All Blog Posts Tagged 'alopecia' (247)

My alopecia story in a bit more detail

So my story starts way back in 1994, well 1995 really but some incident/situation in 1994 might have contributed to my acquiring AU. In case you don’t know, AU stands for Alopecia Universalis. It is the most severe and rarest of the main forms of Alopecia.

So my hair loss started in January 1995, and my long (about mid-back) brown locks departed rather quickly and efficiently. It went in a diffuse, even pattern. At one stage, when maybe 80-90% was gone, I looked a lot like the…

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Added by Laura Adams on May 21, 2014 at 4:00am — No Comments

"Beautiful Henna crowns bring confidence and joy to women experiencing hair loss"

I recently came across the below article on the Huffington Post website:

"One organization is using all-natural ingredients and artistry to help women coping with hair loss.



Henna Heals was started by Canadian photographer Frances Darwin in 2011 as a small group of volunteers in Toronto, and has since grown to a community of 150 artists worldwide. Those…

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Added by Cheryl, Co-founder on May 19, 2014 at 3:30pm — 2 Comments

I am newly diagnosed with AA; this is what I have started trying

Hello,   I am newly diagnosed with AA, it all started in Jan. 2014, I too have had long very thick and fast growing hair my whole life.  But in Jan. it started to fall out, I was not concerned because secretly I have had lots of challenges with the thick hair.  Feb., it still kept falling out, no bald patches just continuously falling out, lots and lots of hair in bathtub, on floor when styling. By March it was getting thin all over, hair changed its normal thick, somewhat coarse texture to…

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Added by hoofpick on April 29, 2014 at 1:30pm — 2 Comments

Girl banned from school for shaving head

ABC News reported:

A 9-year-old girl from Grand Junction, Colorado will be allowed to return to school after being banned for shaving her head.

Kamryn…

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Added by Cheryl, Co-founder on March 26, 2014 at 12:30am — 18 Comments

The angry art of alopecian superhero artist David Finch

 

I recently read an article about David Finch, an alopecian super hero artist.  When asked about his emotional details in his drawings Finch responded:

"It does come from both personal…

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Added by Cheryl, Co-founder on March 21, 2014 at 5:00pm — 4 Comments

Back online again

It's been a long time since my last visit here, and a long time since my last blog post. A lot of other things have kept me very busy; my study at uni (which I am almost done with already), work, projects, friends and moving to Sydney and back.

In my last blog post back in 2011 I mentioned that my bald spots were returning again which could be confronting at times in a society and age where everybody is focused on looks. Fortunately, after a while my hair started growing back again…

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Added by Lionel on January 9, 2014 at 7:00pm — No Comments

Alopecia

Hi !

I am Mumtaz Amir from Pakistan having this disease for last about 20 years. I tried so many medical and other treatments but no result. One interesting thing is that i loose my hair from one point and after few months they again start growing. But anyways i am so much depressed due to this disease. I have lost my all charm of life and now i am an average man in my professional life although i was brighter student of my class. I dont know how to overcome this disease. Can any one…

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Added by Mumtaz Amir on January 6, 2014 at 2:24am — 1 Comment

A special message just for you

I would like to express my sincere gratitude and wish you a happy new year. There is no way Alopecia World could be what it has become without input from individuals like you. The support, caring, triumphs and struggles that you have each shared through blogs, discussions, comments and videos on the site help a multitude of people every day. We do not have to struggle or be victorious alone; we have a place where we can encourage and be encouraged by others. Thank you for making my dream…

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Added by Alopecia World on January 2, 2014 at 4:47pm — 20 Comments

Alopecia Mommy

Hello Alopecia World!

I'm a new mommy (two babies under 2 years old!) and I started losing my hair shortly after a minor car accident while I was pregnant with my son. I gave birth to my daughter last summer and experienced about 90% hair loss following delivery.  I'm curious if there are any other moms out there that have had this happen to them?  Or anyone that struggles with alopecia and wants to share...

I started writing on wordpress:…

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Added by alopeciamami on November 18, 2013 at 1:02pm — No Comments

Is it a fetish or mere fascination? It may pay to find out

I met the bald woman of my dreams on MySpace.com in the spring of 2007, and I can't tell you how grateful I am that she didn't summarily dismiss me as some creepy dude who simply had a bald fetish.

When I saw her photos on MySpace at the time, I thought she was as fine as they come and I let her know it. Yes, I knew she was bald due to alopecia areata because that was one of the first things her profile stated and she was bald in all her photos. However, it didn't matter one bit: She…

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Added by rj, Co-founder on October 18, 2013 at 4:00pm — 28 Comments

Celebrating three years of liberation

September 3, 2010... this was the year that I took the first steps to liberation. Liberation from myself, liberation from disease and liberation from society's perceptions of what I should look like and how I should be. This date was the day that I shaved my head. 3 years ago I did the one thing that I never thought I would have the courage to do. I picked up a pair of clippers and shaved what remained of my hair. Alopecia Universalis had taken most of it and I finished the task. Its…

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Added by Bald and Fabulous AKA Terri on September 2, 2013 at 8:30pm — 2 Comments

It gets better

I would like to share my story with some readers who might have just recently received a diagnosis of alopecia. This spring I noticed to my horror that I had several bald patches in the front of my scalp. I couldn`t believe it - I actually went and checked it out in several mirrors of my house. I went to work with about a can of hairspray on my head to glue the strands in place and cover the spot.

Over the course of a few days the spots grew bigger and joined up so I was looking at a…

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Added by Second time on September 2, 2013 at 9:00am — No Comments

September is Alopecia Awareness Month

What special activities do you have planned for Alopecia Awareness Month? Please be sure to list them on Alopecia World's events calendar. We also welcome you to make suggestions and discuss your plans in the comments section below.



Below is information on what the National Alopecia Areata Foundations has planned for the month.

NAAF - Team Up for Alopecia Areata…

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Added by Cheryl, Co-founder on August 29, 2013 at 5:30am — 3 Comments

New Jersey group

i know no one with alopecia nd would like to meet some ppl

i stood talking to alot of ppl i thought were

my friends i got very depressed when my hair started to fall

out nd after a while those ppl who o thought

were my friends stopped wanting to hang

around me cause i was going bald

how immature was that smh some days im feeling high nd some

im very low...i just want to meet a few ppl that know what im dealing

with

--------------

AW: For…

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Added by butta on August 26, 2013 at 8:30am — 1 Comment

I LOVE your support!!

As many of you know, I started "The Love Spreader" which is a YouTube/Twitter combination in which I help people dealing with Alopecia, bullying, self harming, etc.



My goal is to be a role model for people in need... especially those dealing with Alopecia. I'm trying really hard to get my stuff out there. i just did my first radio interview.... Here is the link if you are interested in hearing it. Let me know what you think and I appreciate your support!!!!…



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Added by Devon on August 25, 2013 at 9:02pm — No Comments

Alopecia World makes top of the list of alopecia resources!

According to the Josephfleischer.com Blog:

"Dealing with alopecia can be an isolating experience, even when you have a strong support system of family and friends around. It’s hard for people to commiserate when they aren’t sharing the same types of personal experiences that you are.

Luckily, we live in an age where information, advice and…

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Added by Cheryl, Co-founder on August 20, 2013 at 4:30pm — 1 Comment

RLT therapy or change in diet?

Hi! I was diagnosed with alopecia areata last september right before my son's (minor) surgery. The doctors said it was probably stress and that it would be "totally fine" after steroid injections... it wasn't fine. It spread to about the size of a ritz cracker, right on the crown of my head, then I got another one right next to it. They responded well to the treatments, but 2 more spots showed up, and again, I went to get steroid injections. They seem to work for me, which I honestly am…

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Added by maulis86 on July 25, 2013 at 12:36am — 27 Comments

Does anyone know of any good salons in Vancouver, BC doing hair extensions?

I have been battling with Alopecia for 2 years now. My hair has become so thin that at times you can see the scalp through my hair when I wear it down OR up. I am considering getting hair extension to create more fullness. I have never had them before, so I am a little lost as to which ones are the best, affordable ones in the Vancouver (or lower mainland) area.

Can anyone help me with this? Your comments are highly appreciated! Thank you!!

Added by Ladyloss on July 17, 2013 at 10:47pm — 3 Comments

In need of support

It's days like these when I really need support. I don't really know what to do with myself. My family needs me, and they are constantly upset by my lack of contributions to the household. As a teenager, I'm sort of at the whim of the adults in my household, and they don't always understand what's going on. I have cried countless times today, and probably will again.

I was diagnosed with alopecia in May, and it has progressed to about 60% loss. I also have diffuse hairloss, and my…

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Added by Madeline on July 12, 2013 at 8:00pm — 23 Comments

Good doctor in the USA?

Hi everybody,
I live in Italy, but I will go to the USA in september to attend a conference (I am a PhD candidate in anthropology).
I have gone to many doctors here, but nothing worked except a corisonic treatment that intoxicated me, many years ago. Do you know if there is any GOOD doctor I could go to in the USA? An expert in Alopecia, obviously.
I will go to Dallas, Washington DC and NYC... Thank you
Cat

Added by Cat on June 26, 2013 at 3:30am — 2 Comments

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