Alopecia World
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Newly Diagnosed with Alopecia
Information
This group is for people who are new to alopecia. It's a place to learn the essentials of coping and how to continue living life to the fullest despite the condition. More experienced alopecians are also invited to offer support and guidance.
Members: 545
Latest Activity: Feb 9, 2020
Tips for Coping with Alopecia from Day One
2. Consult a physician when you think your hair loss has become excessive or abnormal.
3. Get a second or third opinion if you need confirmation of a physician’s diagnosis.
4. Educate yourself about alopecia (hair loss), its many possible causes, traditional and alternative treatments, treatment costs, possible side-effects, and other options (e.g., wigs, scarves, etc.).
5. Remember that bald is beautiful, too.
6. Seek the advice of your physician and people who love and care about you before making decisions about treatments or lifestyle changes.
7. Join an alopecia support group to receive insight and inspiration from others who are living with hair loss.
8. Give others who may also be concerned (e.g., your employer, school, or church) appropriate information about your condition.
9. Maintain your emotional well-being by learning positive strategies for coping with depression, rejection, ridicule, stress, anxiety, and other negative feelings and experiences. Also develop conflict management skills, and other strong interpersonal skills, which you can use when dealing with people who choose to remain ignorant or insensitive. In other words, see a professional counselor, if you must.
10. Live life to the fullest, which includes allowing yourself to truly love and be loved and taking full advantage of the new opportunities alopecia opens to you.
Cheryl Carvery and richard jones (rj) encourage you to share these 10 helpful suggestions with others who are dealing with alopecia.
Discussion Forum
What are the top three challenges you have as a woman coping with alopecia in a hair obsessed society?
Started by PamFitros@boldlybaldwomen.com. Last reply by Macaulaccormick Aug 28, 2019. 7 Replies 1 Like
Newly balding
Started by Momuv2. Last reply by Momuv2 Aug 23, 2015. 2 Replies 1 Like
just diagnosed and scared...
Started by Catia. Last reply by Aly Dec 18, 2014. 5 Replies 3 Likes
How do I do this?
Started by MelodyAutumn. Last reply by PamFitros@boldlybaldwomen.com Nov 18, 2014. 6 Replies 1 Like
Development of AA
Started by Cam. Last reply by PamFitros@boldlybaldwomen.com Nov 10, 2014. 1 Reply 0 Likes
New to this...
Started by ladyeury. Last reply by wtfsamikinz Nov 8, 2014. 2 Replies 0 Likes
Just diagnosed
Started by Kteacher. Last reply by alopeciamommy Nov 1, 2014. 9 Replies 0 Likes
Children with alopecia in New Zealand
Started by MummyWendy. Last reply by alopeciamommy Nov 1, 2014. 1 Reply 0 Likes
Getting Past the Pain - Three Things You Need to Know
Started by PamFitros@boldlybaldwomen.com Oct 13, 2014. 0 Replies 2 Likes
Sad
Started by bobbi. Last reply by BarbaraK Oct 5, 2014. 8 Replies 0 Likes
Just realized it's probably not coming back...
Started by SBXBlackJade. Last reply by Angie Jun 16, 2014. 1 Reply 0 Likes
Anyone lose their eyebrows before losing all their hair?
Started by rugsfromme2u. Last reply by Anna Jun 10, 2014. 8 Replies 0 Likes
Question About AA and Eyelashes
Started by Michelle. Last reply by Kathryn Jun 11, 2013. 6 Replies 0 Likes
It's been a (long) Year
Started by Marissa. Last reply by Fay May 28, 2013. 5 Replies 0 Likes
New to this World
Started by Jackie E.. Last reply by Catia May 28, 2013. 9 Replies 0 Likes
Trying to learn how to move forward
Started by Lindsay Rossi. Last reply by Lindsay Rossi Apr 12, 2013. 3 Replies 0 Likes
Unpigmented regrowth?
Started by Jaclyn. Last reply by Annette Mar 30, 2013. 9 Replies 1 Like
New to all of this, diagnosed just days ago with Alopecia Areata
Started by Stephanie. Last reply by Annette Mar 30, 2013. 15 Replies 0 Likes
Comment Wall
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Comment by Dawn on March 12, 2010 at 1:54am
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I hate the stress comment, too. It's beyond annoying and quite frankly, wrong. My hair loss is hormonal. Apolecia areata, totalis and universialis is from a auntoimmune disorder where your immunie system attacks and rejects the hair follicles. Doctors don't know much about hair loss, and they are reluctant (it seems) to learn more and they lean on old wives tales.
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Comment by Stephanie on March 9, 2010 at 10:12am
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That is obnoxious! A lot of my friends think my hair will grow back too but in their case I think they are being hopeful for me. In your case, being accused of paranoia is unkind and frankly ignorant. I would suggest they google AU and leave it at that. I think it's okay to ask them to refrain from bringing it up with you. Another thought is what Mary does (pretty sure it's Mary). She hands out cards that give a simple explanation of Alopecia. Good luck and welcome!
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Comment by Leah Larson on March 9, 2010 at 10:08am
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The stress of it growing back and falling out again is terrible. I don't miss running to the doctor monthly for painful shots, not knowing how bad it would eventually get....although I never expected I'd turn Totalis, let alone Universalis! Look on paulayoung.com and order a cute wig with a comfortable liner. You won't miss having to wash and style your hair everyday! It's devastating at first, but everything happens for a reason and you have a lot of support via this site! Let me know how I can be of assistance through your transformation.
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Comment by Michelle on March 9, 2010 at 8:52am
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can some one please help me. I was recently diagnosed with Alopecia universalis. and knowing my hair my hair will most probably never grow back (well i'm in the beginning stages of it) In South-africa no one is really aware of Alopecia and trying to explain it to ppl as well as i can from info i got. Some one told me i'm paranoid and this is nothing my hair will grow back in the next year. how do you deal with some one like that. no matter what you tell them they keep on telling you, your paranoid.
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I think I'll just keep it short for now.
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Don't shave it, just see what happens and get a wig for "back up". You won't miss hair anywhere besides your lashes & head anyway! Think of how quickly you'll be able to get ready for work when you just have to pop a wig on.
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My hair has thinning out greatly since I was dx'd and joined aw. I had it cut really short. I'm starting to wander if I need to go wig shopping. The spot on my crown is slowly spreading. ugh. I was having it hard today, but my dog was there being supportive. If its gets worse, I'm planning on shaving, but not before I own a wig.
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Comment by JET on December 1, 2009 at 10:27pm
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Hello; I just wanted to stop by and say Hello. Have a wonderful week. God bless you.
-Jet
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I took those treatments for 15 years.....falls out, grows back and starts over somewhere else. Eventually mine turned into universalis......I remember how much the injections hurt....don't miss them at all! Good luck, hope you can hide the spots with hair spray or scarves......
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Comment by Allison Miller on November 14, 2009 at 3:08am
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I just found out I had alopecia yesterday. I lost my all my hair once at 5 but it all grew right back. The doctors said they did not know what it was and I never thought anything else of it. But a couple of days ago I found a bald spot about the size of a quarter, withing just a couple days it has grown alot! I went to the dermatologist and she told me what it was...same thing that happened as a kid.
She gave me steriod injections in my head ouch...right after I found out what it was...still kinda confused about all of this.
She said it may come back, and stop falling out...
From anyones past experiance, what do you think? Does this sound like it will get worse or do steroids usually work? How long will it take to fall out if it does? uhhhh...I don't know where to find answers.
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