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Healing room

Yesterday I was on the bus to work. A bald woman got on the bus and I immediately wanted to go talk to her and ask her how shes dealing with the hair loss and if she wanted to go to the healing rooms ( to get prayed for, for healing) I said "hi, I was wondering, do you have alopecia like me"? She said "no, I'm going through chemo". I felt so terrible. I'm just bald and healthy but she is bald because she has cancer and is going through chemo. I felt absolutely terrible. I then encouraged her to… Continue

Added by Alexis on September 21, 2011 at 1:30pm — 2 Comments

My beloved niece: A gift of baldness

One of my young nieces has a very hard time with the fact that I don't have hair. One day she asked me, "Do you think that you are pretty and you have no hair?" I responded, "No, I know that I'm pretty!" She just walked away.

A few days later, her mother told me that they were riding in the car and my niece emphatically stated, "Mama can you believe that Auntie Jacqui thinks that she is pretty with no hair!"

So the next time I saw my niece, I told her that everywhere I go people walk… Continue

Added by Jacqui on September 21, 2011 at 9:30am — 5 Comments

One in a million!

I get stares everywhere I go. It really bothered me before. But now I embrace it, maybe I like the attention. I also like to let people know about AA because the more people know about it, the more chances a cure will be found. I realized each one of us is literally one in a million and we should not hide it, but be proud of it. I have AA and I sometimes do want my eyebrows and eyelashes back, but if not for AA I wouldn't have what I have now. A beautiful girlfriend that loves me no matter what… Continue

Added by Alex on September 21, 2011 at 4:27am — 1 Comment

Her words were like daggers

I remember sitting in my biology class in high school, front row(Being the teacher's pet I was, always busy taking notes) trying to impress my crush, my teacher, Mr.Suruj. I remember it like it was yesterday, because this was when I really became aware, that others had caught on to my Alopecia. I had my hair in a ponytail, with my ever growing bangs hanging at the side of my face. So there I was, looking studious as ever, with my eyes engrossed in my textbook reading about the Amebas and the… Continue

Added by Elizabeth on September 20, 2011 at 5:00pm — 4 Comments

People looking and talking

Hey all,



It has been a while since my last blog post, so I thought it was time to share my story with you again. If you don't care, just read it!



Well, in my last blog I mentioned my bald spots which appeared again. Since then it has gotten worse, the spots have expanded and I look like a dalmatian again.

I have no idea why it has gotten worse that fast, but I guess nobody does.

I don't wear a wig anymore because I just feel that I would be hiding who I am that… Continue

Added by Lionel on September 20, 2011 at 5:00pm — 1 Comment

My other blog

Hi,

I have decided to start writing blog posts on my other blog again. I was just posting to this site only, but I am going to start posting on my blog instead. I am a member of another support website so this way, any members of all the sites can see it if they would like. The link to it is below if you would like to view it. I'm not going anywhere so I will still be visiting this site as often as I do now. Thank you for your support.…



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Added by Alliegator on September 20, 2011 at 9:56am — No Comments

My AA is gone but...

My AA is almost gone. I feel like I dont belong here because I have hair again. But coming here, I remember what it was like. I cant leave this behind, it made me who I am today. I love everybody on here for being them and for helping me. Now Im going to do the same for them.

Added by Rose Wickler on September 19, 2011 at 2:34pm — 2 Comments

Have you met these people? They're simply amazing!

If you spend quality time in Alopecia World, you will meet scores of the most fascinating and engaging people in the world today.

They are musicians, artists, painters, scientists, world travelers, teachers, rabbis, models, comedians, college students, athletes, writers, actresses, photographers, film makers, beauty queens, and community activists.

And that's just for starters!

Each day brings new faces, new stories, and new opportunities to learn how to not only survive…

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Added by Alopecia World on September 19, 2011 at 3:00am — 4 Comments

People

This happens to me almost everyday, I am out and someone comes up to me asking what happened or if i have cancer. It usually never bothers me unless they ask rudely, because their just curious about why im bald. What bothers me is when a person will ask me why I dont wear a wig and make a big deal about it. All I want to shout at them is "I actually like how I look...thanks" but I dont. Ive worn wigs before and I honestly like the freedom of not having one though I dont think its bad if someone… Continue

Added by Rachel on September 18, 2011 at 6:30pm — 10 Comments

Full head of hair :)

Well my bog a while back had that i had regrowth but it started to fall out again, well i shaved my hair off to start a fresh and this time i have more :)

I have a full head of hair with a couple of bits still thinner but defo could walk about without my wig now. I am so annoyed with myself tho as i dont have the confidence to go about with my new hair do yet as i dont like it, lol. I love the hair tho, I think it's still a little short for me so hoping that this regrowth is to stay and i… Continue

Added by lynne on September 18, 2011 at 7:58am — 6 Comments

HELLO!

Im so happy to have just joined this wonderful site!
Ive been looking for years for support groups, website, etc....
I havent ever met another person with this disease, ive only heard of people, other than myself!

SO WHO EVER CREATED THIS WEBSITE I WANT TO THANK THEM!!!!!!!!!

Added by Meaghan on September 17, 2011 at 4:04pm — No Comments

Spreading Awareness-Musicians for Children's Alopecia Project Benefit Tonight

I was told this link didn't work, perhaps it will work now:
http://www.phillyburbs.com/entertainment/local_entertainment/lili-a-el-s-bold-decision-inspires-benefit-for-kids/article_50ae661d-ca4b-56b0-9904-d454efc4e01c.html

Added by Lili Añel (aka Eulalia) on September 17, 2011 at 12:53am — 1 Comment

Saw a fellow alopecian today - How to say hi to a total stranger

Had a chance meeting with a fellow alopecian today--unfortunately we did not really get to talk. I was at the P.O. and when I got in line, I saw a woman a few places in front of me that was only wearing a fitted hat on her bald head--she didn't seem to have eyebrows or lashes either. I was so excited and proud of her for going out that way. I watched to see if the others in the P.O were staring or looking at her (it was crowded) and I didn't see anyone paying any attention to her--except me for… Continue

Added by Rodeli on September 16, 2011 at 11:00pm — 3 Comments

job please!!!

any jobs guysss??? i've finish 4yrs. course business administration major in business management...im now working in a company wherein we supply furnitures from china and malaysia for 5 yrs now and i want to try other jobs out of the country.. any suggestion???? tnx.. godbless :)

Added by charlotte on September 16, 2011 at 4:13am — 1 Comment

My new job!

Hello All, It's been a while since I have logged into Alopecia World. Alot of great things have been happening in my life but the one thing that I want to talk about is my new job!! Yea me!! I started a new job about two weeks ago and struggled with the thought of returning to "Corporate America" without hair. I prayed about it and thought to myself, if not me then who. Well I'm very pleased to say that it has been an unbelievable experience. For those of you who can't imagine going to work… Continue

Added by Joye Pressley on September 15, 2011 at 11:30pm — 4 Comments

Found confidence again with great topper from Revlon

http://www.acewigs.com/shop/wigs/Revlon_Wigs/31540.php





I have lost 50 percent of my hair and have spent over 2,000 dollars on wigs and hats. I found an inexpensive topper(150) from Revlon that looks great and is so natural. It is human hair and snaps on. I do not have a lot of hair so only 2 of the snaps work. I secure it with small bobby pins underneath. I have even styled it on. You… Continue

Added by Wendy on September 15, 2011 at 11:03pm — No Comments

Why is my hair white?

Hi everyone,
Just wondering if anyone else deals with all the new hair growth coming in white and why? No I'm not that old either. I have a lot that always grows back, but I always shave it right away so my wig will fit right, but if I didn't will it eventually turn to the brunette I was? I don't know if I would have the patience to find out, so basically I'm just curious if anyone else has had this and what happened.
Thank you already to any input you may have.

Added by Hope on September 15, 2011 at 8:30pm — 3 Comments

Luck with Biotin?

So I don't know if this is just a coincidence or not, but I read on here about someone taking biotin, so I did some research on it and I've been taking it for a little over a month now. I dont want to get my hopes up, but I currently have ZERO bald spots and my thick hair is growing in! Also my nails stopped peeling and breaking once they got some length to them. Has anyone else had luck with Biotin? I'm definitely making sure I take it every morning and just hoping for the best! I posted a… Continue

Added by Tamara on September 15, 2011 at 2:00pm — 4 Comments

Things are going great. : )

Hey! How is everyone doing? Sorry I haven't been on here in a while. I'm going to try to get on here more! I had a great summer! I had a wonderful birthday and I made some new friends. : ) Life has been pretty great so far. My hair is still growing . I hardly have any bald spots and I am so thankful for the hair growth! I am very blessed. I wear my wig most of the time but it's getting hard to wear it now. I don't feel comfortable enough to go out in public without a bandana. I just wish my… Continue

Added by Mackenzie on September 14, 2011 at 11:00pm — 4 Comments

The life of a closeted alopecian

Dear all,



As dumb as this may sound, I wonder if I will ever get up the nerve to change my facebook picture. To backtrack, I am now on day twelve my new "pixie cut" post wig hairstyle with two 1.5 bald spots, one above my left ear and one on the ride side of my lower neck area. Thankfully I have a great hairstylist who styled it so that you can't tell, I am extremely thankful for her :)



To use my facebook picture simply as a symbol of my current mental state (and to… Continue

Added by Jennifer on September 14, 2011 at 9:00pm — 5 Comments

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