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Comment by Cheryl, Co-founder on November 28, 2008 at 11:41am

LOL! Jack, I love it. I too have had my share of fun with my Alopecia. I think it lightens it up.

Comment by Children's Alopecia Project on November 24, 2008 at 9:44pm

The Children's Alopecia Project is based in Wyomissing, PA. We help children with alopecia build self-esteem, provide support and raise awareness. We are looking for volunteers for ALOPECIAPALOOZA August 7 -9, 2009 at the Sheraton Society Hill, if you are interested reply to this or email me at jefferywoytovich@yahoo.com

On Saturday, March 28, 2008 we have our Spring Spectacular Silent Auction. Open Bar, food, Berks County Jazz Fest Location, hundreds of silent auction items. The last four years we have had a total of 1400 attend raising $140,000! We are always looking for sponsorships and donations too!!

Comment by Stacey Benioni on October 30, 2008 at 11:25pm

Hi there, I'm a newbee.New to this world, however it's so exciting and so supportive as to what we all go through each day.

Well I first noticed bald patches around April of this year, just after my cat died. I thought that my hair was going to grow back anyways and this was normal. But then my hair just kept on falling out. I cried every time I looked in the mirror. I'm a very strong person and most of the people I know, knew what I was like if you were to go on my bad side, lol. I would keep building strength and courage when I would step out the door to keep reminding myself that I'm still beautiful. I have the boyfriend that I love. However, it wasn't until August I told my mother and sisters about my bald patches, actually one spotted them. My boyfriend took me to the doctors, i didn't want to go, i'm very stubbon. Then she told me that I had AA. I wanted to cry, but being the strong person that I am, I held it in. She gave me cream for my head but I stopped using it after 1 week. I lost hope and faith. I got a second opinion from another doctor, this time with my mum. Same thing but this time I was informed to see a skin professional. Had to wait till October 20th my lil sisters 15ht birthday so hear the news...

So there you go, a short insite to what I had to go through. The sad thing about this is that, my hair was the only perfect thing on my body and now it's taken away from me. I loved my hair so much, I would brush it 100 times before I went to sleep, I would not use any cheep products on my hair and I only dyd it once a year. Now I don't have to go through those any more, sad as it sounds but now I have more time to enjoy those little things in life, like love, friendships, saving money and taking care of my health.
I'm just starting out the support groups, and i'm enjoying it so far.
Right now, it's exam time so i'm spending most of the time with my head in the books and keeping an open mind about the bigger picture. I'm still wondering if I should shave what hair I have left or get a wig. I love wearing scarves they are so fashionable and HOT in summer lol. I really want to find support groups where we can meet up in person. Anyone out there from New Zealand that has suggestions or can help me?????
Thanks for letting me tell you my story...mwah!!!!!!!

Comment by Jenn on October 6, 2008 at 11:28am

desert angel - thnx so much, i love hugs!

Comment by Jenn on October 6, 2008 at 11:27am

hey mel,welcome. i am just a couple of months ahead of you, but i never knew anyone with this so it is really hard for me. before i found this site (last week) i didn't know there were other people like me and i am struggling to deal with it. but this site has been such a god send. i know that i am not alone and there is always several peole that answer questions.

Comment by mel on October 6, 2008 at 10:07am

hi im mel, im 33 and have olpecia im not sure what type i have has it is due to havin lupus sle, i still have hair at the moment but it is fallin out very rapidly. Im not sure what treatment i will be taking if any has the side effects maybe worst than losing my hair, i was fortune enough to meet gail porter at work last year before i had olpecia i admired her courage and will be brave enough to shave my hair when the time comes, im glad i found this website as it will help me when no-one else understands how im feeling

Comment by DesertAngel on October 2, 2008 at 10:48pm

Hi, Jennifer and SylviaB. Wish I could give you a great big hug because I'm having a hard time dealing with this too. But you know what? It's getting better for me and it will for you too. We'll learn how to deal with this together. Lots of great people here to help us with that.

Comment by Jenn on October 2, 2008 at 2:13pm

hi everyone, i am jennifer. that is me in the middle in the pic and that was april with my real hair. today is a different story. i lost so much hair that i ended up shaving the rest of it off, lets face it a comb over on anyone is not attractive! i am having a lot of problems coping with this! i just don't know how to deal with it.

Comment by SylviaBonin2008 on September 30, 2008 at 2:20am

hello..
i am not sure, exactly, why i am loosing my hair (around the top-part)
at the moment.. my doctor said, could be "female pattern baldness"..
my-dear-god.. i cannot understand, why that is happening to me..
any help appreciated, thank you..

sylvia

Comment by DesertAngel on September 22, 2008 at 1:08am

I was diagnosed with scarring alopecia in July. I've been reading all I can on this form of alopecia. I still don't know if it will one day take all of my hair. I do know that some days the itching drives me crazy and the tender scalp is a downer too. My pattern of balding is a bit comical. Maybe I'll laugh at it next year because right now, I'm in no laughing mood.

I'm happy to have found this site though. I know in the days to come, this place will be an anchor for me (besides my family and friends. But they all have hair :p).

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