having a happy ,hopeful dy today
God Bless!

Added by Lisa-Lynn Marini on April 26, 2011 at 10:47am — 6 Comments

Anyone experiencing more allergies?

Hi...i've had AA, AT and AU for most of my life and have also always had many allergies, mainly to perfumes or fragrances in products. I've never really put the two together but as I got older and my Alopecia changed from stage to stage, my perfume sensitiviy also got stronger. I was just wondering if anyone else had experienced the same thing or if its just simply that I have an allergy to perfume.

Added by Trish on April 25, 2011 at 10:20am — 30 Comments

My day out

I had a wonderful day out yesterday, my sister finally got me to go for a drive with her and her husband, we drove through the country side, it was beautiful i can't remember the last time I ever let my house like that and it felt really good to get out.

I cane home I made us all dinner and we had a chat, my brother in law said to me, plz Lisa don;t feel you need to cover your head with anything just because I am here and my sister said the same thing, It was as if my heart pounded of joy… Continue

Added by Lisa-Lynn Marini on April 24, 2011 at 3:00pm — 5 Comments

easter

Have a wonderful easter to evertone, love ya xox'
GOD BLESS

Added by Lisa-Lynn Marini on April 24, 2011 at 9:36am — No Comments

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