NicoleT
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  • Brooklyn, NY
  • United States
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NicoleT's Discussions

Update: 1 year on Tobacitinib!

Started this discussion. Last reply by RossGraham Dec 27, 2020. 467 Replies

HI All!March 1, 2019 marked my 1 year Tofacitinib.Either Xeljanz and or Generic Tofacinix from Beacon Pharma in Bangladesh.Started on 10mg per day and bumped up to 15 mg per day in August of 2018.I…Continue

Tags: universalis, totalis, tofacitinib, xeljanz

Tofacitinib Results after 9 Months

Started this discussion. Last reply by Dan Mar 7, 2019. 91 Replies

Hi All,Here are my results after 9 months.Notice, virtually no results until about 5 monthsNote that I kept buzzing my head the entire time, hence no growth in length, just filling in.…Continue

Tofacitinib Results after 7 Month

Started this discussion. Last reply by nb3689 Sep 6, 2019. 91 Replies

HI Guys,I'm on Generic Tofacitinib from Bengladesh.On Aug 10, I increased doseage from 10 mg to 15 mg per day.I started March 1, with not one hair on my head. no eyebrows very few lashes.Here is my…Continue

My Xeljanz REsults after 6 month

Started this discussion. Last reply by Shad Sep 11, 2018. 13 Replies

Hi Guys,Here are pics of my progress on Xeljanz at 6 months from start date with AT.Slowly but surely.I started 10m on March 1.Hard to tell from side profile pic, but Right eyebrow was 100% gone and…Continue

Tags: xeljanz

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Latest Activity

NicoleT replied to Ithastogetbetter's discussion JAK Inhibitors Xeljanz Tofacitinib - 3 year update
"Wow you look amazing!! Congrats!  I started tofa exactly 3 years ago and I went from 100 bald and no eyebrows or eyelashes to full regrowth. My new profile pic is my hair now but I’ve had a lot of haircuts along the way. I was never…"
Feb 28
NicoleT replied to NicoleT's discussion Xeljanz from India
"Hi sorry for the delay. Exactly 4 months ago i started reducing my dosage. I was on 5mg every AM and 10mg every PM On nov 1 2020 I started reducing my nighttime dose to alternating 5mg one night and 10 the next. 4 months later I have no…"
Feb 28
NicoleT left a comment for Mary
"Hi Mary! Let me know if you had any questions about Beacon. Happy to help. "
Feb 28
NicoleT and AloneArchitect are now friends
Feb 28
NicoleT and Mary are now friends
Feb 25
AloneArchitect liked NicoleT's discussion Xeljanz from India
Feb 6
Patchylatchy replied to NicoleT's discussion Xeljanz from India
"Hi Nicole, I remember you posted once about weaning off procedure back in 2019. How did that end up?"
Feb 4
Susan replied to NicoleT's discussion Xeljanz from India
"I will! This success is all after over 40 years of no hair---so time does not matter!! And I was inspired by your story and success, so.... I have you to thank!"
Jan 26
Noaki replied to NicoleT's discussion Xeljanz from India
"Hello, i ordered tofacent from emergency drug but for 5 days its in dedouanement at honk kong, i m affraid they destroyed it!  Beacon does nt want to send me anymore because custom of paris destroyed it two times! But i live in france i think…"
Jan 26
NicoleT replied to NicoleT's discussion Xeljanz from India
"Yay!! Keep us posted!!"
Jan 26
Susan replied to NicoleT's discussion Xeljanz from India
"I followed their instructions perfectly and got mine in two weeks. I DID NOT use FedEx. They told me not to, so I listened! And that was at Christmastime. Merry Christmas to me!! I started taking them on December 18. Today is January 26. I have tiny…"
Jan 26
RossGraham replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Thank you! I’ve accepted and sent over a PM."
Dec 27, 2020
hgpb replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hi Ross I’m in the UK too, have sent you a friend request, happy to tell you how I dealt with my GP."
Dec 27, 2020
RossGraham replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Thanks Nicole, I’ve sent you a friend request I hope you don’t mind! Would be ace if I could ask a few questions."
Dec 26, 2020
NicoleT and RossGraham are now friends
Dec 26, 2020
NicoleT replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hey Ross! I would start at 15mg per day. 5 in am and 10 in pm. and yeah get Baseline bloodwork done and then do it again in 6 months. good luck!! "
Dec 26, 2020

Profile Information

Relationship Status:
Married
About Me:
Developed AT during IVF and pregnancy.

Lost all head hair, eyebrows and eyelashes. Started to lose all body hair.
Got all hair back after 10 months on oral Tofacitinib 15 mg per day prescribed by Columbia University in NYC.
Do you have alopecia?
Alopecia totalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (13 comments)

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At 11:59pm on October 5, 2020, Apple said…

I have been so thankful fir prescription Hope which has been able to get xeljanz for me at no cost. This program in based in USA if anyone wants to contact them for help it’s amazing. It is really evaluated yearly and you will have time where you don’t have the medication right away that’s why I needed other sources to obtain the only medical treatment that works for alopecia.

At 11:51pm on October 5, 2020, Apple said…

I am also concerned about reparation date. I have medication that will expire by 10/2021. Trying to juggle meds expiring to take first. 

At 11:50pm on October 5, 2020, Apple said…

I bought 1 year supply from beacon it took about a month or longer to arrive. Doc pharma it was 3 month supply arrived quickly and when one shipment was running late they contacted customs it arrived in 24 hours to my front door.

At 11:28pm on October 5, 2020, Apple said…

The company was DOC Parma delivered to my door within 14 days $500. For one month supply.

At 11:18pm on October 5, 2020, Apple said…

I hear that generic xeljanz will be available in USA soon. Has anyone had any news on this? I had my medication from beacon com by deliver right to my home, but it did take time to arrive. I ordered from another company from India and RCVD it promptly but costly.

At 6:45pm on July 7, 2020, Justyna said…

Does anyone there is in touch with dr. Filamer Kabigting from Hudson Dermatology? 
I’m out of country patient and I’m trying to reach him for online consultation.

At 8:44am on January 22, 2020, Apple said…

I have golden 1 credit union ... Fresno, Ca 93711. I cant sleep omg.

At 3:34am on April 7, 2019, Khalil said…
Hello dear,

Can you send my the address of the pharmacy who sealing the same Xeljanz medicine from Bangladesh

Thank you so much
At 10:56am on February 1, 2019, Justyna said…

Wow looks amazing! 

I'll definitely order it!

Congratulations!

Justyna

At 5:39am on February 1, 2019, Justyna said…

Hi Nicole,

sorry for bothering you again.

I just wanted to ask you about Tofacinix - generic version of Xeljanz from India.

How is it? Are you taking it? Does it really work the same as original Xeljanz?

I'm thinking about ordering it...

Justyna

 
 
 

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