www.alopeciaworld.com
Added by Cheryl, Co-founder on November 13, 2023 at 2:28am — 2 Comments
Parenting has difficult moments. When a child is diagnosed with alopecia, the whole family is swept up into a whirlwind of change. There are doctor appointments, questions, treatments, and you are just looking to assure your child will live a happy life in a world that can be very cruel. Through honest conversations, we are…
ContinueAdded by Gabe on May 14, 2020 at 9:36pm — No Comments
"You can't even see it", the line you get when you first tell people about your alopecia. My mum first noticed my bald spot on my head, she didn't want to tell me at first due to my hair being my favorite thing about me. She worked up the courage over a week to tell me, I remember exactly what had happened in the moments leading up to this. I'd just finished work, mum was cooking tea in the kitchen and I was brushing my hair getting ready for a shower. A few weeks before I had asked my mum…
ContinueAdded by sunnysideupsoph on January 3, 2018 at 4:30pm — 3 Comments
Hellooooo everybody!
Wow it's been a long time since I've been on the site. I have missed seeing all the smiles and reading all the stories, but my prayers and positive vibes have been sent continually.
I lost my hair in a quick fashion 17 years ago. It was a 3 week whirlwind of hairloss and wow, it was scary. Doctors didn't know very much about Alopecia then (well, at least my doctors didn't) and they kept telling me it was just stress. Sigh. Have you heard that…
ContinueAdded by Sandy K. on September 30, 2017 at 8:00am — No Comments
Added by AZ on June 16, 2017 at 3:17am — No Comments
Been struggling with AA for twenty years. For me it never ever quite went away. It would move around the back of my head away from my direct view where it’s easier for me to ignore. Once in a while I’d get energized and want to fight it, so I’d start a cortisone and Minoxidil treatment course where for a few months I’d get shots every six weeks. No significant improvement happens, and I’d start fretting over the impact of all the cortisone and so I’d eventually give up and stop the treatment…
ContinueI wrote this blog post on my art website about a year ago, and having just discovered the Alopecia World website, have decided to share it here for fellow alopecians. Any comments are welcome.
This post is a departure for me, in that I normally limit my musings to those directly related to the subject of art or teaching. But to some extent, my art has always…
ContinueAdded by Dreambird on October 23, 2015 at 4:35pm — 3 Comments
This is a link to my blog, with things that I think are awesome perks. I had a laugh writing them, so enjoy! 10 Awesome perks about Alopecia
Added by Amy-Rose on February 25, 2015 at 2:00am — 6 Comments
Hi. My name is Kerry, and I think I decided to write this blog mainly to get out my feelings of frustration, helplessness, and fear for my 5 year old daughter.
At the end of March 2014, my daughter brought home some adorable school pictures. When I looked at them, I noticed her eyebrows were SO full, and looking at her then, they had drastically thinned. Immediately, I began trying to think back and looking through cell phone pictures of her and I discovered that this had begun…
ContinueAdded by Kkerrylynn on May 29, 2014 at 2:00pm — 39 Comments
Hello all,
I've had AA quite a long time now and am well-acquainted with its unpredictability and mysterious nature. BUT, something keeps bugging me and I'd be interested in a weigh-in or five.
First let me say that I've had eczema since infancy and had a dime-sized bald spot since kindergarten (though I was not diagnosed with AA till the end of college). So, my autoimmune history is well-established.
Yet. From my diagnosis in 2005 up till Fall 2011, my AA was never as…
ContinueAdded by OnlyChild1213 on May 13, 2014 at 11:00pm — 5 Comments
Hello, I am newly diagnosed with AA, it all started in Jan. 2014, I too have had long very thick and fast growing hair my whole life. But in Jan. it started to fall out, I was not concerned because secretly I have had lots of challenges with the thick hair. Feb., it still kept falling out, no bald patches just continuously falling out, lots and lots of hair in bathtub, on floor when styling. By March it was getting thin all over, hair changed its normal thick, somewhat coarse texture to…
ContinueAdded by hoofpick on April 29, 2014 at 1:30pm — 2 Comments
It's been a long time since my last visit here, and a long time since my last blog post. A lot of other things have kept me very busy; my study at uni (which I am almost done with already), work, projects, friends and moving to Sydney and back.
In my last blog post back in 2011 I mentioned that my bald spots were returning again which could be confronting at times in a society and age where everybody is focused on looks. Fortunately, after a while my hair started growing back again…
ContinueAdded by Lionel on January 9, 2014 at 7:00pm — No Comments
Hello Alopecia World!
I'm a new mommy (two babies under 2 years old!) and I started losing my hair shortly after a minor car accident while I was pregnant with my son. I gave birth to my daughter last summer and experienced about 90% hair loss following delivery. I'm curious if there are any other moms out there that have had this happen to them? Or anyone that struggles with alopecia and wants to share...
I started writing on wordpress:…
ContinueAdded by alopeciamami on November 18, 2013 at 1:02pm — No Comments
Hi! I was diagnosed with alopecia areata last september right before my son's (minor) surgery. The doctors said it was probably stress and that it would be "totally fine" after steroid injections... it wasn't fine. It spread to about the size of a ritz cracker, right on the crown of my head, then I got another one right next to it. They responded well to the treatments, but 2 more spots showed up, and again, I went to get steroid injections. They seem to work for me, which I honestly am…
ContinueAdded by maulis86 on July 25, 2013 at 12:36am — 27 Comments
It's days like these when I really need support. I don't really know what to do with myself. My family needs me, and they are constantly upset by my lack of contributions to the household. As a teenager, I'm sort of at the whim of the adults in my household, and they don't always understand what's going on. I have cried countless times today, and probably will again.
I was diagnosed with alopecia in May, and it has progressed to about 60% loss. I also have diffuse hairloss, and my…
ContinueAdded by Madeline on July 12, 2013 at 8:00pm — 23 Comments
While I continued to go about my stressful life as usual including breaking up with Jonathan (more on that in the book), I met Aaron* shortly after the New Year. During our lunch hour, I happened to sit across from him in the courtyard at WMA. We ended up chatting about surfing, yoga, and self-reflection of all things. He told me that he believed in working on oneself and growing as a person. I remember noting that I liked the way Aaron thought. It also didn’t hurt that he was lean from…
ContinueSo a friend suggested I see her dermatologist located in Santa Monica. Dr. Greene* was a pretty woman with dark, shoulder-length hair and a somber tone about her. Or maybe there was just something somber about telling someone they had alopecia areata?
Yes, Dr. Greene was the person who told me I had alopecia areata. I had never heard of alopecia in my life. But I quickly learned that it was an autoimmune disease that effected 2% of the entire world population.
Dr. Greene asked…
ContinueAdded by Rosanna on May 22, 2013 at 1:46pm — No Comments
I just wanted to share my recent appearance on the news on KMIR6 in Palm Springs. I hope my LOVE U formula is helpful! It definitely helped me and my coaching clients.
Added by Rosanna on May 22, 2013 at 1:30pm — 4 Comments
After going from having small bald patches that would grow back over a few months, to losing 98% of my hair and half an eyebrow—the journey has been far from easy. I look back now, and cringe over how I would stress out when I discovered tiny little patches that were covered by the thick head of hair I once had.
How I would whinge because my hair was too thick, boring and normal when I was younger, along with other image issues.
How I would kid with my best friend whether he'd…
ContinueAdded by Amy-Rose on May 22, 2013 at 2:02am — 33 Comments
I went to work that fateful morning in a daze. My mind just repeated itself over and over again. “What is going on?” I had no idea where my hair had gone or why it fell out so quickly.
I didn’t see any excessive clumps of hair on my pillow. Didn’t notice any unusual large amounts in the drain after my shower. Although I did note that I had noticed more hair than usual in the drain for the last few months. But with as much hair as I had, I didn’t think anything of it until…
ContinueAdded by Rosanna on May 2, 2013 at 2:01am — No Comments
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