Featured Blog Posts – May 2011 Archive (58)

7 pm

There's a television show called "The 7pm Project". It's like a news program, but run by comedians. Its very clever. They have a "guest expert" on each night, the Bondi Vet, a very handsome doctor, social commentators, financial dudes, whatever. Tonight the doctor was on.

They had a story on "Bald Fear", what men in their twenties apparently go through. I immediately went to their website and posted the following.



"I saw tonight your story on "Bald Fear" and had to comment. I've… Continue

Added by Georgia Gardner on May 11, 2011 at 6:00am — 3 Comments

Meeting another bald woman in public

I recently had a wonderful experience. I was standing in a long line at customs at London's Heathrow Airport after a long flight from the US. We ended up in the midst of a plane load of people from Israel - I recognized the lilting Hebrew words. Ahead of me I saw a bald woman, about my age. As the line twisted back and forth around the rope barrier, she and I came face to face - I said hello. She didn't speak much English, and I know only a little Hebrew. I motioned toward her face and head…

Continue

Added by Mary on May 11, 2011 at 5:30am — 10 Comments

"You stuck to your guns and...."

"You stuck to your guns and....." was the topic given to my husband to deliver an impromptu talk this morning at our Toastmasters club. He began by describing his dismay at seeing my newly coiffured hairdo on our wedding day 42 years ago and compared it in derogatory terms to how he loved how I usually wore it which was long and straight. Could he go through with marrying a woman with a beehive? Then he stated how he stuck to his guns and married me anyhow little knowing that 30 years later… Continue

Added by Pat on May 11, 2011 at 12:30am — 5 Comments

Reaction

I was on the trolley the other day and a guy asked me if i have alopecia and that's the first time someone asked me that before but i answer the question very truthfully. then he said he wasn't imagining it. i was so weirded out afterward. how would you react if it happen to you?

Added by Tamika Joseph on May 11, 2011 at 12:00am — 3 Comments

So I found another spot

it has been a couple of months since i found the first spot, my hair has been falling out everyday but it had been from all over my head so it wasn't as noticeable except for the first spot that is about the size of a half dollar coin. it has thin little hairs growing out of it but its still pretty noticeable. well today i found another little spot on the opposite side of my head, this one is smaller though its about half an inch in diameter. its super itchy and even burns a little. i have an… Continue

Added by Zayuri Sams on May 10, 2011 at 9:00pm — 2 Comments

My therapy

Today I went to my therapy and Oh my God I was shaking, until I got in there except I was surrounded by men!! I was the only woman there so I was nervous until the end I started to open up, my fisrt
assignment I have is to do something about 15 min before Thursday that makes me happy!!

I'm glad I did it today I made my first step!!!

I went in my pretty curly wig today too and the secretary was saying oh my what gorgeous hair you have, made me feel good and pretty.

Added by Lisa-Lynn Marini on May 10, 2011 at 6:00pm — 2 Comments

Peeved

It's daunting enough when trying to find a wig that meets my needs, but I just get really peeved when dealing with certain 'sellers'. You know the ones. Where they 'understand' because they have alopecia too, so that makes them more 'compassionate' than any other seller. But don't let that facade fool you. They are the most viscous of the bunch, only out for the money. They prey on your weakness, vulnerability and insecurity. It's funny how they're the ones that sell the most expensive wigs out… Continue

Added by Brandy Snap on May 10, 2011 at 3:09pm — 1 Comment

Head acne, stinging and the continued process out in the world as an alopecian

So I wonder if any of you have experienced this, I've been getting what seems like acne near my forehead and around the top of my head. I'm thinking since I don't have hair nothing to absorb skin oil I'm getting these bumps. Any recommendations as to what I can use?



I also have been feeling tingling. I've been bald now since early March; is this part of the process? My eyebrows are also thinning. Any recommendations as to what I should be on the lookout for, do, etc., is much… Continue

Added by Lili Añel (aka Eulalia) on May 9, 2011 at 8:00pm — 3 Comments

Nervous

I thought for a while I was gonna be ok and that I wouldn't be nervous on my trip to my therapy session , however today I find myself a nervous wreck, wondering if someone will stare at my head, wondering if they can figure out I am wearing a wig, I mean alot of folks stare and I guess it's only natural but I'm nervous about it.
Tomorrow is a big day for me and I really hope I can pull through it!
'Nervous me

Added by Lisa-Lynn Marini on May 9, 2011 at 4:30pm — 1 Comment

Regrowth

Hello everyone, I havent wrote on here in a while, but would like to share my good news. I have a full head of hair with just a bit on the top to fill in, :) my hair seems to be growin quickly to, i cant believe it yet it seems unreal. I wont go without my wig yet as i dont like to crop style, lol
It has come back ginger to but still alot darker than my hair was, still some white to change but its all looking good,
really wanted to share my news, :) thanks for reading, x

Added by lynne on May 8, 2011 at 2:30pm — 5 Comments

Finally!

I'm happy to say that after last night showing my family what I really looked like without a turban or a wig and all they said was, it's about time! let your head breath, it looks cute.

I seen my son's face, he just stared and stared and came up to wear I was sitting and said mommy you don't look ugly at all you are still very pretty, it brought tears to my eyes. and he hugged me tight and said I love you mommy even if you have no hair.

We were able to take my "couple picture as i… Continue

Added by Lisa-Lynn Marini on May 5, 2011 at 9:00am — 3 Comments

What do you think of the new look?

Alopecia World has a new look, and we would love to know what you think of it. Therefore, please sign into Alopecia World at your earliest convenience and post your feedback on this blog. We value your opinion and will give honest consideration to your suggestions and concerns. Feel free to post relevant questions, too.

Looking forward to hearing from you,

Cheryl and rj jones
Founders, Alopecia World

Added by Alopecia World on May 4, 2011 at 3:00am — 13 Comments

I need help! plzzz

next week I am starting my therapy for self-esteem and stress and so forth, I am worried which wig I should go in and keep going in ? can you guys plz tell me hrough my photos which one i should wear, i could use some opinions plzzz

confused Lisa

Added by Lisa-Lynn Marini on May 3, 2011 at 6:45pm — 9 Comments

You'll Never Walk Alone - With AlopeciaWorld.com!

Feeling down? I thought I'd post something to help.



First watch this beautiful version of the song from the musical, Carousel, performed on the Tony Awards:

https://www.youtube.com/watch?v=qDb7YnRNxug





When you walk through the storm

Keep your chin up high

And don't be afraid of the dark

At the end of the storm

Is a golden sky

And the sweet silver song of a lark



Walk…

Continue

Added by Mary on May 3, 2011 at 12:30am — 6 Comments

Just so hard to smile

I'm having such a hard time to smile today. I suppose it's one of those days where I tried on every wig I have and felt it just wasn't me. So I had to put my turban back on and it's not what I wanted to do today. Someone told me today, "You're lucky you don't have cancer and you have your health," and I in turn said,"You're lucky you have hair and good health." Sometimes I wonder if people think before they speak.

Yes I am grateful for my health but sure as hell not grateful for not having… Continue

Added by Lisa-Lynn Marini on May 2, 2011 at 3:30pm — 6 Comments

I really need something positive in my life

So I think the vertigo has about run its course, I just get random spins that last like 15 seconds, which I can deal with. The migraines are finally lessening with the meds I take everyday. I have to go on the 5th to have a MRA on my brain with contrast, because my neurologist wants to check the blood vessels in the back of my neck. On top of that, today, May 2nd, marks 4 years since my dad passed away. I have for the past 4 years went to Arlington cemetery on the day he passed and his… Continue

Added by Tamara on May 2, 2011 at 2:30pm — 5 Comments

"People like people who like them."

A boss once said this to me, and I found it to be true quite often. Who is going to know you appreciate him/her if you say nothing and just wait like a bump on the log or a hopeful Cinderella behind a door? Be your own champion or magic godmother and GET OUT THERE! Make the first move and talk to someone in a friendly, not morbid, way. Everyone likes attention...to himself/herself...and will most likely come back for more. If someone at home is griping or sulking about your concerns with… Continue

Added by Tallgirl on May 1, 2011 at 5:30pm — 1 Comment

Let's do something this summer

So here I go..... never one to think that I would be the one to start something like this. We all know the shame, embarrassment, and the hiding we do with regards to having alopecia. My grand beautiful idea and I hope to get many of a interest. I was going thru the events and festivals here in Edmonton and having gone to afew of them myself over the years.

July 8 - 17 is the Street Performers Festival located at Sir Winston Churchill Square in downtown Edomonton.

I would love to have… Continue

Added by Bald and Fabulous AKA Terri on May 1, 2011 at 11:00am — 4 Comments

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