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General…

Recently, I found myself wondering something.  When did I stop thinking about my alopecia?

When I first lost my hair, it was impossible not to think about it. I thought about it all the time. Whenever I washed or brushed the strands I had left, when I stared back at the bald reflection in the mirror that I no longer…

Enrolling until December 31, 2025

The Department of Dermatology at the Mount Sinai School of Medicine in New York City is enrolling children and adults with alopecia areata (all types) in two studies. The investigational drugs are dupilumab and ritlecitinib.



Study #1 with dupilumab (Dupixent)

Investigational drug Dupixent (dupilumab) for ages 6 to adult.

Trial…

Alopecia isn’t just about losing hair—it’s about losing control. When I first lost my hair, I didn’t hate the reflection staring back at me, but I feared how others would see me. So, I hid. I wore wigs not because I loved them, but because I was afraid not to.

The journey wasn’t linear. It took about five years—some days I felt brave, others exposed.…

At Alopecia World, we’ve always celebrated the beauty of authenticity, and this recent story perfectly captures that spirit. An Indian bride, Neehar Sachdeva, made headlines for ditching her wig on her wedding day, boldly embracing her alopecia in front of family, friends, and the world.

You can read her story and…

Hello, my friends,

As I write this, I’m reminded of how far we’ve come together. Many of you have been with us since the early days of Alopecia World when alopecia felt like an isolating experience. Over the years, we’ve built a community that’s been a source of strength, understanding, and empowerment. Today, I’m thrilled to share something deeply personal—our new book, Whole in the…

We are so excited to share some big news with you.

Our new book, Whole in the Mirror, is NOW available!…

Dear Alopecia World Members,

As we bid farewell to the old and embrace the new, We wanted to take a moment to extend my warmest wishes to each and every one of you. As we step into the dawn of a brand new year, may it bring you joy, prosperity, and endless possibilities.

May this year be a canvas of new experiences, filled with moments of…

Living with alopecia presents a unique set of challenges. The emotional turmoil, the physical changes, and the constant search for acceptance can challenging. However, I believe that every individual's experience is a testament to strength and resilience. By sharing your personal alopecia story, you have the power to inspire and support others who may be…

The "Call to Adventure" in the world of alopecia is undeniably daunting, but it is also a call to self-discovery, resilience, and personal growth. It's a journey that no one chooses, but it can be transformed into a path of empowerment and acceptance. As you navigate the challenges, emotions, and uncertainties that come with living with alopecia, I leave you…

Alopecian, Eve Betts, a reality TV contestant from the show First Dates from 2007 says she receives abuse and sexually explicit material over social media.

Eve shared, "I get a lot of death threats. People saying that I should just die because of the way that I look." Her decision to remove her wig on camera during the show made her a…

Do you ever struggle with feeling unattractive due to alopecia? How has it affected your self-image and how do you deal with those emotions?

Living with alopecia, a condition characterized by hair loss, can challenge our self-esteem and self-image in profound ways. It's okay to acknowledge the feelings of vulnerability and…

30 Days, 30 Facts: A Social Media Initiative

One innovative way to participate in Alopecia Awareness Month is by joining the "30 Days, 30 Facts" campaign. This initiative involves sharing graphics that feature a different alopecia-related fact each day of the month. Here's why this campaign is so impactful:

Alopecia Awareness Month is an annual campaign that takes place in September, dedicated to raising awareness…

Source:  www.naaf.org

"Imagine waking up to clumps of hair on your pillow.

Or turning off the shower only to find a pile of your hair on the drain.

And that you have numerous bald spots on your head that are so big they can no longer be hidden.

Millions of…

People all around the world will be having parties, celebrations and awareness events. You’ll see IAD selfies popping up all day on social media.

YOU can be part of the annual International Alopecia Day YouTube slide show!

HOW YOU CAN BE IN THE 2023 IAD VIDEO:

1. Take your photos ON International Alopecia Day, August 5. This is meant to be a snapshot of Alopecians around the world on this ONE day.

2. Please don’t send in professional “studio”…

Recent Stories from ABCNews.com"

"The U.S. Food and Drug Administration on Friday approved an alopecia treatment for kids..

The drug, ritlecitinib, is a once-daily pill for kids ages 12 and older with severe alopecia areata, a disease that develops when the body attacks the hair follicles,…

Photo credit:  Grace Hollars-USA TODAY Sports

Leah Hayes, a high school senior and competitive swimmer, has set her sights on making it to the 2024 Olympics in Paris. However, her goal goes beyond competing; she also wants to raise awareness about alopecia, an autoimmune…

A clinical research study is looking for adults (18+) diagnosed with alopecia areata with 50% or more scalp hair loss. This study is investigating an oral (taken by mouth) study drug called farudodstat. The main purpose of the study is to see whether farudodstat, when taken twice a day for 12 weeks, can help people with alopecia areata grow hair and to find out…

It's true, sometimes it's comforting to know that someone famous is going through the same thing you are, like Jada Pinkett Smith and Ayanna Pressley, both of whom have opened up about their struggles with alopecia. It's reassuring to know that you're not alone. However, it's important to remember that these celebrities are just people, like you and me. They…