All Blog Posts Tagged 'Areata' (19)

**New**

I'm a 24 YO female and I've had AA for about a year and a half now. I've done the whole routine of shots, creams, different hairstyles, stress relieving activities etc and nothing has seemed to work. There's days I accept it and days that I hate it more than anything.



I think the hardest part is trying to talk to your family/friends about it and getting angry that they keep saying "It's just hair. Everyone around you loves you no matter what. They don't care that you're losing your… Continue

Added by Pmadventure on May 24, 2017 at 12:55pm — 8 Comments

Insecurity

I guess I do get insecure about my alopecia. The stares that come with the bald patches. Instead of asking, people just stare. I wish they would just ask.

I don't mind sharing what I look like, patches and all. But with people I don't know; it can be a little intimidating. I rather wear my hat, wig, or scarf.

I took a picture of my head to see how it was and hikers.

Added by BarbaraK on September 8, 2015 at 12:00pm — No Comments

I want to get to know you, a nice man or woman!

I am looking to get to know either a nice man or a woman. Friendship is great and if it gets to be more than friendship that's fine, but, one step at a time. I am a very open and accepting individual, I don't judge. I am the kind of person that if it doesn't work or as a relationship I would love to remain friends.

I am honest and I hope you will be honest with me. I am here to listen and hope you'll listen to me.

Added by BarbaraK on September 4, 2015 at 11:30am — 1 Comment

My Manifesto - Time Heals All Wounds

“It has been said, ‘time heals all wounds.’ I do not agree. The wounds remain. In time, the mind, protecting its sanity, covers them with scar tissues and the pain lessens. But it is never gone.” – Rose Kennedy.

When I think about space and time, it reminds me of my past, my future, and who I am now. I think of myself and how others might view me. This is an internal way of interpreting the theme this year, but it seems to be the way I interpret every theme. For the past four years, I…

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Added by sylvia.eg on October 5, 2014 at 10:00am — No Comments

My struggle

I've been dealing with Alopecia for a little over a year now. Some days are better than others. I've lost a good bit of my hair on the left side of my head mostly and i'm starting to see new bald spots on the right side very small right now but afraid they are going to get like the left. The left side is growing back after i started using the fluocinonide cream the doctor gave me but i feel like my hair is just thinning out more and more and more. I'm not sure if i'm just being over paranoid…

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Added by xMandyx on August 16, 2014 at 6:30am — 2 Comments

I believe (alopecia can...)

I believe that Alopecia can kill us on the inside and leave us a physical shell with a defeated spirit. It almost did that to me. We MUST nurture and pamper our emotional selves (well, too much pampering is bad of course, but go easy on yourself for at least three years) during the transition from possessing hair (and, no, I don't mean owning a wig lol) to not anymore - of course, that is, if we don't come up with a no-side-effects cure - which would be totally kick ass. Then, being bald…

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Added by Laura Adams on July 9, 2014 at 11:00pm — 1 Comment

New “bald” friend of Barbie causes controversy

U.S. toymaker Mattel created a “bald” friend of Barbie doll named Ella and donated a limited quantity of the dolls to the National Alopecia Areata Foundation (NAAF).

However, the bald doll has created some controversy in the alopecia community because Ella is packaged with a wig on.

Some feel that it is not a real representation of a person with alopecia and…

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Added by Cheryl, Co-founder on February 5, 2013 at 11:00pm — 54 Comments

Giving up on treatment

I've had AA pretty much my entire life. When I was little I had a patches of hair that just never grew. That went into remission for a few years then came back when I was in high school. I've been doing scalp injections for the last decade probably. It keeps the AA in check, but I never have had full re-growth. My AA has always been pretty easy to cover up, until the last six months when I developed a patch towards the top of my head. My hair is noticably thinner (to me anyway) and I'm…

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Added by AshleyK on July 24, 2012 at 1:00pm — 4 Comments

No title because I couldn't think of one.

I just want to get my feelings out...I see people on this site especially parents asking what to do, and stuff...I don't know if I'd ever give good advice about it because we're all different, different strokes for different folks...

But I just wanted to say my peace...I've been full on bald since I was four years old. I was never normal well...I used to have a full head of curly black hair that I would never let anyone but my dad touch. I don't remember much of my years WITH hair as…

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Added by Storm_Uchiha on March 13, 2012 at 3:33am — 3 Comments

My new hair, and Clinic Del Mondo

This photo is of me wearing my "new hair". An awesome piece of new technology from an awesome man name Greg T Kirk who has teamed up with Clinic Del Mondo on the Gold Coast (QLD) to bring it to Australia. Essentially it's a thin membrane of some plastic substance, threaded with human hair, and glued to the scalp - lasting some 4-6 weeks. While Greg has worked with the technology for a few years in the States, it is completely new here.…



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Added by Dominique on January 31, 2011 at 8:30am — 4 Comments

Hair!

So lately my hair has been growing back as you may have read in one of my previous blogs, and it's been getting better and better. I hadn't really paid so much attention to my hair when it was growing back at first (not so much that I was obsessed with growing it back), but lately I have been paying more attention to it because now I can visibly keep track on the regrowth, and that's fun!

I have a hair-line again at the front of my head again, and I've produced myself a milimetered mohawk.… Continue

Added by Lionel on August 29, 2010 at 11:35am — 1 Comment

NAAF research volunteer

So I registered for the NAAF reseach because I'm an identical twin and they called me today and are sending me a package in the mail to get my blood drawn and send back to them. My question is has anybody done this and where can I go to get the blood draw done for free because my insurance will not cover it, and all of the NAAF outposts are states away.

Added by Jeannie Terrel on August 24, 2010 at 5:36pm — 1 Comment

Stable times

Well, it's been a while since I posted my last blog. I've been busy with school and not so busy with my hair... or without my hair, haha.



I'm still bald and my legs are still becoming smoother, as well as my arms.

In general, I don't really care for my almost hairless arms and legs. What I do care about are my eyebrows. Those I don't want to lose, and I'm taking measures to prevent to let them.

I still use the fluid 'DPCP' on my eyebrows, and it works! Sometimes they fall… Continue

Added by Lionel on April 20, 2010 at 4:54pm — 3 Comments

Camp Discovery/Camp Knutson

"Where we learn the true meaning of strength and courage and where smiles, hugs and laughter, give hope to us all."



http://www.campdiscovery.org/



I'm going to chat a bit about my experiences at Camp Discovery/Camp Knutson in Crosslake, MN. I told a couple here on AW, and they recommend that I write a blog about it...to inform possibly parents or teens that want to go to the Camp or send their kids there.



"For young… Continue

Added by Carissa on April 13, 2010 at 12:29pm — 4 Comments

Becoming worse

I am a boy, 17 years of age and I also have Alopecia Areata, as many of you on this website.

I have had it since I was 12/13 years old. In the beginning I only had one or two little bald spots on the back of my head. I had no idea what it was, until my hairdresser told me what it was, even the doctor didn't know what it was which is strange. Then the hairdressers gave me 'Nioxin' which helped and the bald spots dissapeared.



Then when I was just 15 it came back on both sides of… Continue

Added by Lionel on November 24, 2009 at 10:57am — 4 Comments

Hair Again

I am now experiencing a really weird feeling. I now have hair again.



I cannot believe that it has all come back. I have not shaved my head for a month now and I have more hair than I would have thought possible in such a short period of time.



The last time I shaved was on the Saturday evening of the August bank holiday. I shaved at about 1800 hours as I was going to our friends’ 25th Wedding Anniversary party. As always with a big night out I wanted a really close shave… Continue

Added by Ray on September 26, 2008 at 1:00pm — 8 Comments

More encouraging registry information...

Hi guys, if you've read all these posts, you know that there has been some discussion about the purpose of the National Alopecia Areata Registry and how our information and blood samples will be used. I went back and read more carefully myself on the MD Anderson site.



My purpose in posting this particular blog is not to cause a reaction or upset anyone who may disagree with what I am writing. I just feel that there is signifcant reason to believe that the registry will be doing…
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Added by Kelly on June 1, 2008 at 12:30pm — 5 Comments

Hello My Bald Brothers and Sisters!

Wow!!! What a great site! And how cool are social network sites! I think Alopecia World is using the same system that we just moved my company to www.CoCreatingOurReality.com. If any of you are following along with the New Earth book with Oprah and Eckhart Tolle you'll enjoy our site...come check it out when you get a chance!



But back to Alopecia World...this is awesome! What a great resource and place for people to meet, ask questions and feel a sense of community! I *LOVE* the… Continue

Added by Laura Duksta on March 8, 2008 at 8:15pm — 3 Comments

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